ME/ CFS South Australia Inc

27/03/2026

Have you heard about the AusAlert coming in July? A siren will sound on every mobile device with a sim connection. ME/CFS Australia have met with NEMA to ensure the concerns of the ME/CFS community have been considered.

Yesterday ME/CFS Australia met with the Stakeholder Engagement team at the National Emergency Management Authority regarding the AusAlert system which is being prepared.

It was a very reassuring and supportive discussion where we shared our concerns and received some important guidance.

The ME/CFS community has now been considered in this process and we will have some very specific ideas about how people with ME/CFS can better manage their devices.

The AusAlert website is aiming to launch at the end of April. We will receive specific community engagement materials a few days prior. Check back here for this information.

15/03/2026

is holding an online Seminar, 28th March at 2pm ACDT.

Smart Gadgets to make your life better.

The team from CareWindow will present about IT hacks that you can use around the home to make life easier. They will also present on their tech-simple CareWindow communication and care device.

For more information - https://mecfssa.org.au/event/seminar-smart-gadgets-to-make-your-life-better

This seminar is for members of ME/CFS SA only. Annual membership is only $5, and you can join here - https://mecfssa.org.au/get-involved/membership

28/01/2026

Researchers from RMIT University are inviting women living with invisible illnesses to take part in a research study exploring how they navigate their condition with support from family, friends, peers, and healthcare providers.

The study involves completing a short online demographic questionnaire (approx. 10 mins) and participating in a one-on-one interview conducted via Microsoft Teams (approx. 30-60 mins).

The research aims to better understand everyday experiences of care and support among women with conditions including, but not limited to, myalgic encephalomyelitis/chronic fatigue syndrome, fibromyalgia syndrome, postural orthostatic tachycardia syndrome, and long COVID.

Participants will receive a $50 Coles gift voucher in recognition of their time.

If you are interested in taking part, please contact Gabriella at Gabriella.apostolou@rmit.edu.au

You can find information from Gabriella on our website at https://mecfs.org.au/get-involved/participate-in-research

24/12/2025

Sorry, please use this link. - https://www.nhmrc.gov.au/health-advice/me-cfs/governance/guideline-development-committee/summary-meeting-november2025

24/12/2025

Wishing you a peaceful Christmas and a welcoming 2026, from everyone at ME/CFS Australia.

24/12/2025

We wish you all a peaceful Christmas and a welcoming New Year!

www.mecfssa.org.au

12/11/2025

Please support this amazing initiative by Jack!

Hey everyone, this year I have been running a marathon in all eight Australian states and territories for my best friend who has had ME/CFS for over three years. With the eighth and final marathon on Saturday, over $30,000 has already been donated to the two charities I am supporting, which is absolutely amazing and so humbling.

To mark the end of the marathons, any donations this week to my fundraiser for ME/CFS Australia will be entered into a draw to win a year’s supply of non-alcoholic beer (worth $840), kindly donated by Heaps Normal. And you get to support an amazing cause!

Every $20 donated will be one entry, so the more you donate the greater chance you have to win. Make sure to leave some contact details when you donate so I can let you know if you win!

Please follow the link below to donate.

https://www.justgiving.com/page/mecfsmarathonsaus

Thank you.

28/10/2025

Jack running 8 marathons in 2025 to support awareness of ME/CFS - his last marathon is in just over two weeks time in Canberra. https://www.justgiving.com/page/mecfsmarathonsaus

10/10/2025

The ME/CFS Scoping Survey was released by NHMRC on 21 February 2025 and was open for 9 weeks through to 27 April 2025. The survey was open to the public and was designed to gather insights from individuals with ME/CFS and related conditions (Long COVID, postural orthostatic intolerance syndrome (POT...

07/10/2025

Friendly reminder regarding the seminar this afternoon💙

AGM & Speaker

Molly Schultz, OT, from Lofty Health and Wellness.
The Annual General Meeting of ME/CFS South Australia Inc. members is on Saturday 18 October 2025 at 2pm ACDT.

We will hold a short meeting to share our annual report and hold elections for the management committee first, then our seminar, followed by chat. Welcome to join for the entire time, or jump in as you feel.

This seminar will discuss key considerations for the ME population, and pro's and con's of various mobility aids. Examples of various types of aids will be presented with a focus on powered mobility aids features and considerations.
To learn more about Molly and her presentation, visit: https://mecfssa.org.au/event/seminar-mobility-aids-for-me-with-molly-schulz-ot

It is being held online via Zoom. You can access this over the internet or by calling the phone number on the invitation. Seminars are available in Members Resources after the event.

Reminder: You must be a financial member to attend the upcoming AGM and seminar. You can renew online through our website or please call 0493 468 288.
Membership: https://mecfssa.org.au/get-involved/membership

03/10/2025

Jack has already completed 6 marathons to raise awareness of ME/CFS!

His next marathon is in Perth on 12th October.

Please, if you can, support him by donating at https://www.justgiving.com/charity/mecfsaust

Currently patients of ME/CFS receive less than $1 per person for research into their condition.



https://mecfs.org.au/

02/10/2025

Date: Thursday 28 August 2025Time: 12:30 pm – 2:30 pm AESTLocation: Virtual meeting