Karise McNamee - Paths with Purpose

Karise McNamee - Paths with Purpose AuDHD Counselling Social Worker supporting ADHD & AuDHD women (burnout, shame, perimenopause, PMDD, hormones, health challenges). Book a session with me today.

I provide mental health counselling for women with:

- fertility grief and loss
- hormonal conditions such as PMDD, PMS or perimenopause
- challenges or mental health concerns related to ADHD, AuDHD and autism

I will provide you with a safe space to express your feelings and frustrations, and teach you strategies to navigate your changing emotions and behaviors, rather than trying to change who y

ou are. I will work with you to help you to feel balanced, and better able to cope and communicate your needs, despite sometimes feeling lost, misunderstood, or out of control. My own lived experience with similar conditions means that I truly understand how this can impact so many areas of your life, and how exhausting it can be to put on a ‘happy face’ all the time. I offer flexible online sessions to women all across Australia, no matter where you live, or how you may be feeling. Because you deserve to feel heard and supported. I understand and I am here to help you. Still want to know a bit more about me? Here are some podcast episodes where I have been interviewed about my work and experience. https://youtu.be/IenbfgPK_yI

https://open.spotify.com/episode/6XvCsloRBvB90ezbFOHqv0?si=vm9S0o_-RxyHh7TjCsko_g

25/04/2026

'I sat through a four-hour “functional capacity assessment” and it still didn’t capture my disability.'

That’s what participants are telling us after testing this new functional capacity assessment tool the NDIA want to roll out, and that government are promoting today.

It reduces complex, lifelong needs to how you present on one day. If you mask, you are read as having lower needs. So much is missed, and carers and allied health supports are not involved in the ways they need to be.

It asks if you are “safe” without examining your environment, relationships, or the supports that actually keep you safe.

And participants are raising serious concerns about AI being used in ways they cannot see or challenge.

This is not fit for purpose.

Share this so other families know what is coming!

Media Statement below:

-
Media Statement
Australian Neurodivergent Parents Association

FUNCTIONAL CAPACITY ASSESSMENTS: FOUND NOT FIT FOR PURPOSE

April 24, 2026

Autistic participants in our community have now completed the Government’s trial functional capacity assessments. Their message is clear. The tool is not fit for purpose.

Participants describe a process that relies on sustained, clear communication over long periods, creating immediate barriers. It is not trauma-informed and reduces safety to a tick-box, without examining environment, relationships, or the supports required to stay safe.

The assessment is highly medicalised and based on a “standard day” that does not reflect the reality of disability. It reduces complex, lifelong and fluctuating needs into a short interaction focused on presentation in the moment. Those who mask or push through are consistently assessed as having lower needs.

As participant Heidi La Paglia said:

“This process reduces complex support needs into how you present on the day. If you mask, that gets read as low needs. It also misses context, focusing on individual medical needs without looking at systemic factors shaping a person’s life. Gendered aspects of disability are not considered at all.”

Participants have also raised serious concerns about artificial intelligence embedded across the process. They report AI being used to summarise assessment information, risking loss of nuance, context, and lived experience.

ANPA President Sarah Langston said:

“We do not know what model is being used, how it is prompted, or how it is shaping decisions. When a flawed assessment is filtered through AI, the risk of error is compounded.

"Importantly, we hold strong concerns that there is no way to make this process, or this tool, culturally safe for our First Nations member families. They have told us repeatedly this will fail Aboriginal and Torres Strait Islander people who need support and completely miss and erase what their lives are like, and their ways of telling about it."

"The tool is so bad that even many of the NDIA's own employees are refusing to do it."

These assessments will determine who enters, stays in, or exits the NDIS. If they are flawed, needs will be underestimated, plans will be cut, and people will lose support.

Participants engaged in good faith. They tested the system.

It does not work.

25/04/2026

ARFID stands for Avoidant/Restrictive Food Intake Disorder. It's an eating disorder where someone avoids or restricts food, but the reason has nothing to do with body image or trying to lose weight. That distinction is what separates ARFID from something like anorexia. The food avoidance is happening for completely different reasons.

ARFID has three main presentations, and someone can have one or more at the same time.

• The first is "picky eating," which means avoiding foods because of how they taste, feel, smell, look, or sound. This is important to flag because the everyday meaning of "picky eating" is misleading here. In ARFID, this is NOT a kid being difficult or a kid who would eat if they got hungry enough. It's a sensory-based response that the child genuinely cannot push through, and trying to wait them out can lead to real malnutrition or weight loss

• The second is "fear of aversive consequences," which means avoiding food because of fear of something bad happening. Common fears include things like choking, vomiting, or stomach pain.

• The third is "lack of interest," which is where someone just doesn't have much appetite or interest in eating. Food isn't appealing or unappealing to them, it more or less just doesn't register as something worth pursuing.

Researchers already knew that two things show up a lot in ARFID. One is sensory sensitivity, which means a body that reacts strongly to sights, sounds, smells, tastes, textures, and touch. The other is food disgust, which is that strong "ew, no" reaction to certain foods.

What no one had looked at yet was whether these two things work together, and whether they look the same across all three presentations of ARFID.

That's what this study set out to answer.

WHO WAS INCLUDED

The researchers ran an online survey and ended up with two separate samples.

The first was 270 parents reporting on their children, ages 2 to 17. About 60% of these kids were boys, and 28.5% had a neurodevelopmental difference. Specifically, 14.4% had suspected or confirmed autism, 10% had ADHD, and 10.4% had a learning or reading difference.

The second was 491 adults, ages 18 to 73. About 77% were women, and 18.3% had a neurodevelopmental difference, mostly ADHD (10.8%) or autism (7.5%).

People were recruited through social media posts, ARFID and autism support groups, parenting groups, pediatricians, speech therapists, psychologists, and kindergartens.

Anyone who failed two simple attention checks built into the survey was removed.

A subset of participants also did a phone interview with trained researchers to confirm whether they actually met the clinical criteria for ARFID. Of the 98 children who did the interview, 75.5% met the diagnosis. Of the 149 adults who did the interview, 64.4% met the diagnosis.

HOW THEY DID IT

Everyone filled out three short questionnaires. Parents filled them out about their kids. Adults filled them out about themselves.

The first measured sensory sensitivity across the five basic senses (sight, hearing, smell, taste, touch) plus texture. People rated themselves on a scale from 0 to 10, where 0 meant under-sensitive, 10 meant over-sensitive, and 5 meant no difference from typical.

The second measured food disgust using 8 questions covering things like decaying food, mold, hygiene problems, and contamination.

The third measured ARFID symptoms across the three presentations. For kids, parents answered yes-or-no questions about whether their child showed each pattern. For adults, they used a more detailed nine-item scale.

The researchers then used a statistical method called mediation analysis.

In plain English, they were testing whether sensory sensitivity leads to food disgust, which THEN leads to food avoidance, rather than sensory sensitivity directly causing the avoidance on its own.

WHAT THEY FOUND

The results came out almost identical for kids and adults, which strengthens the findings.

For picky eating, food disgust played a huge role. Kids and adults with higher sensory sensitivity had higher food disgust, and that disgust was strongly tied to picky eating symptoms. This was the largest effect in the whole study. The model explained about 30% of the variance in kids and 33% in adults, which is large.

For fear of aversive consequences, food disgust played a smaller role. It still acted as a bridge between sensory sensitivity and the symptoms, but the effect was much weaker. FEAR seems to be the main emotion driving this presentation, not disgust.

For lack of interest, food disgust did NOT play a role. Sensory sensitivity was still connected to lack of interest, but disgust wasn't the bridge. The researchers interpret this as meaning that for people with this presentation, food isn't experienced as gross or aversive. It's just not interesting.

WHAT THE AUTHORS CONCLUDED

The big takeaway is that the three presentations of ARFID are NOT all the same thing under the surface.

They may have different causes, which means they may need different approaches.

Food disgust seems to be central to picky eating in ARFID. It plays some role in fear of aversive consequences. And it doesn't really apply to lack of interest at all.

The researchers suggested that for picky eating specifically, addressing food disgust directly in treatment might be useful. They also pointed out that disgust is harder to "unlearn" than fear, which might be one reason ARFID can be so persistent. (Which we think makes sense given that you can't desensitize people to their sensory aversions)

What this study can't tell us - the researchers were honest about the limits.

• Because everything was measured at one point in time, they can't say for sure what causes what. Sensory sensitivity might lead to disgust, which leads to avoidance. But it's also possible that the avoidance comes first and shapes the disgust over time.

• Both samples were highly educated (the parents and the adult participants) which doesn't reflect the full range of people who experience ARFID.

• The sensory sensitivity questionnaire had only moderate reliability. Someone might be very sensitive to sound but not to taste, and a single overall score can miss that.

• The food disgust scale also had trouble with younger kids. Some parents had a hard time answering for very young children, which suggests we need better tools for that age group.

WHY THIS ALL MATTERS

First, the framing that "picky eating is just a phase" or "they'll eat when they're hungry enough" is wrong when it comes to ARFID.

The picky eating in this disorder is a sensory and disgust-based response that the body produces automatically.

It's NOT stubbornness, it's not bad parenting, and it's not something a child can override by getting hungry enough. Kids with ARFID can lose dangerous amounts of weight or end up needing feeding tubes because their bodies genuinely cannot push through it.

Disgust isn't a behavior or a choice. It's an automatic, full-body response. The "ew, no" reaction kids and adults with ARFID have to certain foods is happening at a level below conscious decision-making.

Telling someone to just push through it, or shaming them for not trying harder, doesn't reach the place where the response is actually happening. It just adds shame on top of an experience they didn't choose.

The traditional approach to this kind of food avoidance is desensitization, slowly exposing someone to the food until the response goes away. But you cannot desensitize someone out of their sensory aversions. Sensory differences are part of how a nervous system is wired. They aren't a problem to be solved or a wrong response to correct. Pushing kids through food exposures they aren't ready for can actually deepen the avoidance and the disgust response, not reduce it.

What may help more is honoring what the body is telling someone, expanding what's available within their safe foods, and supporting the nervous system overall.

The goal isn't to make a child eat foods their body rejects. It's to make sure they have enough safe and accessible options to be nourished, and to support them with respect for what their sensory system is actually doing.

The lack of interest presentation may also connect to interoception. Interoception is the sense that picks up internal body signals like hunger, thirst, and fullness. Many neurodivergent folks have differences in interoception, where these signals can be muted, delayed, different, or hard to read. If your body isn't clearly telling you that you're hungry, food isn't going to register as something to pursue.

This isn't a person choosing to ignore food. It's a nervous system that isn't sending the cue clearly in the first place. If your body doesn't send hunger cues reliably, external structure could fill that gap.

It's also worth saying: lumping all food avoidance together misses important differences. A kid who avoids food because of texture and taste needs different support than a kid who avoids food because they're scared of choking, who needs different support again from a kid who just doesn't feel hunger.

One-size-fits-all approaches don't work here.

**Note: This graphic is a screenshot of recently published research. It shows the title of the study, the authors' names, and the DOI link. The caption summarizes the research and the researchers' findings and conclusions. This is shared strictly as information to our audience and is not intended as an endorsement or a claim that the research findings are definitive.**

[ Alt Text: Screenshot of a research article listing from the journal Appetite, Volume 217, dated 1 February 2026, article number 108329. The title reads "Sensory sensitivity and food disgust in ARFID presentations across ages." Authors listed are Lena Kramer, Alexander Nettlau, Anne-Kathrin Merz, Annick Martin, Anja Hilbert, and Ricarda Schmidt. The Think Sensory logo appears at the bottom on a dark teal background. ]

23/04/2026
22/04/2026

🚨 NDIS CUTS: Minister Butler announced a series of major NDIS changes today, including a new planning framework, tighter eligibility based on functional capacity rather than diagnosis, cuts to social and community participation budgets, reduced third-party provider spending, and a push to move more people into supports outside the NDIS.

He also said the government will be reducing participant numbers by the end of the decade, with new eligibility rules and reassessments expected to affect who can enter the scheme and who stays in it.

We know this will feel really unsettling for so many in our community of autistic people and families, especially those who already know how easy it is for hidden needs, fluctuating capacity and internalised struggles to be missed or brushed aside.

Things like ‘objective independent assessments of functional capacity’ will not doubt fail our ladybugs, as will the reduction of community and social participation budgets, as we know how important access to community is as a protective factor.

And we also know that when supports are reduced or made harder to access, the need (and cost) does not simply disappear. It is likely to be pushed somewhere else, in mental health, hospitals, schools, family stress and people becoming more isolated from community.

The bottom line is, you are not alone in feeling concerned, frustrated, angry or scared. As we process this more, we will keep you updated.

* changes announced in summary: He announced a set of major changes to the NDIS aimed at slowing growth and reducing costs, including moving to a new planning system, cutting spending in some areas, and tightening who can access the scheme.

A big shift is the move to standardised “objective” assessments of functional capacity. Diagnosis alone won’t determine access anymore, and over time all participants will be reassessed. These changes are expected to reduce the number of people on the NDIS from around 760,000 to about 600,000 by the end of the decade.

Funding for social and community participation will be capped and reduced (back to around 2023 levels, about $26,000 per person), alongside a new $200 million fund for community organisations. There will also be cuts to plan management spending, changes to how providers operate and are paid, and stronger oversight to reduce fraud.

Eligibility changes are expected to start from 2028 for new participants, with existing participants reassessed as their plans come up. At the same time, governments say they will rebuild “foundational supports” outside the NDIS for people who no longer qualify.

21/04/2026

I got my period at 13. And not long after that, something shifted. Not in a way anyone could clearly name, but not subtle either. Something in me felt sharper, more reactive, harder to manage. By 14, my mum was already taking me to the gynecologist, trying to understand what was happening. Because

21/04/2026

Just you TRY not to bop along to this one! You’re welcome!

21/04/2026
19/04/2026

Something exciting is brewing at Paths with Purpose — and I need YOUR help. 🌿

I’m launching a quarterly subscription designed specifically for neurodivergent women. Among the therapeutic content, each box will include a self-care item that feels like a warm hug through the post.

And I want to fill those boxes with products made by people in my community.

I’m specifically looking for small, beautiful, sensory-considerate products from female-led, neurodivergent-led, or disabled-led businesses — things like:

🌿 Herbal teas or botanical blends
🕯️ Small candles (soy or beeswax)
🛁 Bath or foot soaks (magnesium-based a bonus!)
💆 Roller blends, lip balms, or simple skin care
🪨 Grounding stones, crystals, or sensory items
🔖 Bookmarks, art prints, or small handmade goods

Products need to be:
✔️ Suitable for sensitive nervous systems (low fragrance or natural scent preferred)
✔️ Available in small wholesale or bulk quantities
✔️ Made with love by someone who gets it

If that’s you — or if you know someone who fits — please drop a comment below, send me a DM, or tag them in. I would absolutely love to keep this within our community and support the incredible makers, crafters, and creators in my network before looking anywhere else.

This box is for us. It makes sense that it’s also made by us. 💚

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