Breathing new life - Austons Heart & Lung Transplant Journey

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Breathing new life - Austons Heart & Lung Transplant Journey

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Born with Idiopathic Pulmonary Hypertension, Scimitar Syndrome and Eisenmenger Syndrome… it’s time to follow Auston through his pre and post Heart & Lung transplant journey ~ 18 years in the making!!

07/11/2025

✨ It’s that time of the month again—our journey to Sydney is here! ✈️

We are offically TEN months post transplant and I’m thrilled to share some fantastic news! 🥳 Lung functions are looking amazing and improving every day. The chest X-ray is clear, Auston continues to gain weight, and we’re still seeing ZERO signs of rejection!

Auston recently faced the challenge of Influenza A, but true to form, he sailed through it effortlessly, just like before, with no complications! What a true champion he is! 💪

Every day, I’m reminded that we waited for the perfect set of lungs and a beautiful heart for him. I’m endlessly grateful for this incredible gift of life for my boy. ❤️ Here’s to more adventures and continued health and awesomeness 🥰🥰🥰

19/10/2025

✨Happy 19th Birthday to Auston! ✨

It’s hard to believe that just a year ago, we were celebrating Auston’s 18th birthday at Royal Prince Alfred Hospital, awaiting a transplant and navigating such a challenging time. Fast forward 12 months, and here we are, celebrating not just another year of life but the incredible journey we have taken since then.

This past year has been nothing short of extraordinary. Auston tackled life head-on, achieving milestones that we had only ever dreamt of. From recently acquiring his learner’s driver’s license to attending appointments in Sydney solo—without his mama by his side—my boy continues to show immense independence and strength. Each goal he kicks is a testament to his resilience and determination, proving that he can accomplish what we all felt may have been impossible.

Time has flown by so quickly, and it’s almost astonishing to think about how much life has changed and how much Auston has grown and experienced in just one year.

He has not only overcome some of life’s biggest challenges but has thrived in ways that continue to inspire those around him every day.

Today, we celebrate Auston. His courage, spirit, and journey are an incredible reminder of how precious life is. Here’s to more adventures, more goals, and more memories in the year ahead! We love you beyond words, my boy! 💖

12/09/2025

From daily… to weekly… to monthly updates — here we are again with another chapter in our main man’s unbelievable journey! 💪❤️

Yesterday we had the privilege of heading to the Kolling Institute at Royal North Shore for the ECMO symposium, where the amazing team from RPA invited Auston to share his experience of mobilising while on ECMO. Nerves and all, he stood tall in front of a room full of friendly faces from RPA, St Vincent’s, and beyond — sharing his story with courage and heart. 🌟 It was such a gift to reconnect with some of the incredible people who played such a huge role in his ECMO journey and ultimately his path to transplant.

Then today it was back to St Vincent’s, where the team continues to be blown away by his progress. 🙌 Recent tests searching for antibodies that could signal rejection? Clear. Zero. None! 💯 The wins just keep coming.

Since transplant, Auston has put on an incredible 17.5kg and is looking stronger and healthier than ever — proof of just how far he’s come. 💥

And next month marks a huge milestone: he’ll be flying to Sydney without his mumzy - tackling this adventure all on his own. From a boy who was never left unsupervised… to a man free to roam the earth. 🌍✨

What a glorious, hope-filled life we lead ❤️❤️❤️

01/08/2025

Auston Update! 💪❤️

We were back at St Vincent’s today for Auston’s routine check-up with his incredible transplant team – and our boy just keeps on kicking goals! 🌟

He’s recently battled Influenza B (because why not throw a flu into the mix!) and, true to form, he kicked arse – only suffered mildly and is recovering really well. 💥👏

We’re still working on getting his tacrolimus levels just right, and today he officially transitioned to a once-a-day dosage to see if that helps with stability.

Other than that, he’s absolutely thriving. His strength, resilience, and attitude continue to inspire us every single day. 💖

Thank you so much to everyone who’s cheering him on – your love and support mean the world! 💕

Address

Valla Beach, NSW

Website

https://www.gofundme.com/f/austons-new-heart-and-lungs-to-be-born-again?utm_medium=customer&utm_source=copy_link&utm_cam

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