30/10/2025
Around 500,000 patients are affected by Epidermolysis Bullosa (EB) worldwide*.
There are four types of EB that are mostly categorised by the level of cleavage at the dermal/epidermal junction.. Epidermolysis Bullosa can range from mild, where the patient experiences small, reoccurring blisters through to the most severe, where blister also develop in the soft tissues (mucus membranes) inside the body. Eating solid food, for example, can have a devastating effect on the mouth and the oesophagus**.
The lives of patients are overshadowed by pain and discomfort – and stress is a constant as they seek to avoid the physical contact that will damage their skin. Many children with EB, who are often called the ‘butterfly children’, are unable to experience the joys of a normal childhood. Patients are frequently hospitalised – and people may miss blocks of education or work if they are unable to fulfil their commitments because of the severity of their wounds and other effects of the condition.
Learn more here: https://bit.ly/40hFu3B
* DEBRA (www.debra.org.uk/what-is-eb). Accessed 20/10/2017.
** Denyer, J., Pillay, E. and Clapham, J. Best practice quidelines for skin and wound care in epidermolysis bullosa. International Consensus. Debra. 2007. Available at: https://lnkd.in/dW-B9SBe. Accessed 18/10/2017.
