SAbility

23/10/2021

I love you too Greta Girl!

23/06/2021

Thanks so much to the for your kind gift! are our favourites! smells amazing! We want to be loud . We wish we didn’t need to be!!! It’s time for change!

23/06/2021

Another project ✅ This communication board can be found at the Main Street Reserve, Eastwood, Adelaide. I started the project last year and am so proud it’s been completed. This is such a beautiful, fenced park with a playground and lots of running space. It has BBQ’s and access to a toilet. It is under the shade of lots of gum trees which suits children that refuse to wear a hat! We chose words specifically related to the park. Thanks to for listening to me, and facilitating a park dream of mine! Two Way Street

20/06/2021

What a magical day! Forests, bush walks, picnics, fires, marshmallows, fun, laughter, footy, love and fresh air. Life is sweet! 🥰*disabled toilet access at chookarloo campground. Large ramp and room. No change table. BYO toilet paper *

20/06/2021

Today we had the most magical day. Forests, fires, marshmallows, bush walks, picnics, mushrooms and friendships. So many smiles, laughs and happy memories. Life is sweet! *access to disabled toilets good. Large open room. Bring your own toilet paper. No change table available at the chookarloo campground*

18/06/2021

Some people lose perspective of what is really important. Love, friendships, loyalty and advocacy is something I’m fiercely proud of. I have the most amazing friends. They are a village to my little family. You all know who you are. Thank you ###

16/06/2021

Thanks for all your kind words and support after the episode of tonight. Thanks for for her empathy and professionalism telling the stories of our beautiful children. It’s a story I wish didn’t need telling. To donate to The Childhood Dementia Initiative visit www.childhooddementia.org

14/06/2021

13/06/2021

Did you see us in the Sunday Mail today? We featured in a story raising awareness of and the Childhood Dementia Initiative. It’s time for change. It’s time to talk about Childhood Dementia and lobby for funding for research.

10/06/2021

Rett Syndrome is part of the 70 diseases/syndromes of Childhood Dementia. 1 in 2800 children are affected by one of these debilitating and lethal diseases. Things need to change. Awareness is imperative, research is a game changer. Knowledge is power!!! Greta and I have been lucky enough to be involved in some media pieces this week. I’ll let you know where you can see us! Childhood Dementia Initiative

03/06/2021

Mr 11 loves camping 🏕 Greta loves being outdoors and amongst it. Unfortunately, unless I’m holding Greta’s hand or she’s tethered to me (which I rarely do unless there’s a cliff) she will run away and doesn’t understand stop or come back. She is also drawn to water like a Labrador! So, are there any caravan parks, camping grounds or outdoor spaces out there with cabin or area that suit these children with special needs? A small fenced area means that families could enjoy camping together without leaving their special kids at home. A small fence area so that kids with autism, ADHD and other disorders can spend time outdoors with other children safely and don’t bolt! A space their parents could live the “normal” life they are gagging for, for just a few nights. Let me know if you know of any. I’d love to visit them! ⛺️ 🍻 🌲 🍷 🔥

01/06/2021

Sometimes I just need to breathe. I don’t get much to myself. In between kids, shift work, Fergus’ sports, Greta’s therapies and medical and appointments there’s not much time left for me. So, when I can, I pound the beach with my favourite peeps and just breathe. @ Brighton, South Australia, Australia