Lofty Health and Wellness

Lofty Health and Wellness Specialising in POTS/OI, ME/CFS, EDS/HSD, long COVID, other dysautonomias, fatigue & invisible illnes

📢 Dysautonomia Awareness Month Fundraiser Update 📢A huge thank you to everyone for their generous donations and support....
02/11/2025

📢 Dysautonomia Awareness Month Fundraiser Update 📢

A huge thank you to everyone for their generous donations and support.

I managed to get to the goal and already planning next year.

It's not too late to donate to my Fundraiser with all donations going to Australian POTS Foundation

📢 3RD FUNDRAISER COMING UP QUICKLY 📢Once again I'm raising money for and Lofty Health & Wellness are going to match ev...
15/09/2025

📢 3RD FUNDRAISER COMING UP QUICKLY 📢

Once again I'm raising money for and Lofty Health & Wellness are going to match every donation dollar for dollar up to the $1000 goal.

Riding and walking this month is going to be a massive challenge again, but all for a good cause -

A "warm up" this weekend at the City To Bay.

Please share far and wide to raise awareness of Dysautonomia and POTS!

03/08/2025

Can't wait to see you running as a flower pot Doctor Paul! 🌻 Thank you for doing this to raise awareness and funds for people with POTS! 🙏

I've been a VERY long time listener of the Standing Up to POTS POTScast - learning so much over the years from the guest...
31/07/2025

I've been a VERY long time listener of the Standing Up to POTS POTScast - learning so much over the years from the guests.

It was incredible to have a conversation with Jill recently about:
1. My personal POTS experience.
2. The emerging evidence about tVNS for POTS.
3. Using HRV in POTS.

Plus many other POTS "hacks" along the way.

Thanks again for having me!

🎧 Link to podcast in comments

It was such an honour to be invited as a speaker and also attend the other incredibly informative sessions at the .danlo...
10/02/2025

It was such an honour to be invited as a speaker and also attend the other incredibly informative sessions at the .danlos Society Global Learning Conference in Brisbane over the past few days.

Caelum helped facilitate the POTS in EDS Workshop on Sunday, talking about an area he is passionate about - Heart Rate Variability. He also contributed to the Panel session on Saturday about Tech and Innovation.

Molly also attended the conference in person and was able to take away incredibly valuable information from each session.

Like many conferences, we were able to network (face to face!) with our amazing colleagues from interstate and overseas. Plus have so many wonderful conversations with the patient community who attended.

It's always a difficult decision for us to close down our usual work for a few days to attend a conference in person. We often feel guilty that we can't offer that time as appointments that we know our community needs urgent access to. However, we know it will help us to help our community in a better way than beforehand. And we are hopeful that other practitioners and people living with EDS/HSD receive some benefit from our contribution and networking.

Until the next one... 🦓❤️🦓



Looking forward to being part of the POTS workshop (Sunday) and panel discussion about collaborative insights in the te...
19/01/2025

Looking forward to being part of the POTS workshop (Sunday) and panel discussion about collaborative insights in the technology space (Saturday)

Plus a huge amount of collaborative learning to work with our EDS and HSD community 🙏

As the year comes to a close, we want to take a moment to thank you for allowing us to be a part of your health journey....
24/12/2024

As the year comes to a close, we want to take a moment to thank you for allowing us to be a part of your health journey.

A special thank you to all our amazing patients for trusting us with your care this year! We're honoured to have the opportunity to make a positive impact on your health and wellbeing.

This year has been filled with some challenges and special achievements. Your support has inspired us to do our best every day.

From our little team, we wish you a happy and healthy Christmas and a restful start to the New Year.

Thank you again for being part of our community in 2024. We look forward to the plans and opportunities to continue to help the invisible illness community in 2025

❤️ Molly & Caelum

Super interesting preprint undergoing the peer review process at the moment.For anyone using .health for monitoring to...
04/12/2024

Super interesting preprint undergoing the peer review process at the moment.

For anyone using .health for monitoring to help with , this is a must read.

Findings demonstrate the use of mobile health tools for monitoring of symptoms and highlight the need for further research to integrate them into clinical decision-making processes.

📢📢 Dysautonomia Awareness Month Fundraiser 2024 Final Update 📢📢A huge thankyou 🙏 to everyone for sharing and donating to...
01/11/2024

📢📢 Dysautonomia Awareness Month Fundraiser 2024 Final Update 📢📢

A huge thankyou 🙏 to everyone for sharing and donating to raise awareness and money for the Australian POTS Foundation.

As we are all aware, raising money in 2024 for charity is especially difficult with the cost of living. After a few donations yesterday, we are pleased to announce we reached the goal!

We're thrilled to announce the final amount raised was $1015. We have also made a $1000 donation, bringing the grand total to $2015!

🙏THANKYOU SO MUCH🙏

A few stats...
🚴‍♂️ 20hr01min & 260km ridden
🚶‍♂️ 11hr03min & 53km walked
🕑 31hours + 4min total time 🎯✅️
📏 313km total distance covered
🫶 17 donations from some amazing people
💰 $2015 raised for The Australian POTS Foundation!!!

Looking forward to planning next year's event!



13/10/2024

📢 UPDATE 📢
⏰️ Halfway through October!
🚴‍♂️ 14h13m/30 hours time completed
💰 $630/$1000 raised
🦵 2 sore legs 🤣
🙏 Thank you so much for sharing and donating 😊

Fundraising link: https://gofund.me/312bcfda

📢 IT'S HAPPENING AGAIN 📢I'm doing something silly (again) for and Lofty Health & Wellness are going to match every don...
12/09/2024

📢 IT'S HAPPENING AGAIN 📢

I'm doing something silly (again) for and Lofty Health & Wellness are going to match every donation dollar for dollar up to the $1000 goal.

Although I love my mountain biking, and it's great for my POTS, this will be a challenge! I juuust managed to scrape through last year. I've done a few calculations and 30 hours will be very similar to the 500km last year.

Please share far and wide to raise awareness of Dysautonomia and POTS!

Fundraising link: https://gofund.me/01c18c72

📢 IT'S HAPPENING AGAIN 📢I'm doing something silly (again) for and Lofty Health & Wellness are going to match every don...
12/09/2024

📢 IT'S HAPPENING AGAIN 📢

I'm doing something silly (again) for and Lofty Health & Wellness are going to match every donation dollar for dollar up to the $1000 goal.

Although I love my mountain biking, and it's great for my POTS, this will be a challenge! I juuust managed to scrape through last year. I've done a few calculations and 30 hours will be very similar to the 500km last year.

Please share far and wide to raise awareness of Dysautonomia and POTS!

Fundraising link in bio.

Address

PO Box 18
Burnside, SA
5066

Telephone

+61433577143

Website

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