Colorado Rare Disease Advisory Council

05/04/2026

A closer look at taste buds is revealing why some people experience lasting effects after COVID-19. 🦠

scientists have identified measurable changes inside taste buds that may explain why a small group of people continue to lose sweet, bitter and umami flavors - even more than a year after infection. Findings showed lower levels of a key protein that helps taste cells detect flavors, along with altered taste bud organization.

This is the first study to directly connect patients’ reported taste changes to physical differences inside taste cells.

Read more about the study here ➡️ https://bit.ly/4cWJWes.

05/04/2026

Wishing you a blessed Easter filled with hope, renewal, and strength.
— Colorado Rare Disease Advisory Council

29/03/2026

Welcome Home!!! National Vietnam Veterans Day

Every March 29, we honor and recognize the 3 million servicemembers who were deployed and served in the Vietnam War. 🇺🇸 March 29 was chosen to remember the last U.S. combat troops who departed from Vietnam on March 29, 1973. On and around the same day, Hanoi released the last of their acknowledged prisoners of war. There are more than 58,000 deaths documented and inscribed on the Vietnam Veterans Memorial in Washington, D.C. ❤️

To all Vietnam veterans, your service mattered, and it will never be forgotten. We are forever thankful for your courage and the sacrifices you made for our freedom. Today and every day, we honor you.

03/03/2026

The Colorado RDAC had an amazing Rare Disease Day. Members of the CORDAC connected with legislators and helped guide rare disease patients around the capitol to help them share their stories!

24/02/2026

Members of the RDAC will be at the State Capitol starting at 8:00am in recognition of Chronic Disease Awareness and Rare Disease Day. We invite you to join us and Show Your Stripes in support of the rare disease community.

Be sure to check out the Denver City and County Building illuminated on February 27th and 28th in honor of Rare Disease Day.

16/02/2026

Cell adhesion failure in Pemphigus Vulgaris.

Desmoglein 1 & 3 are essential proteins that help keep skin cells bound together.

In Pemphigus Vulgaris, the immune system mistakenly attacks these proteins, leading to loss of cell adhesion and causing painful blisters and erosions on the skin and oral mucosa.

To know more or to get any kind of assistance regarding Autoimmune Blistering Diseases, visit our website www.aibdf.in! 🌐

11/02/2026

🦕 You are invited to a free Rare Disease Day celebration with NORD and the Yale School of Medicine Genetics department at the Yale Peabody Museum on Feb. 20.

Bring the family for kid-friendly activities, time with local rare disease groups, museum exhibits, and light refreshments. RSVP here: https://bit.ly/4a5YaH2

11/02/2026

Did you know? A disease is considered rare if it affects fewer than 200,000 people in the U.S.—yet rare diseases impact millions of families nationwide.
Colorado is taking action.

Visit cordac.org

The Colorado Rare Disease Advisory Council offers advice on research, diagnosis, treatment, and education for rare diseases. Learn more here.

03/02/2026

Just in case you were wondering if your efforts are making a difference, this was put out by Colorado Cross-Disability Coalition. Keep it up!!!!! We still have a long way to go, but know your voice matters!

Full document:
https://docs.google.com/document/d/1RlPmDnXGrKI4hHhmzLtoOk77dEwqKhv9Vwi0Ya6Thx0/edit?usp=drivesdk

03/02/2026

Colorado Rare Disease Day
February 27 8am - 1pm
Register today.

03/02/2026

With Advocates for Compassionate Therapy Now LLC – I just got recognized as one of their top fans! 🎉

03/02/2026

Rare diseases are rare—but together, our voices are powerful. 💙
The Colorado Rare Disease Advisory Council works to improve awareness, access, and outcomes for rare disease patients across our state.

Learn more at cordac.org

The Colorado Rare Disease Advisory Council offers advice on research, diagnosis, treatment, and education for rare diseases. Learn more here.