My KIA LIFE Soulful HEART

My KIA LIFE Soulful HEART This is my day to day life as a (not dying from it

He is MOTH (Man of the House & Papa Bear for socials which he doesn’t like being named), Partner in Crime, Darl, Love an...
18/12/2025

He is MOTH (Man of the House & Papa Bear for socials which he doesn’t like being named), Partner in Crime, Darl, Love and many other alias’ and terms of endearment, but most of all has been my primary caregiver and “first responder” to every cough, cold, chemo treatment and emergency visits.

Seven years ago, our lives changed. Our kids were young. Cancer hit our home. MOTH took 10 months off work to care for me but also ensure there would be continued normality in the kids’ lives. They had school support & counsellors but nothing was more grounding or endearing than the steady love of their dad being with them when mum was barely present.

We did it “Camers”! I could not have built our beautiful family as it is today without you. Thanks Love! ❤️

Remember always to support the primary carer during these tough times.
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7 year cancerversaryMany celebrate a cancer free anniversary. Those of us living with Multiple Myeloma celebrate another...
18/12/2025

7 year cancerversary

Many celebrate a cancer free anniversary. Those of us living with Multiple Myeloma celebrate another year of survival.

Today is my 7th year on this journey. One that has undeniably changed my life. My career, my day to day living, my relationships and my views on life.

Despite the rollercoaster of emotions, monthly, weekly and daily treatments, the pain, the hospital stays at Hotel Epy, the last minute cancelled events, I am the person I am because of these experiences living with cancer.

I feel like I have inspired and educated but this has come through my own inspiration & education. I’ve learnt so much outside my bubble.

So today is a day of joy. Not only beating the statistics (or being a statistic), but to celebrate the human I am today. I live in the moment. I’m excited about tomorrow and I love those beside me with my mind, body and soul.

Thanks for being on this journey with me. ###

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Having cancer has made me stronger, wiser and far more caring and supportive. That’s because of the tremendous support I...
13/12/2025

Having cancer has made me stronger, wiser and far more caring and supportive. That’s because of the tremendous support I’ve received (and still receive) from those around me. Strangers, friends, family, football clubs, work and colleagues. People from all walks of life reaching out, offering comfort and support to me and my family. Something I have treasured.

That outpouring of generosity has changed how I show up for others. It’s why I now stop to write a card or send a text, cook a meal, offer a lift, babysit or simply be a shoulder to cry on. I finally understand what people mean when they say “paying it forward.”

I’ve said this before. Don’t ask, “What can I do?” or “Call me if you need anything.” Most of the time, we don’t ask. It might be embarrassment, not wanting to be a nuisance or simply not having the headspace to know what we or our families need. Instead, offer what you’re going to do. Be observant. Make suggestions.

And for those of you going through unusual times, take the offers. It took me a long time to realise I needed to save my strength for recovery and for my family to keep functioning without worrying about chores or meals.

It’s not just in sickness, grief, at the time or years down the track. Unexpected kindness and moments of joy can throw us off balance too in the very best way. Pregnancy, birth, new job, relocation, etc.

Christmas time is when I feel it most. I get excited to feed a crowd, sit around a table with those I adore sharing food, stories, laughter (and a bottle!). It’s my small way of honouring the kindness that once carried me and still does.

Kindness has a way of finding its way back to us. Sometimes quietly, sometimes when we need it most. When it does, it reminds us just how connected we all are.

Merry Christmas. May we notice each other, show up for one another and keep paying it forward.
🎄

It’s been a moment, right? I’ve found it hard to post after losing my online friends  ,  &  (Allison) this year. I never...
11/12/2025

It’s been a moment, right? I’ve found it hard to post after losing my online friends , & (Allison) this year. I never imagined you could form such deep bonds through a screen; strangers who became confidants, sisters and soul-friends, even though we never met in person.

We were all diagnosed around the same time. Tracey and I even on the same day, opposite sides of the world and somehow we travelled our journeys in parallel. Same treatments, same milestones, almost like looking into a mirror each time we spoke.

And then, suddenly, their journeys ended. I keep reminding myself that every path is different but the grief isn’t about fearing my own timeline, it’s truly about losing these beautiful women who walked beside me for so long. Their stories & courage mattered and their stories still live in me.

So here’s where I’m at, without guilt because every journey deserves to be honoured.

After three hospital stays over winter and spring, my body had had enough. With my numbers in remission, my team decided to pause treatment for a month to let me recover & rebuild.

Two months later, still no treatment, I feel incredible. No brain fog. No nausea. No 36-hour sleeps. I’m driving again, working again, waking up feeling human again - oh and weight loss!! It’s hard to explain but I can genuinely feel the difference of not having the poison in my body. I feel alive.

On Monday I head in for my monthly appointment with my Professor & team and if my numbers are still stable, I’m going to ask (beg, really) for another month without treatment so I can move through this beautiful season feeling strong, present and festive.

Losing my friends has reminded me of something important. Our journeys may look similar but they are each uniquely ours. The hard parts don’t erase the hope. The grief doesn’t cancel out the gratitude. And moving forward doesn’t mean leaving anyone behind. It means carrying them with me, in strength, in memory and in purpose.

Here’s to another month of feeling good. Here’s to honouring those we’ve lost. And here’s to embracing our own path, wherever it leads - with courage, compassion and joy.

♥️

If I could watch it, so can you!!  And for the record, she has   not  . What a brilliant   series covering all aspects o...
02/12/2025

If I could watch it, so can you!! And for the record, she has not .

What a brilliant series covering all aspects of - denial, anger, negotiating, depression & finally acceptance. It wasn’t just the cancer patient going through it but her entire tribe.

Everyone felt they owned it (and her) and everyone tried to control life’s direction in their own way, for themselves. Ultimately, this was her cancer, her , her bod, her tolerance, her life & her death.

The bit I loved and related to was losing control of having the disease so she took the reins to control life’s direction around her, including trying to control when she would die! Cancer was not going to stop her doing what she wanted to do.

In the end she found acceptance, she let go and ultimately, she found peace.

It sounds morbid but it was four seasons of life lessons told with so much humour along the way. One website describes it as:

“The show uses both humor and tragedy to address the realities of chronic illness and mortality, leaving viewers with a sense of catharsis and acceptance”.

highly recommend it to anyone going through the rollercoaster of .
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We may not see each other too many times in the year but when we do, we make up for it over brunch, lunch & afternoon te...
30/11/2025

We may not see each other too many times in the year but when we do, we make up for it over brunch, lunch & afternoon tea 😂😂

Fourth-Six years ago, this beautiful woman walked up to me as I began half way through the first year of high school. She introduced herself, held my hand and guided me to the playground.

All you need is to accept that one hand to change your world. High school was wonderful from there on.
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Happy 5th birthday to my gorgeous boy. He may have arrived in my life as my emotional support dog but somewhere along th...
18/11/2025

Happy 5th birthday to my gorgeous boy. He may have arrived in my life as my emotional support dog but somewhere along the way he became my tiny soul mate with the courage of a full-grown German Shepherd.

In classic chihuahua fashion, he is pocket-sized but somehow believes he’s the CEO of home security.

Every day he showers me with unconditional love… sometimes literally. The moment I walk through the door, he gets so overwhelmed with excitement that a tiny celebratory piddle slips out. It’s his signature “my Mum’s home!” move.

And when I’m away, especially during my hospital stays, his little heart just can’t cope. I’m told he climbs onto my bed, curls into a ball and barely moves or eats. He waits. He worries. He loves me in the only way he knows how: fiercely, loyally and with his whole trembling, dramatic Chihuahua soul.

The truth is he needs me just as much as I need him. I can’t fathom a world without my Steele Blu. My brave little protector, my shadow, my comic relief and my heart on four tiny legs.
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Thank you all for your beautiful messages. I’ve made it a week at home after 8 days in the ICU and honestly, I feel the ...
30/10/2025

Thank you all for your beautiful messages. I’ve made it a week at home after 8 days in the ICU and honestly, I feel the best I’ve felt in a long time. They pumped me full of antibiotics (enough to make me sick!), but it worked.

Now it’s all about rest (OMG, I’m so bored with all this downtime) and follow-up tests. Today was lung testing. Apparently breathing in radioactive air and getting jabbed with a radioactive solution for pictures is safe😅

Next up: heart tests. If all goes well, I can finally put this winter’s chills behind me.

Still in remission, still no chemo. Letting my body recover naturally. Here’s hoping. 🙏

Look who made my day - my week!     through  doing his rounds at Hotel Epy. What an absolute joy talking to him and his ...
23/10/2025

Look who made my day - my week! through doing his rounds at Hotel Epy. What an absolute joy talking to him and his hooman . Can’t wait to go home to my two! THANK YOU & Jo. ###
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I always said if cancer doesn’t kill me, pneumonia will. Boy, am I glad I was wrong!Eight days in ICU, with new theories...
22/10/2025

I always said if cancer doesn’t kill me, pneumonia will. Boy, am I glad I was wrong!

Eight days in ICU, with new theories every day about what landed me here. Round the clock care from medical specialists all scratching their heads as my blood test results changed daily. Copious amounts of broad-spectrum antibiotics have left me nauseous and dry-reaching. I’ve run out of lines through my port, so they’ve had to jab me for cannulas leaving me battered and bruised.

In the end, it all comes down to being immune compromised. My bone marrow isn’t working properly so now that I’m in remission, we’re taking a break from chemo (Carfilzomib & Mezigdomide) for a couple of months. I welcome it because, quite frankly, I’ve had enough. My body is exhausted. I’m tired and I feel the fight is wearing down my mind, body and soul. I (holistically) need a break.

During this time, my heart and lungs have also been affected and we now see how much damage the chemo has done to my organs. Still, without chemo, I wouldn’t be here to tell the tale.

To date, I’ve had an extraordinary 6.5 years on a journey I never imagined. An absolute rollercoaster but filled with immeasurable love and friendships. Bucket lists have become a reality. I learned to live life to the fullest and stop worrying about the small stuff. So many clichés became true. Life really is short. Sure, anyone can go at any time but isn’t it true that we should live our best lives with the time we have? It’s not easy for everyone but while we still draw breath, let’s look at the positives around us, even if it’s just that breath to be grateful for that moment.

Homeward bound today. I cannot wait! I feel like a new chapter is about to begin.

So nice to come home to wagging tails and kisses (I don’t actually let the dogs connect), blossoming orchards (memories ...
05/10/2025

So nice to come home to wagging tails and kisses (I don’t actually let the dogs connect), blossoming orchards (memories of my two mums) and beautiful weather for being poolside.

Platelets are at 23 after Friday’s transfusion. Still not great (target 150), but honestly, there’s nothing they could do in a hospital bed that can’t be done here, except that home is much better for my mental health.

Another bone marrow biopsy and more platelets this week; positive step toward finding out WTF is going on!

Of course, I’ve talked with the medical team, “consulted” Dr. Google and even checked in with ChatGPT & got worst-case scenarios. BAD move. So I breathed in, blew out those bad vibes (thanks ) and filled up on positive energy instead.

One day at a time. I’ll wait for the real results and tackle them as they come-one by one.

Right now, I’m home, figuring out what everyone feels like for dinner. Control what we can control, right?
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Ah. This is becoming a bit more frequent. Two weeks ago, Influenza A. Seven days in hospital. This week: fevers, fatigue...
04/10/2025

Ah. This is becoming a bit more frequent. Two weeks ago, Influenza A. Seven days in hospital. This week: fevers, fatigue, a big 36hr sleep, blood noses and finally, painful legs & shortness of breath. It was time to get to Hotel Epy ER.

Amazing team! Straight into action with tests, bringing the fever down, IV antibiotics, then a platelet transfusion. I was at 16… average hovers at 150. Yikes.

Steele was acting strange. He knew and stuck very close all week.

I’ll probably go home tomorrow to rest. Just had a IV booster—obviously my banana shakes aren’t enough 🍌 Then a week of appointments ahead, including another bone marrow biopsy.


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Melbourne, VIC

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