CCF for PSP Awareness

02/21/2026

02/17/2026

We mourn the passing of Rev. Jesse Jackson, civil rights icon who died at 84 from complications of Progressive Supranuclear Palsy (PSP).  PSP is a rare neurodegenerative disease affecting movement, balance, vision, and more.  His battle highlights the need for awareness and research. Join CCF for PSP Awareness in the fight.

Read Full article- https://pspawareness.com/blogs/psp-q-a/remembering-rev-jesse-jackson-a-warrior-s-fight-against-psp

SHARE and Spread Awareness!

We at CCF for PSP Awareness are deeply saddened by the passing of Rev. Jesse Jackson, civil rights pioneer, at age 84 on February 17, 2026, in Chicago. His death marks the end of a valiant battle with Progressive Supranuclear Palsy (PSP), a rare neurodegenerative disease. Jesse Jackson’s PSP Journ...

12/26/2025

🚀 Unlock sharper focus, memory, and mood with VieLight red light therapy! “Experience the power of light for a sharper mind.”

Save 10% using code PSPAWARENESS at vielight.com

Merry Christmas from the Vielight team! 🎄❄️

While Santa's "red nose" might look like a festive nod to Rudolph, it represents a significant milestone in our mission to advance photobiomodulation (PBM).

As we close out the year, we are reflecting on the successful results of our 294-person clinical trial, the largest successful PBM clinical trial, ever. These results paved the way for the Vielight RX Plus to be recognized by Health Canada as a licensed medical device for upper respiratory viral recovery.

By leveraging the nasal network to deliver optimized red light energy, we are able to support the body’s systemic resilience and natural recovery processes.

Wishing you and your family a healthy, restful, and resilient holiday season. 🎅✨

Read more about our clinical journey: https://www.vielight.com/blog/viral-and-immunity-recovery-results-vielight-rx-plus-major-clinical-trial-n228-medical-device-license/

12/18/2025

Take care of who took care of you.

At some point, we start to notice the people who raised us changing. They don’t move quite as fast. They ask for help with things they used to do with ease. They forget small details, or they get tired sooner than they used to. It’s hard to notice at first, but eventually it hits us.

The people who once took care of us now need a little care themselves.

It’s a strange feeling. We grow up thinking of our parents or grandparents as strong and steady, the people who always knew what to do. And then, the balance changes.

Suddenly we’re the ones reminding them of appointments, helping with errands, or just being there to listen. It eventually becomes a daily part of our life.

Taking care of them doesn’t have to be perfect or complicated. Sometimes it’s as simple as sitting together, sharing a meal, or picking up the phone just to check in.

It’s showing patience on the days when things take a little longer. It’s choosing to be present, even during the tough moments.

And while it can be emotional or exhausting at times, it’s also incredibly meaningful.

These are the people who shaped us, supported us, and loved us through every version of ourselves.

~ Cody Bret

12/09/2025

Use discount code PSPAWARENESS online or mention on the phone to save 10% off your order!

After years of worsening symptoms linked to repeated head trauma, a former college athlete is exploring red-light therapy as a possible path toward healing.

12/02/2025

CCF Coleen Cunningham Foundation Press Release

Melbourne, Victoria – September 9, 2025 – The CCF Coleen Cunningham Foundation is partnering with researchers at the Alfred Hospital and Monash University to recruit participants for a groundbreaking study: “Assessing Cognitive Trajectories in Progressive Supranuclear Palsy Using Remote Computerized Reaction Time Tasks.”

This innovative research evaluates computerized cognitive testing to detect decline in Progressive Supranuclear Palsy (PSP) more effectively than traditional pen-and-paper methods. The study aims to map individual cognitive trajectories in PSP patients, enhancing future research and clinical trials for investigational treatments.

Study Involvement:
• Two in-person visits (90 minutes each) at Alfred Hospital or Monash University (99 Commercial Road, Melbourne, VIC): history, physical exam, and cognitive assessment.
• Home-based testing every 2 months for 12 months on a smart device (10-12 minutes per session).
• Quality-of-life questionnaires.

Eligibility:
• Neurologist-diagnosed PSP.
• Age 40+.
• Available for two assessments 12 months apart.
• English proficiency for consent and activities.
• Reliable smart device with internet; willing to register on secure platform.
• No other major neurological/psychiatric conditions.

Interested PSP patients or caregivers: Contact Dr. Timothy Siejka at t.siejka@alfred.org.au or 0418 347 620.

Ethics approved by Alfred Human Research and Ethics Committee (413/25).

The CCF Coleen Cunningham Foundation supports this vital PSP research to advance patient care and outcomes.

11/18/2025

Use discount Code PSPAWARENESS for 10% off your order!

For years, brain photobiomodulation (PBM) was often described in local terms: more blood flow here, less inflammation there, happier mitochondria everywhere.

11/13/2025

“Jackson is "under observation for Progressive Supranuclear Palsy (PSP), a neurodegenerative disorder he has managed for more than a decade," a statement from Rainbow PUSH read.”

Read more-https://abc7chicago.com/post/civil-rights-activist-rev-jesse-jackson-hospitalized-chicago-amid-progressive-supranuclear-palsy-psp-diagnosis-sources-say/18150658/

Civil rights activist Rev. Jesse Jackson was "under observation" for Progressive Supranuclear Palsy, the Rainbow PUSH Coalition told ABC7.

11/11/2025

On Remembrance Day, we honour the brave who sacrificed for freedom. Lest we forget. 🌺

11/06/2025

🧬 Free Genetic Testing for Neurodegenerative & Dementia Conditions 🧬

We’re excited to share that Probably Genetic, in partnership with The Bluefield Project to Cure Frontotemporal Dementia (FTD), is offering no-cost genetic testing for individuals in the U.S. experiencing symptoms of a neurodegenerative condition or with a clinical diagnosis of FTD (without prior confirmed genetic testing).

Eligible participants can receive:
✅ Whole Genome Sequencing (WGS)
✅ C9orf72 (C9) Hexanucleotide Repeat Testing
✅ Virtual Genetic Counseling — at no cost

This program helps identify disease-causing genetic mutations linked to FTD and related conditions — all while keeping your privacy protected under HIPAA, CLIA, and CAP standards.

🧠 How it works:
1️⃣ Complete a short, 5-minute Symptom Checker online.
2️⃣ If eligible, receive your at-home saliva collection kit by mail.
3️⃣ Send it back using the prepaid box.
4️⃣ Get your results and free genetic counseling within 6–8 weeks.

Together, we can advance understanding and support for the FTD community. 💜

11/04/2025

10/31/2025

🔥 SPARK JOY & HOPE! Join Stella—our USA firecracker high school powerhouse, leading initiatives & volunteers beyond her years—for a heartfelt 🥯 BAGEL Fundraiser honoring her beloved Saba!

COLEEN CUNNINGHAM FOUNDATION Fundraiser: Fuel the Fight Against Atypical Parkinson’s!

NOV 2 • 11AM-1PM @ Rockville JCC 🇺🇸

Partnered with Bethesda Bagels—grab fresh bagels, make a difference! 💥

See you there!