Invisible Illness Alberta

04/17/2026

So…. New meds def burned my skin 😭 I even prepped with Cavulon. It’s not the adhesive that I reacted to, it was the actual meds on the patch.

04/13/2026

Parking and Prescriptions

🅿️ 2025 Parking: $457.51 (out of pocket, & about another $250 that was reimbursed through FSCD)

💊 2025 Prescriptions: $76,622.60
($4554.56 out of pocket)

Thank god for insurance!
Disability is expensive!
.ab

04/12/2026

Disability is expensive!
.ab

04/10/2026

It’s a very quick survey!

This advisory agency provides advice about opportunities for persons with disabilities to participate equally and fully in society.

04/09/2026

Had a little bump in the road last night.
Good news/Bad news… the consolidation in my lungs is improving but I have a lot of irritation caused by a chemical burn from my stomach acid. Tuesday seemed ok then yesterday was just awful, had to make sure there was no lung collapse too (there isn’t!!! 👏) & figure out some better pain control.
Tried some new meds, got the pain back down to a tolerable level, got all the shakes from all the ventolin, had my second “pink lady” & pulled another all nighter. Just to get home this morning to get dressed and ready to head out the door for scheduled bloodwork and a super important appointment at the Kaye.
Didn’t think pulling all nighters and doing shots would be spent at the hospital with lidocaine shots 😂 but here we are.
Already feeling quite a bit better and thanks to .christine for being my pneumonia buddy and driving me around this morning. You know you’re best friends when you get pneumonia at the same time and both have scheduled appointments at the Kaye at the same time. 😊
& btw, healthcare is a joke right now! Witnessed so many people suffer unnecessarily because of an inadequate healthcare system on the brink of collapse. The ER was a zoo, I don’t even know how to explain it or what to say. Just be extremely grateful if you don’t need an ER these days.

04/08/2026

04/07/2026

Link in Stories

🔗 https://www.surveymonkey.com/r/BTHFMJP?mobilizedImpressionExternalId=f7d3b4c4-9d42-94b0-b2c1-f194a9764508&trackingType=E

04/07/2026

Finally starting to feel like a human again.
Pneumonia is still alive and well, the pain is unreal.
My lungs BURN so badly, the doctor said there’s a lot of inflammation in my airways and it’s technically a chemical burn from stomach acid so that’s why it hurts extra.
First time out of the house since last Thursday that wasn’t hockey or a hospital but it’s a trip to the Mazankowski for C’s albumin infusion 😂 I need a better hobby.
Calvin missed me so much from being away all weekend and was by my side or literally crying to lay in top of me since I got home.

Also, FINALLY get to see my regular pain management doctor this week! She’s been on mat leave and had left unexpectedly early so I had a few appointments cancelled and was kinda left hanging.