Emerge ACT

30/03/2026

This week's topic for our Club Tortoise pacing program is 'Building a flare or crash toolkit'. Club Tortoise is a free weekly program for Emerge ACT members to help support pacing and self management skills for living with a fatiguing condition.

26/03/2026

Seeking people with Long COVID who have gotten care from a GP for their long COVID 📣

Contact the researcher at manya.bhambri@anu.edu.au or put in your EOI here: https://qualtricsxmydvpqqm6s.qualtrics.com/jfe/form/SV_4Nvg7hEgYfclv7M?Q_CHL=qr

23/03/2026

18/03/2026

This is on this afternoon for members - a good opportunity to see the kind of research happening in the ACT

Members will have a wonderful opportunity this week to hear from a researcher at the ANU about her prospective study into the experiences of seeking Long COVID care from GPs in the ACT.

When: Thursday 19th March at 4:00pm
Where: via Zoom (will be recorded)
Free for current members
Contact mecfs@arthritisact.org.au for more info.

Joining the study:
If you are interested in participating please follow the link or scan the QR code below, which will take you to an expression of interest form: https://qualtricsxmydvpqqm6s.qualtrics.com/jfe/form/SV_4Nvg7hEgYfclv7M

If you have any questions, please contact Manya at: manya.bhambri@anu.edu.au

15/03/2026

Members will have a wonderful opportunity this week to hear from a researcher at the ANU about her prospective study into the experiences of seeking Long COVID care from GPs in the ACT.

When: Thursday 19th March at 4:00pm
Where: via Zoom (will be recorded)
Free for current members
Contact mecfs@arthritisact.org.au for more info.

Joining the study:
If you are interested in participating please follow the link or scan the QR code below, which will take you to an expression of interest form: https://qualtricsxmydvpqqm6s.qualtrics.com/jfe/form/SV_4Nvg7hEgYfclv7M

If you have any questions, please contact Manya at: manya.bhambri@anu.edu.au

15/03/2026

Recording now available!

Thank you to everyone who joined us at Parliament House and online for the Parliamentary Friends of ME/CFS meeting, Fluctuating Energy, Fixed Systems.

Speakers shared powerful experiences and insights on how rigid systems fail people with ME/CFS and other energy limiting conditions.

When energy fluctuates but systems stay fixed, people fall through the cracks. This must change.

If you missed the meeting, the full recording is available on our website: https://zurl.co/qThaI



Myalgic Encephalomyelitis Group Australia Ltd ME/CFS Australia ME Advocacy Network Australia Fibromyalgia ME CFS Australia Bridges & Pathways Dr Mike Freelander MP Mark Butler MP Dr Monique Ryan Rebecca White

15/03/2026

The next two weeks of Club Tortoise, our topics are focusing on: prioritising fun and pleasure, and is recovery realistic?

Club Tortoise is a free program for members to work on their pacing skills and self-management goals in a supportive environment. Contact us for more information.

15/03/2026

Today is Long COVID Awareness Day 💙

For many people in our community living with long COVID and ME/CFS, life is measured in energy, not time.

Every action has a cost — a shower, a phone call, a short walk, even thinking too hard on the wrong day. What used to be automatic now requires planning, pacing, and careful consideration.

Conditions like long COVID and ME/CFS mean bodies are operating with a much smaller battery. When that battery runs out, it’s not just “feeling tired”, it can mean days or weeks of worsening symptoms and post-exertional malaise (PEM).

Today, please remember:
• If someone with long COVID cancels plans, they’re protecting their health.
• If they need to rest after something small, their body truly needs it.
• If they’re pacing their day carefully, it’s how they stay as well as possible.

Awareness is more than knowing long COVID and ME/CFS exist, it’s understanding the invisible energy calculations people make every day.

Listen to people living with long COVID and ME/CFS. Support research, clinical education, and equitable access to care. And most importantly - believe them. Share this post to raise awareness today for those living with long COVID and ME/CFS. 💙

13/03/2026

New online module for GPs!

Emerge Australia has launched a new online learning module for general practitioners:

ME/CFS in General Practice: From invisible to visible.

In this case-based learning module, your GP or other healthcare practitioner will receive practical guidance around:
🤔Identifying if someone might have ME/CFS
✅How to make a diagnosis and avoid misdiagnosis
💬Talking with patients who have experienced stigma and dismissal
🎯Starting care that is safe for the patients energy envelope

Your GP can earn RACGP CPD points by doing this module.

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13/03/2026

You probably know someone living with long COVID. Let's spread awareness about this chronic condition, this Long COVID Awareness Day.

12/03/2026

On the topic of Long COVID for International Long COVID Awareness Day 15 March 2026 - one of our peer workers, Ronja, presented her Honours research on Long COVID and Identity Loss to members last year. The recording from the presentation can accessed via our YouTube channel here:

Ronja shares her Psychology Honours research project and findings from investigating experiences of identity loss and coping with long COVID. This research p...

10/03/2026

This International Long COVID Awareness week, we're sharing a few resources that can be a help if you or a loved one lives with Long COVID.

This is our free Long COVID Self Management video playlist, with 17 different topics about living well with Long COVID. https://youtube.com/playlist?list=PLNO7aoK4VFg-L7s7y2KxuYdVl5rbWwSUM&si=cqjuqv4UrBUXC4zA

For those suffering from post COVID symptoms (or long COVID), this arrangement of videos will assist. For further information please view our website at Emer...