ME/ CFS South Australia Inc

12/11/2025

Please support this amazing initiative by Jack!

Hey everyone, this year I have been running a marathon in all eight Australian states and territories for my best friend who has had ME/CFS for over three years. With the eighth and final marathon on Saturday, over $30,000 has already been donated to the two charities I am supporting, which is absolutely amazing and so humbling.

To mark the end of the marathons, any donations this week to my fundraiser for ME/CFS Australia will be entered into a draw to win a year’s supply of non-alcoholic beer (worth $840), kindly donated by Heaps Normal. And you get to support an amazing cause!

Every $20 donated will be one entry, so the more you donate the greater chance you have to win. Make sure to leave some contact details when you donate so I can let you know if you win!

Please follow the link below to donate.

https://www.justgiving.com/page/mecfsmarathonsaus

Thank you.

28/10/2025

Jack running 8 marathons in 2025 to support awareness of ME/CFS - his last marathon is in just over two weeks time in Canberra. https://www.justgiving.com/page/mecfsmarathonsaus

10/10/2025

The ME/CFS Scoping Survey was released by NHMRC on 21 February 2025 and was open for 9 weeks through to 27 April 2025. The survey was open to the public and was designed to gather insights from individuals with ME/CFS and related conditions (Long COVID, postural orthostatic intolerance syndrome (POT...

07/10/2025

Friendly reminder regarding the seminar this afternoon💙

AGM & Speaker

Molly Schultz, OT, from Lofty Health and Wellness.
The Annual General Meeting of ME/CFS South Australia Inc. members is on Saturday 18 October 2025 at 2pm ACDT.

We will hold a short meeting to share our annual report and hold elections for the management committee first, then our seminar, followed by chat. Welcome to join for the entire time, or jump in as you feel.

This seminar will discuss key considerations for the ME population, and pro's and con's of various mobility aids. Examples of various types of aids will be presented with a focus on powered mobility aids features and considerations.
To learn more about Molly and her presentation, visit: https://mecfssa.org.au/event/seminar-mobility-aids-for-me-with-molly-schulz-ot

It is being held online via Zoom. You can access this over the internet or by calling the phone number on the invitation. Seminars are available in Members Resources after the event.

Reminder: You must be a financial member to attend the upcoming AGM and seminar. You can renew online through our website or please call 0493 468 288.
Membership: https://mecfssa.org.au/get-involved/membership

03/10/2025

Jack has already completed 6 marathons to raise awareness of ME/CFS!

His next marathon is in Perth on 12th October.

Please, if you can, support him by donating at https://www.justgiving.com/charity/mecfsaust

Currently patients of ME/CFS receive less than $1 per person for research into their condition.



https://mecfs.org.au/

02/10/2025

Date: Thursday 28 August 2025Time: 12:30 pm – 2:30 pm AESTLocation: Virtual meeting

22/08/2025

𝐏𝐋𝐄𝐀𝐒𝐄 𝐍𝐎𝐓𝐄 𝐓𝐇𝐀𝐓 𝐓𝐎𝐌𝐎𝐑𝐑𝐎𝐖'𝐒 𝐒𝐄𝐌𝐈𝐍𝐀𝐑 𝐁𝐄𝐆𝐈𝐍𝐒 𝐀𝐓 𝟐.𝟑𝟎𝐏𝐌!!

We apologise for any misunderstanding around the start time.

To attend you must be a Member (a whole $5!) so if you aren't already, join now at https://43660467.hs-sites.com/membership-sign-up

15/08/2025

EDIT: Please note that the start time is now 2.30pm!

A reminder about our upcoming Seminar:

To attend you must be a Member (a whole $5!) so if you aren't already, join now at https://43660467.hs-sites.com/membership-sign-up

is holding an online Seminar on 23rd August at 2.30pm, by Savita Sandhu.

Savita is a patient-turned-practitioner who is passionate about bringing ease and clarity to the nutrition journey of those living with invisible illnesses.

She has a particular interest in Ehlers Danlos Syndromes and co-existing conditions like POTS, MCAS, and abdominal vascular compressions due to lived experience of these.

For more information - https://mecfssa.org.au/event/seminar-mcas-and-me-with-savita-sandhu

This seminar is for members of ME/CFS SA only. Annual membership is only $5, and you can join here - https://mecfssa.org.au/get-involved/membership

08/08/2025

Severe ME Awareness Day is held every year on August 8th.

Twenty-five percent of people with ME/CFS have severe or very severe ME, meaning they are almost completely housebound, permanently housebound or bedbound.

Today we acknowledge those in our ME/CFS community who are rarely or never seen by others, as patients or as dedicated carers.

07/08/2025

NEW national website! https://mecfs.org.au/
ME/CFS Australia is the peak body for patient-led ME/CFS charities in Australia.
As a member, ME/CFS South Australia has contributed to the production of this website, together with the other member organisations. Take a look and let us know what you think!

ME/CFS Australia is excited to announce the launch of our new website!

Designed and written by people with ME/CFS, checked and edited by medical experts.

Take a look… let us know what you think. 😊

www.mecfs.org.au

31/07/2025

is holding an online Seminar on 23rd August at 2.30pm, by Savita Sandhu.

Savita is a patient-turned-practitioner who is passionate about bringing ease and clarity to the nutrition journey of those living with invisible illnesses.

She has a particular interest in Ehlers Danlos Syndromes and co-existing conditions like POTS, MCAS, and abdominal vascular compressions due to lived experience of these.

For more information - https://mecfssa.org.au/event/seminar-mcas-and-me-with-savita-sandhu

This seminar is for members of ME/CFS SA only. Annual membership is only $5, and you can join here - https://mecfssa.org.au/get-involved/membership