Ethan's Endeavour

02/01/2026

Ethan weighed for the first time for 2026 and was excited to see he was the heaviest he has ever been 29.2kgs. Lets get behind him and cheer him on as he aims to be 35kgs by the end of the year.

23/12/2025

This is what we all want every year.

19/12/2025

Ethan graduates year 6
Emotions running high, happy tears, sad tears, excitement, and nervousness all rolled into one. Congratulations Ethan.
The ringing of the bell symbolises the start and end of primary school. Ethan rang the bell on the first day of school and again today.

We dont own the rights to this music

15/12/2025

Ethan's year 6 farewell tonight. He looked very smart. A huge THANK YOU to Roger Lewis for driving him in his awesome car. It was the highlight of his night. Ethan felt very special getting out of the car. His sister got the pleasure of doing the last dance with him. As most of you would understand struggles of the sun in the eyes of someone with cystinosis. Ethan struggled today hense the sunglasses.

10/12/2025

10/12/2025

Today was Ethan's presentation assembly and he was awarded an academic award for showing strong effort, growing confidence, and continuious progress in all areas of learning. Plus he received a recognition award for his leadership. Great end to his primary school years. Congratulations Ethan.

07/12/2025

Ethan went formal shopping today. He picked this black suit and was excited to finally need a size 10. ( still have to hem up the pants). Watch this space for his formal photos in a week.

25/11/2025

Ethan had his 6 monthly specialist appointments today at Westmead Children's hospital. 🩸First it was blood tests which he smashed all on his own like a boss. Next was his opthamologist appointment which went smoothly. 👀Vision is perfect, pressure was perfect, and crystals are the same as they have been for years. They say whatever we are doing to keep doing it. 💉A quick visit to the Endocrinologist to order some more growth hormone injections. Next up was an appointment with his Nephrologist 🩺 who was super impressed with everything about Ethan. His weight was 27.4kg, and his height was 134.6. Bloods all came back perfect, blood pressure was perfect, which means no changes with his medication. Fantasic news all round.

14/11/2025

09/11/2025

Ethan and his best friend Darcy. Without saying anything, I can hear you saying it. 6-7🤣

09/11/2025

Looking for a car for Ethan's year 6 farewell. Anyone know someone with a nice car thats available on 15th December.