Emerge ACT

04/02/2026

Need help applying for the National Disability Insurance Scheme (NDIS) with ME/CFS or long COVID?

You’re not alone. Emerge Australia’s free, self-paced NDIS learning module walks you through the process step by step. You’ll get:
A recorded video presentation
Downloadable worksheets
A template letter for your doctor

✅ After completing the module, join us for a live NDIS Q&A session on Tuesday 17 March at 2:00PM AEDT — a safe and supportive space to ask questions, share experiences, and learn from others going through the same journey.

Find out more and get started here: https://zurl.co/egyux

30/01/2026

Join our live online talk in February or get the link to the recording afterwards by contacting mecfs@arthritisact.org.au

28/01/2026

Contact us at mecfs@arthritisact.org.au or 02 6251 2055 to join.

28/01/2026

Researchers from RMIT University are inviting women living with invisible illnesses to take part in a research study exploring how they navigate their condition with support from family, friends, peers, and healthcare providers.

The study involves completing a short online demographic questionnaire (approx. 10 mins) and participating in a one-on-one interview conducted via Microsoft Teams (approx. 30-60 mins).

The research aims to better understand everyday experiences of care and support among women with conditions including, but not limited to, myalgic encephalomyelitis/chronic fatigue syndrome, fibromyalgia syndrome, postural orthostatic tachycardia syndrome, and long COVID.

Participants will receive a $50 Coles gift voucher in recognition of their time.

If you are interested in taking part, please contact Gabriella at Gabriella.apostolou@rmit.edu.au

You can find information from Gabriella on our website at https://mecfs.org.au/get-involved/participate-in-research

26/01/2026

Please note, we have had to change the time of Club Tortoise on Thursdays due to facilitator availability, starting from next week - 10:30am, NOT 11:00am.

26/01/2026

Note: PT refers to physiotherapy, which is called 'physical therapy' in the US. This post can be extrapolated to any therapies involving exercise.

23/01/2026

ADVICE - Heatwave - ACT - Protect Yourself Against The Impacts of Heat

Severe heatwave conditions are expected to intensify this weekend and early next week.

Maximum temperatures increasing this weekend to the mid to high thirties. Overnight minimum temperatures in the low to mid teens.

Be aware of the risk of heat-related illness and plan ahead to keep yourself and others safe.

More - https://esa.act.gov.au/advice-heatwave-act-protect-yourself-against-impacts-heat-1

19/01/2026

Debilitating fatigue conditions like ME/CFS and Long COVID are really difficult to understand if you don't have first-hand experience of them - they're unlike most other illnesses and injuries.

We have a booklet and a video series for carers, family and friends of those suffering with debilitating fatigue to help them understand the conditions, what it is like for their loved one to live with these conditions, how they can help, and how they can look after themselves when they're in a carer role.

Booklet is available here:https://www.arthritispainsupportemergeact.org.au/wp-content/uploads/2025/08/Arthritis-Info-for-family-and-friends-Jul25.pdf

Video series is available here: https://youtube.com/playlist?list=PLNO7aoK4VFg9SSH2SsD2nKDDwQk3fxFES&si=P676vpHswCK-95SR

Welcome to our series of videos for family and friends of people living with debilitating fatigue conditions, such as ME/CFS, Fibromyalgia and Long COVID. Th...

18/01/2026

Our free Club Tortoise member program is restarting from 3rd February 2026 and is here to support you with managing your fatigue-associated condition. Send us an email at mecfs@arthritisact.org.au to enroll.

14/01/2026

We have a few more spots still available in our upcoming Self Help Course for ME/CFS, Fibromyalgia, Long COVID and Persistent Pain. Run by facilitators with lived experience of these conditions and built on the principle of peer support, we've been running these courses for over 20 years now. Find out more on our website here: https://www.arthritispainsupportemergeact.org.au/services-and-information/courses/

Email us at mecfs@arthritisact.org.au to reserve your spot.

08/01/2026

From our friends at Emerge Australia Inc

🌿 Learn at your own pace for FREE! 🌿


Emerge Australia and Bateman Horne Center have partnered to create a free, self-paced Learning & Education Centre for people living with ME/CFS, long COVID, and other energy-limiting chronic conditions.


Understanding Post-Exertional Malaise (PEM)
💥 What it is
💥 Why it causes symptom flare-ups
💥 How to recognise it in your own life

📘 You’ll also learn how to create your own PEM Profile & Toolkit - designed to help you manage symptoms, communicate your needs, and reduce PEM’s impact on daily life.

💡 Learn at your own pace. Pause, rest, and return when ready.

🔗 Start learning today: https://zurl.co/IlRH4

06/01/2026

Many of us with chronic illness and dysautonomia are at particular risk during heat waves. Look after yourselves and stay cool this week 🥵

ADVICE - Heatwave - ACT - Protect Yourself Against The Impacts of Heat

Severe to extreme heatwave conditions are expected this week.

Maximum temperatures in the high twenties to low thirties and overnight minimum temperatures in the mid teens are forecast early this week.

The severe to extreme heatwave will peak later this week, with maximum temperatures reaching the high thirties and overnight minimum temperatures around the high teens to low twenties.

Be aware of the risk of heat-related illness and plan ahead to keep yourself and others safe.

More - https://esa.act.gov.au/advice-heatwave-act-protect-yourself-against-impacts-heat-0