Digestive Cancers Europe - for Patients

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Digestive Cancers Europe - for Patients

DiCE is a European non-profit umbrella organisation of nearly 40 national Member Organisations across Europe.
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23/03/2026

ECOPOP (Early Colorectal Cancer: Patient-Targeted and Organ Preserving Treatment) is a 5-year European research initiative aiming to transform how early colorectal cancer is treated.

By combining evidence from three randomised clinical trials with the development of AI-based tools and molecular markers, the project aims to better identify which patients truly need surgery and who could benefit from organ-preserving approaches.

As a partner in ECOPOP, DiCE helps advance evidence-based care and promotes more informed, shared decision-making, always prioritising patient needs.

fans EU Science Hub - Joint Research Centre EU Science & Innovation EU Can Beat Cancer

22/03/2026

🔊 Lynch Syndrome Awareness Day is a call to make the hidden visible.

Lynch syndrome is one of the most common inherited cancer predisposition syndromes and is linked to a higher risk of several cancers, especially colorectal and endometrial (uterine) cancers. It is estimated to affect around 1 in 370 people, yet many remain undiagnosed.

This March 22, DiCE stands with patients, families, and advocates to raise awareness, encourage people to know their family history, and support access to appropriate genetic counselling and testing. Family history can matter, especially when relatives have had colorectal or uterine cancer at a younger age.

Awareness must also lead to action. In some health systems, routine tumour testing for Lynch syndrome is being recommended or implemented for people diagnosed with colorectal and endometrial cancers, helping identify Lynch syndrome earlier and opening the door to better prevention, surveillance, and treatment.

Let’s raise awareness. Let’s make earlier detection and better care possible. 🧬

For more information, please visit👉 https://digestivecancers.eu/rare-cancers/lynch-syndrome/

Lynch Syndrome Ireland Lynch Syndrome Support And Awareness Lynch Syndrome Support Group / LSI EU Can Beat Cancer EU Science & Innovation

21/03/2026

⛓️‍💥 Breaking the Silence on A**l Cancer means listening to patients, ending stigma, and making earlier diagnosis and better care possible.

March is European Colorectal Cancer Awareness Month, and today is also A**l Cancer Awareness Day. A**l cancer is rare (less than 5% of gastrointestinal cancers), but its incidence is rising. And while colorectal and a**l cancer are different diseases, they can share symptoms and stigmas, which lead to late diagnosis.

Stigma and silence still prevent too many people from seeking help, receiving a timely diagnosis, and accessing the care and support they need. No one should face a**l cancer feeling unheard, unseen, or ashamed.

Bleeding, pain, or lumps near the a**s are sometimes attributed to haemorrhoids, but when these symptoms persist, a conversation with your doctor can help clarify what’s going on and support timely care.

Raising awareness is essential, but so is turning awareness into action: earlier diagnosis, equitable access to quality care, and dignity for every person affected.

Together, we can break the silence. ✨

Learn more about A**l Cancer 👉 https://digestivecancers.eu/what-is-a**l-cancer/

**lCancerDay **lCancer fans

20/03/2026

Colorectal cancer doesn't affect only older adults; more and more people under 50 are being diagnosed, often too late.

This European Colorectal Cancer Awareness Month, take a moment to listen to your gut.

Our new practical guide breaks down:
• Early warning signs people often overlook
• When to seek medical advice
• How to advocate for yourself in the healthcare system

Take a couple of minutes to read it. Share it with someone who might need it!

Because symptoms are often dismissed as “nothing serious”, until they’re not. And early action can make all the difference.

fans

19/03/2026

Make awareness personal this !

Create a customised poster for European Colorectal Cancer Awareness Month in just a few clicks. Add your logo, choose your message, and help spread the word on the importance of screening.

Early detection saves lives, and your voice can help more people take that step!

fans

18/03/2026

Yesterday, DiCE attended the meeting of the EU Health Policy Coalition, which focused on the EU BioTech Act and its potential to shape the future of patient innovation in 🇪🇺.

We welcomed the opportunity to exchange views with policymakers, including co-rapporteurs MEP Vytenis Andriukaitis and MEP Wouter Beke, as well as a representative from the European Commission, patient groups and the pharmaceutical industry.

During the discussion, DiCE’s Policy Officer, Filip Karan, highlighted the urgent need to address inequalities in access to clinical trials and innovative treatments for people living with digestive cancers. Patients in countries with higher incidence rates (particularly in parts of Eastern Europe) continue to face disproportionate barriers in access.

A strong consensus emerged across stakeholders: enabling truly pan-European clinical trials is essential to ensure equitable access to innovation for all patients in Europe.

fans EU Can Beat Cancer EU Science Hub - Joint Research Centre EU Science & Innovation

17/03/2026

A colonoscopy uses a tiny camera on a long, flexible tube to examine the entire length of the large bowel (colon) and is the most thorough way to check for disease.

It typically takes 15–30 minutes to examine the entire large bowel.

A flexible sigmoidoscopy is a simpler option that looks only at the lower part of the colon and re**um. It usually takes just 10–15 minutes for a flexible sigmoidoscopy.

Your doctor will review the results and discuss next steps. If polyps or other suspicious findings are detected, a full colonoscopy may be recommended to examine the rest of the colon. Early detection matters and can save your life.

16/03/2026

"𝘔𝘺 𝘧𝘢𝘮𝘪𝘭𝘺 𝘥𝘰𝘤𝘵𝘰𝘳 𝘵𝘩𝘰𝘶𝘨𝘩𝘵 𝘐 𝘩𝘢𝘥 𝘢 𝘣𝘢𝘤𝘵𝘦𝘳𝘪𝘢𝘭 𝘪𝘯𝘧𝘦𝘤𝘵𝘪𝘰𝘯 𝘧𝘳𝘰𝘮 𝘴𝘸𝘪𝘮𝘮𝘪𝘯𝘨 𝘪𝘯 𝘸𝘪𝘭𝘥 𝘭𝘢𝘬𝘦𝘴 𝘢𝘯𝘥 𝘳𝘪𝘷𝘦𝘳𝘴 𝘢𝘯𝘥 𝘳𝘦𝘧𝘦𝘳𝘳𝘦𝘥 𝘮𝘦 𝘧𝘰𝘳 𝘢 𝘤𝘰𝘭𝘰𝘯𝘰𝘴𝘤𝘰𝘱𝘺. 𝘐 𝘸𝘢𝘴 𝘥𝘪𝘢𝘨𝘯𝘰𝘴𝘦𝘥 𝘸𝘪𝘵𝘩 𝘊𝘰𝘭𝘰𝘳𝘦𝘤𝘵𝘢𝘭 𝘊𝘢𝘯𝘤𝘦𝘳 𝘢𝘵 𝘢𝘨𝘦 30.” – Marcos, Portugal

Despite rising incidence in adults aged 18–49, early-onset digestive cancers remain under-recognised, with consequences for diagnosis, treatment, and survivorship.

Digestive Cancers Europe (DiCE) invites physicians, nurses, students, and allied healthcare professionals to complete a short, anonymous survey. Your insights will help uncover critical gaps in care and directly inform strategies to improve outcomes for young patients, so earlier recognition becomes the norm, not the exception.

🕒 Takes just 8 minutes
📍 WHO Europe Region
📊 Results will inform advocacy, education, and clinical guidance

Take the survey 👉 https://www.research.net/r/eoDiCE

Available in English, French, German, Italian, Portuguese, Spanish, Polish, Romanian and Swedish. Because better awareness leads to earlier diagnosis and better outcomes.

fans

14/03/2026

Have a colonoscopy coming up? This video walks you through the preparation step by step: what to eat, how to take the preparation solution, and why it matters for clear, reliable results.

A good preparation is important as it helps you clean your bowel properly so your doctor can obtain the clearest and most reliable results.

Watch the video below and prepare confidently for your colonoscopy.

13/03/2026

We were proud to bring together policymakers, experts and patient advocates at the European Parliament for the launch of European Colorectal Cancer Awareness Month 2026.

Thank you to MEP Romana Jerković Kraljić for hosting the event, and to all the speakers who shared clear and urgent messages. One point stood out: too many people in Europe are still missing out on colorectal cancer screening.

Today, only about 40% of the eligible population takes part, meaning the majority of those who could benefit from early detection are not being reached.

Screening saves lives. Expanding access, strengthening prevention, and supporting patient organisations are essential steps if we want to change these numbers.

This March, you can also support by creating your own awareness poster with our tool. Download it and share it on your social media:
https://eccam.digestivecancers.eu/poster-tool/

Our campaign continues throughout the month, stay tuned!
EU Can Beat Cancer EU Science Hub - Joint Research Centre fans Colorectal Cancer Alliance Tomislav Sokol

12/03/2026

“𝘐𝘧 𝘐 𝘩𝘢𝘥 𝘣𝘦𝘦𝘯 𝘴𝘤𝘳𝘦𝘦𝘯𝘦𝘥 𝘵𝘸𝘰 𝘺𝘦𝘢𝘳𝘴 𝘦𝘢𝘳𝘭𝘪𝘦𝘳, 𝘐 𝘮𝘪𝘨𝘩𝘵 𝘩𝘢𝘷𝘦 𝘢𝘷𝘰𝘪𝘥𝘦𝘥 𝘢 𝘭𝘦𝘵𝘩𝘢𝘭 𝘣𝘶𝘭𝘭𝘦𝘵!”

Read Luca’s story and why he encourages everyone in the screening age to get screened.

Colorectal cancer can develop silently. That’s why listening to people who’ve been through it matters.

For those over 50, screening is a proven way to stay more in control of future health. It’s not about luck; it’s about taking charge of your health even when you feel well.

Read his story here 📖 https://digestivecancers.eu/patient-story/luca/

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