Custom Care & Accommodation

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Specialising in Supported Independent Living (SIL), Community Access, In-Home Care, and Short-Term Accommodation (STA/MTA & Respite), we offer tailored solutions for individuals in the wider Hunter and Central Coast regions. Specialising in Supported Independent Living (SIL), Community Access, In-Home Care, and Short-Term Accommodation (STA/MTA & Respite), we offer tailored solutions for individuals in Newcastle, Lake Macquarie, Maitland, and the wider Hunter and Central Coast regions.

23/01/2026

Following on from my last post, I want to be clear about why we spoke up and what we are pushing for.

This is not about blaming one service, one clinician, or one organisation. It is about acknowledging that people with complex disabilities and mental health needs are falling into gaps between systems, and that frontline workers are being left to carry risks that sit well outside their role, authority, and funding.

We are seeing the same patterns repeatedly. Participants with escalating behaviours, medical complexity, continence needs, diabetes management, substance use, and financial instability. Disability providers expected to manage these risks without adequate staffing, without timely clinical input, and without coordinated responses from all stakeholders. Workers are then criticised after the fact, instead of being supported before and during incidents.

Disability support workers are not emergency clinicians.
They are not authorised to detain, restrain, or compel treatment.
They are not funded to absorb systemic failures.

What is needed is genuine collaboration. Behaviour support practitioners, health services, coordinators, families, and providers working together in real time. More case discussions. More in-home involvement. Clear guidance that reflects funding realities. Shared accountability instead of shifting responsibility back onto support staff once crisis passes.

At Custom Care and Accommodation, we will continue to document, escalate, and advocate. Not because we enjoy conflict, but because silence allows unsafe practices to continue. Our staff deserve protection. Participants deserve appropriate care. And the system needs to be honest about what is and isn’t working.

To our staff, this is us standing beside you.
To families, this is us advocating for better outcomes.
To the system, this is a call for coordinated action, not reactive discharge and deflection.

We remain open to collaboration, discussion, and reform. But we will not stay quiet while people are put at risk.

This is about duty of care. For everyone involved

22/01/2026

I don’t usually take issues like this to social media, but there comes a point where silence becomes part of the problem.

This post is not about one provider, one address, or one individual. It reflects a systemic failure that many disability providers, workers, and people with complex mental health needs are experiencing particularly here in the Maitland region.

We support people with significant disabilities and complex mental health diagnoses. This includes individuals who experience severe escalation, aggression, refusal of treatment, and behaviours that place themselves and others at real risk. As disability providers, we understand baseline behaviour. We understand escalation. We do not call 000 lightly.

Yet time and time again, when emergency services attend, concerns are minimised, judgements are made based on how someone presents in that moment, and responsibility is handed straight back to disability workers once services leave.

Disability support workers are not police.
They are not mental health crisis clinicians.
They are not authorised to detain, restrain, or compel treatment.

They are ordinary people going to work to support someone with a disability and they are being assaulted, threatened, and placed in unsafe situations that go well beyond their role, training, and legal authority.

We are seeing the same cycle repeat:
Emergency services attend.
Thresholds for intervention are met.
No decisive action is taken.
Services leave.
Escalation occurs behind closed doors.
Workers are threatened or assaulted.
000 is called again.

This is not risk management. This is abdication of duty of care.

What is particularly alarming is what happens when hospital pathways are involved. People are taken to Emergency Departments under police es**rt and restraint, only for providers to receive calls hours later demanding we collect them for discharge. No stabilisation. No long-term planning. No accountability.

How is that safe?
How is that appropriate?
And how does that meet any standard of duty of care?

Providers then spend night after night arguing with ED doctors, social workers, and crisis teams just to be heard. Fighting for appropriate staffing ratios. Fighting to explain risk. Fighting to keep workers safe. All while being told it’s “not acute” and to “manage it in the community”.

But the community is not a clinical setting.
The community is unarmed disability workers.

This is bigger than one organisation.
How many other providers are carrying this same risk?
How many workers are burning out or being injured?
How many people with mental health diagnoses are being discredited because they can temporarily present as calm?

If a serious injury or death occurs, it will not be because warning signs weren’t there. It will be because they were ignored.

Duty of care does not disappear because someone is supported under the NDIS. It does not transfer to disability workers simply because they are present. When statutory and clinical thresholds are met, responsibility must be owned not passed back to providers who cannot lawfully or safely carry it.

This is a call for accountability.
This is a call for systems to work together.
And this is a call to recognise that disability workers deserve the same safety, respect, and protection as anyone else doing their job.

How many times does this need to happen before something changes?

11/01/2026

If you’re caring for a loved one with dementia, this is for you 💛

Some days you cope.
Some days you hold it together.
Some days you cry in the car, the shower, or when no one’s watching.

Dementia doesn’t just affect one person. It affects the whole family. The exhaustion, the guilt, the grief, the love. It’s a lot. And too often, carers are expected to just manage.

You don’t have to do this alone.

At Custom Care & Accommodation, we support families caring for a loved one with dementia with compassion, patience, and genuine understanding. We see the person beyond the diagnosis and the family behind the care.

We currently have capacity to support families living this reality. Whether that means help with daily care, routine, respite, or simply knowing your loved one is safe and supported.

If this post made you pause, it’s okay to reach out.
If you know someone quietly carrying this load, please share this with them.

Support can change everything 💛

05/01/2026

We’re excited to share that Custom Care & Accommodation is now accepting new referrals across the Central Coast 🌊

This is a big step for us, and we’re proud to be bringing our hands-on, person-centred approach to more individuals and families in the region.

At Custom Care, we focus on creating safe, stable homes with consistent staff who genuinely care. Our leadership team is actively involved, communication is open and honest, and supports are always tailored to the individual — because no two people are the same.

We work closely with families, nominees, support coordinators, and allied health to ensure each person feels supported, respected, and at home.

If you’re a:
• Family member looking for the right support
• Support Coordinator seeking a reliable provider
• Participant ready for a positive change

We’d love to hear from you.

📩 Send us a message or get in touch to discuss current vacancies and referrals.

Custom Care & Accommodation
Proudly growing, proudly local, and committed to doing care the right way 💙

We currently have vacancies across the Maitland region and are welcoming new participants into our homes 🏡At Custom Care...
05/01/2026

We currently have vacancies across the Maitland region and are welcoming new participants into our homes 🏡

At Custom Care, we genuinely do things differently.

We’re not a hands-off provider. Our leadership team is present, involved, and on the floor when needed. We take the time to truly know the people we support — their routines, their preferences, their goals, and what helps them feel safe, supported, and at home 💙

Small, stable homes
Consistent staff who genuinely care
Support tailored to the individual, not a one-size-fits-all model
Open and honest communication with families, nominees, and allied health
A strong focus on dignity, choice, and quality of life every single day 🌱

We understand choosing a provider is a big decision. It’s about trust, feeling heard, and knowing your loved one is supported with compassion and respect 🤍

If you or someone you care about is looking for the right support, don’t wait — reach out and have a conversation with us 💬
We’re happy to talk through needs, answer questions, and see if Custom Care is the right fit.

📩 Send us a message today or contact us directly to discuss current vacancies

24/12/2025

🎄 Merry Christmas to our families, participants, and wider community 🎄

At this time of year, we want to extend our warmest wishes to the families, loved ones, and supporters who trust us with the care of the people who matter most to them.

Christmas can bring joy, but it can also bring challenges, emotions, and moments of reflection especially for families navigating disability, health, or change. Please know you are not alone. Your strength, love, and advocacy inspire us every day.

We are deeply grateful for the trust you place in us, and for the opportunity to walk alongside you and your loved ones. Thank you for being part of our community.

From our family to yours,
🎄 Merry Christmas. May today bring peace, warmth, and moments of joy. ❤️

When dementia is part of Christmas, the day finds its own rhythm.It might be slower.It might be quieter.It might be fill...
22/12/2025

When dementia is part of Christmas, the day finds its own rhythm.

It might be slower.
It might be quieter.
It might be filled with small moments instead of big celebrations.

And that’s okay.

There may be repeated stories, familiar questions, or moments that don’t go to plan.
There may also be unexpected smiles, shared laughter, or a hand held a little longer.

There is no “right” way to celebrate when care and love are involved.

If you’re supporting someone living with dementia, your patience, presence, and consistency mean more than any tradition.
If your heart carries both gratitude and grief, that’s a reflection of how deeply you love.

You don’t need to make the day perfect.
You just need to be there.

This Christmas, celebrate the moments that feel calm, kind, and genuine.
And know that what you’re doing truly matters. 🤍

19/12/2025

Dementia doesn’t clock off.
Neither does disability.

They don’t stop at 5pm.
They don’t take weekends off.
They don’t wait for funding, approvals, or systems to catch up.

Dementia is more than memory loss.
Disability is more than a diagnosis.

It’s waking up afraid because nothing feels familiar.
It’s trying to communicate and not being understood.
It’s families grieving someone who is still here — while being told to “wait.”

Too many people are labelled too complex.
Too many families are told there’s no capacity.
Too many lives are managed instead of genuinely supported.

But complexity is not a reason to step back.
It’s a reason to step in.

People don’t lose their right to dignity because their needs increase.
High needs don’t mean hopeless.
And care should never be rushed, rotated, or faceless.

Real support looks like consistency.
It looks like advocacy.
It looks like showing up — even when it’s hard.

If this hit close to home, you’re not alone.
And if you’ve ever felt unheard while trying to support someone you love —

tell us in the comments.
What’s the one thing you wish people understood about dementia or disability?

💙
Because these conversations matter — and they start here

19/12/2025

This week has been heavy.

Twice in one week, I’ve had to walk alongside participants through hospital admissions where the need for support was undeniable — but the funding simply wasn’t there.

There is still a stigma around disability providers attending hospital with participants when funding hasn’t been approved. With that stigma can come pressure, judgement, and at times bullying — subtle or overt — for simply staying and doing what feels ethically right. Too often the message becomes: this isn’t a health issue — there’s nothing we can do for you.

But participants don’t stop needing support just because a funding line item is missing.

They still need someone who knows them. Someone who understands their communication, their fear, their routines. Someone to advocate when they can’t. Someone to sit beside them when the environment is overwhelming and unfamiliar.

This week, that someone was me.

Being a hands-on director means I don’t get to step away when things get hard. It means working on the floor. It means 36-hour stints without sleep. It means absorbing the heartache, stress, and responsibility — and still showing up the next day for participants, for staff, and for families who trust us with the people they love.

What many don’t see is the position providers are placed in. We work closely with support coordinators and allied health teams to advocate for increased funding. We document risk and escalate concerns. Yet we can still be left feeling forced to return participants home from hospital without a real solution — knowing the risks haven’t disappeared, only the support has.

While paperwork waits, people don’t.

This isn’t written for sympathy. It’s written for understanding.

Disability support is deeply human work. It carries enormous emotional weight. The stress, the moral pressure, the quiet grief that comes with feeling powerless within the system — it stays with you long after the shift ends.

At Custom Care, we will always show up. We will always stand beside the people we support. We will continue to advocate with integrity, professionalism, and compassion.

But meaningful change will only come when funding models reflect real-world need — and when the voices of those on the ground are heard before crisis becomes harm.

This week has been a reminder of why this work matters.
And why the system must do better.

💙

19/12/2025

Update: We had the NDIS Support Worker Coorindator help us with finally getting the COS involved, we have a temporary plan in place while we wait for the review on Darren’s plan and he’s headed back home 😊

Thank you to the many comments & messages & advice it’s so greatly appreciated! Love you all

———————————————————-

Today I’m at the John Hunter Hospital with my mother & father in law. My father in law has early onset dementia.

I don’t mean to post this to “whinge” I’m posting in the hopes someone with the ability to help will see.

When the NDIS don’t review and approve the funding plans in time before their expiry or funding is exhausted, the advice of the NDIA department is to “see your GP or take them to the hospital for care”

We’re doing just that today at the John Hunter Hospital. We don’t want to take up space here, we’re not trying to overload the system. The nurses in triage want nothing to do with us.

Darren had a change of circumstances as his plan was reviewed and it was decided he only needed 1:1 care. After his behavioural specialist completed her review she agreed with the family & carers that 2:1 care is needed. His plan was submitted for the funding review in November and we’ve been chasing it up before it got to this point, because his funding was running out. His current plan expires in March 2026 where we will need to fight this battle again.

Darren was diagnosed at 58. He’s now 64.

He requires 2-1 care. Full assist & he is a falls risk.
He doesn’t speak much anymore & doesn’t really recognise us much these days.

He’s too young for a nursing home, so he lives in a SIL house. My mother in law looked after him at home for as long as she could.

We’ve been in touch with and her team who are helping us to try and escalate the approvals.

There are a lot of people, politicians and party members who want to scrap the NDIS.
But what happens to the vulnerable when this happens? What’s the solution or other proposed option?

Do you not think my father in law didn’t want to retire and travel the country? He’s not even at retirement age. He doesn’t deserve this. No one in this position does.

If it was your loved one in this situation, what would you do?

please take note. Please follow up on the funding for vulnerable Australians relying on this h

14/12/2025

Our thoughts are with everyone affected by the tragedy in Bondi — the lives lost, the families grieving, the witnesses, and the first responders.

People were simply going about their day in a place where they should have felt safe. Families have been forever changed, and the impact of this loss is being felt across the wider community.

Events like this are becoming far too common. Each time they occur, they undermine the sense of safety that every person deserves. Everyone in Australia has the right to feel safe, supported, and protected within their community. Safety is not a privilege — it is a fundamental human right.

This moment calls for more than sympathy alone. It calls for leadership, accountability, and meaningful action. Strong systems, effective safeguards, and a commitment to prevention are essential to protecting communities — particularly those who are most vulnerable.

We honour those affected by continuing to advocate for safer, more inclusive communities, and by supporting change that places human life, dignity, and wellbeing first.

Australia can — and must — do better

Crafty fun at home! 🎨At Custom Care & Accomodation, we understand how important routine, comfort, and flexibility is to ...
05/11/2025

Crafty fun at home! 🎨

At Custom Care & Accomodation, we understand how important routine, comfort, and flexibility is to our participants. That's why we offer quality in-home care for our participants.

In-home care means that our friendly support workers work around your schedule, so you can stay safe, confident, and independent.

In-home care brings the fun to you, adding a touch of sunshine to your day! 🌞

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Morpeth, NSW
2321

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+61431577122

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