Ethan's Endeavour

09/11/2025

Ethan and his best friend Darcy. Without saying anything, I can hear you saying it. 6-7🤣

09/11/2025

Looking for a car for Ethan's year 6 farewell. Anyone know someone with a nice car thats available on 15th December.

07/11/2025

We are looking to increase Ethan's audience and would love for you all to invite just 1 friend ( more if you like) to follow his journey. This will boost Ethan's content and therefore raise more awareness for Cystinosis. Your help would be greatly appreciated. 😘

https://www.facebook.com/share/1FNxitobMZ/

Ethan was diagnosed with a very rare genetic disease called Cystinosis at 11 months of age.

07/11/2025

This week Ethan went on his first real school camp to Canberra. He was super excited and had such a wonderful time. Myself and his Grandmother went along and stayed in the same hotel but on the other side purely so we could do Ethan's growth hormone injections and his 3am medication. This was one of the conditions Ethan had about the camp. It worked out well and we only seen Ethan at bed time. He had 3 full fun filled days and was absolutely exhausted, so exhausted that he opted to go to bed early in our room instead of partying with his friends. We have to thank his teachers who really looked after Ethan's well-being and medication throughout the days he was there. This is a huge thing for Ethan to have trust in others to do his meds and eye drops. The last day really showed how exhausted he was as he started feeling unwell and instead of going with the school to Questacon, he came home with me. I hope you had a great time Ethan.

23/10/2025

Let’s get to CystiKNOWsis.💡

Cystinosis is rare, complex, and often misunderstood, but knowledge is power.

Swipe through to learn:
❓ What cystinosis is
❓ Who it affects
❓ Why it matters beyond this community
❓ How research is bringing hope

Though only about 2,500 people worldwide live with cystinosis, the science we fund is changing lives far beyond our community, from kidney health to insights into other genetic diseases.

💚 100% of donations to the Cystinosis Research Foundation fund research directly. Together, we can turn today’s breakthroughs into tomorrow’s cure.

👉 Learn more at cystinosisresearch.org

17/10/2025

Ethan made it into the Cystinosis Research Network newsletter. Check it out here

https://cystinosis.org/wp-content/uploads/2025/10/FINAL_CRNnewsletter_Fall2025.pdf

15/10/2025

We have boxes of chocolates and lollies for sale. $60/box
All profits go towards getting Ethan to the next Cystinosis conference.

3x lolly boxes
5x Goody boxes
3x freddo n friends boxes
3x freddo fun packs
4x Marshmellow Santa boxes

12/10/2025

OMG flashback. Try watching this without smiling

11/10/2025

✨ THANK YOU! ✨

What an incredible night! Ethan’s fundraiser was a huge success — together we raised $8,127 🎉

The night was filled with dancing, drinks, games, raffles and auctions, and it wouldn’t have been possible without the amazing support of everyone who came along.

A special shout-out to:
💛 Mum — for all your hard work helping put everything together.
💇‍♀️ Kat Sullivan — for donating a salon hair voucher.
🍛 Rasna — for the Indian restaurant voucher.
🎁 Kat, Linda & Erina — for your long list of raffle donations.
🥊 Jeff Fenech — for the incredible donation of signed gloves for our auction.
🎶 Ash Donovan DJ DONK for the amazing music
🖌Amanda for her amazing face painting and kid entertainment
🙏 And to every single person who kindly donated a prize or lent a helping hand — your generosity means the world.

We truly couldn’t do this without you. Thank you for supporting Ethan’s journey and being part of something so special.

💛 Watch this space for details for next years event!

07/10/2025

📣ONLINE AUCTION📣
Rabbitohs v Panthers game match ball signed by Murray and Yeo.
2023, round 18, Rabbitohs defeated Panthers 20-18

📌 Auction starts NOW (2.35pm Tuesday 7th October 2025) on this post only.
📌 Finishes 9pm Saturday 11th October 2025 at Ethan's fundraiser ( in house bids apply until 10pm)
📌Bids online via Ethan's Endeavour page
📌Winner to provide payment within 48hrs of auction ending otherwise it will go to the highest bidder before them.
📌Profits made from this auction will go towards getting Ethan to the Cystinosis conference next year.
📌If there are multiple bids for the same price at 10pm the winner will be the first person who commented the winning bid.
📌 There is a reserve price of $100 and once bids hit this it will be published in the comments.

Thank you for your interest in helping us raise funds to get Ethan to the CRF medical conference next year.

07/10/2025

📣ONLINE AUCTION📣
Jeff Fenech signed Boxing gloves

📌 Auction starts NOW (2.35pm Tuesday 7th October 2025) on this post only.
📌 Finishes 9pm Saturday 11th October 2025 at Ethan'sfundraiser( in house bids apply until 10pm)
📌Bids online via Ethan's Endeavour page
📌Winner to provide payment within 48hrs of auction ending otherwise it will go to the highest bidder before them.
📌Profits made from this auction will go towards getting Ethan to the Cystinosis conference next year.
📌If there are multiple bids for the same price at 10pm the winner will be the first person who commented the winning bid.
📌 There is a reserve price of $150 and once bids hit this it will be published in the comments.

Thank you for your interest in helping us raise funds to get Ethan to the CRF medical conference next year.

07/10/2025

📣ONLINE AUCTION📣
🩵Nathan Lyon signed cricket bat🩵

📌 Auction starts NOW (2.35pm Tuesday 7th October 2025) on this post only.
📌 Finishes 9pm Saturday 11th October 2025 (in house bids apply until 10pm)
📌Bids online via Ethan's Endeavour page
📌Winner to provide payment within 48hrs of auction ending otherwise it will go to the highest bidder before them.
📌Profits made from this auction will go towards getting Ethan to the Cystinosis conference next year.
📌If there are multiple bids for the same price at 10pm the winner will be the first person who commented the winning bid.
📌 There is a reserve price of $150 and once bids hit this it will be published in the comments.

Thank you for your interest in helping us raise funds to get Ethan to the CRF medical conference next year.