28/11/2025
Sharing some exciting work our friends in the UK have been invited to participate in. The future of end-of-life care is changing. For the better 🙏🏻❤️
We were pleased to be invited by the Independent Expert Panel to contribute to its evaluation of palliative and end of life care in England. Our submission set out the experiences of our organisation and our members, including what they observe when supporting clients, the challenges they face, and the issues that can arise when services are commissioned through the NHS. We are proud that our evidence helped shape the Panel’s assessment and the recommendations now being taken forward.
The report, published this week, paints a clear picture of a system under pressure. It highlights:
Variation in the way services are commissioned, with some areas lacking a consistent framework and some Integrated Care Boards without reliable data on local need.
Strain across all settings, and a system that is difficult for patients and families to navigate, with limited opportunities for meaningful advance planning.
A continuing shift towards care in the community, but progress held back by funding models that favour hospitals and by gaps in social care provision.
Workforce shortages, including limited training for generalist staff and a lack of specialist palliative professionals.
Inequalities affecting both access and the quality of care for underserved and marginalised communities.
The Panel’s findings underline what many of our members have been highlighting for years: the need for coherent national leadership, sustainable and longer-term funding, and a properly supported workforce. We welcome the Government’s intention to develop a Palliative and End of Life Care Modern Service Framework and look forward to continuing our work to ensure that lived experience remains at the heart of future planning.