Milanah’s Micro Journey

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Milanah’s Micro Journey

1lb 1oz princess this is my journey

04/30/2026

As long as I’m living my baby you’ll be. ✨🩷🌸

04/26/2026

My little pumpkin pie butterfly… A million lifetimes would simply never be enough for me. 🌸✨🩷

04/15/2026

It’s been a while since I posted something about Milanah’s medical journey here… Which is amazing because this used to be my outlet when she was sick. And she’s been so healthy lately. It’s been like we’re living in a dream. But dreams don’t exist without reality.. and lately Ive been brought back a few times.

One thing I haven’t really posted about has been Milanah’s physical capabilities. Because from the outside looking in, it looks like she’s doing extremely well. And don’t get me wrong. She certainly is which is almost why I didn’t ever feel like I should post about it. I’ve always had an inkling that may be Milanah had some slight cerebral palsy. It was the way she would hesitate before taking a step up when she was a toddler. It looks like her brain just wasn’t aligning with her body. She learned to do a lot in ways that suited her and I was always just so happy that she was able to do them that my mind never accepted that maybe they were a little bit different.

Maybe accept it isn’t the right word they acknowledged is better. Truly, I was just so thankful that she could do the things that even if they were a little bit different I didn’t think it mattered. But as she gets older, and I see her with her peers, I realize that it’s maybe more apparent than I realized. We did get a confirmed diagnosis last summer after some Physio and some doctors appointments. When she was smaller, it didn’t seem so apparent but since starting school it’s become more clear that it is something that impacts her physically and as a parent, I’m really struggling and realizing that it may be more of a difficulty for her than I thought.

This is something I’m still learning how to navigate as her mom… but I think it’s time I start sharing that part too. I’ll be opening up more about it in my next post.

04/03/2026

Just a couple of spring girlies ✨🌸🩷

03/23/2026

5 years ago today…

In the NICU there’s no guarantees. Nobody will ever tell you “it will all be okay” because nobody truly knows. And that was the thing I yearned to hear someone say to me the most. But no one could, the permanent displaced feeling of the rug being pulled out from under you continues on… Until eventually you find yourself collecting days of life as if they’re special coins. And in some crazy way, those days of life truly were like special rare coins.

To have made it to this day felt so surreal. 100 days felt like an absolute miracle at the time. Some days passed so eerily that you were scared to close your eyes, because tomorrow is never promised with these tiny tiny babies. To live an experience where days of life can break up slowly into hours is something I’d never wish on anyone. I’ll never forget thanking God for one more hour, one more day.. Or begging to God for one more hour, one more day. That kind of experience as a parent will never leave you.

To sit here 5 years later and look at these pictures feels so surreal. It still makes me emotional knowing there were days I didn’t know if I’d ever get to bring her home. This day was magical. I’m so thankful for the nurses who helped me celebrate the small stuff, the ones who helped me decorate her side of the room and who celebrated right alongside with me. They made celebratory signs for her room, and truly made this day feel like the celebration it was.

To have been given the gift of her life for the last 5+ years has brought me so much joy. From 100 days, to 1916 days they haven’t always been easy but I’m so thankful for every single one of them. 💜

03/07/2026

What an incredible experience being part of the Corus Radiothon for Children’s Health Foundation.

Not only did Milanah get to share a little bit of her story, but together we helped raise $275,367 for children and families who rely on this hospital every single day.

Watching my tiny 1lb warrior use her voice, and cheer to help other kids, and families will never not be amazing.

Thank you to everyone who listened, donated, and made this possible. ✨🩷

03/01/2026

Mommy & Milanah brunch date 🌸✨🩷

02/06/2026

Using our voices for something bigger than us 💙
Milanah and I are honoured to speak for the Corus Radiothon for Children, sharing her story to help support children and families who need it most.

for Children’s is on March 5, 2026! Tune in all day to London’s Best Rock FM96, Country 104, 1031 Fresh FM and 980 CFPL News and listen to how your support makes a real difference at Children’s Hospital, and !

Don’t forget to use to share why you support these amazing children!

01/23/2026

Disney on Ice with two girls who already know what it means to be brave ✨❄️👑

Side by side in the NICU, to being side by side in life years later. Watching them laugh and smile together always feels so surreal. ❤️

12/26/2025

Just a little Christmas magic ✨🎅🏽

It was definitely a little uncertain at times but thankfully Milanah pulled through and was able to be home for Christmas. It was a little quieter this year but we had a great time. I’m just so thankful she did manage to be able to stay home. ❤️✨🎅🏽

Wishing everyone a Merry Christmas filled with love, warmth, and the people who matter most. 🤍✨

12/16/2025

Thank you to everyone who wished my sweet girl a happy birthday. ❤️

12/14/2025

From the tiniest of beginnings to the most wonderful five year old girl!

Once upon a time I sat beside machines, praying for strength i never imagined us both needing so much of. There were moments I didn’t know what tomorrow would look like, or if it would even come with her in it. But i always knew that I’d never stop fighting with her.

In 5 years of life she’s faced such unimaginable things sometimes over and over again yet she’s still the happiest, lightest, kindest little soul. Shes survived things that nearly broke me to just watch and I’ll never stop being in awe of her.

To think this is the same baby girl. The same brave heart. A thousand silent battles, pokes, prods, tubes, and wires are hidden behind her big infectious smile. She was a miracle long before she ever knew what one was. And every single day with her since has been a gift I’ll never take for granted.

She is the most beautifully bright outcome of a story that could have gone so many ways, so many different times. She is my greatest victory, my sweetest blessing.

“You’re my dream come true,” I tell her most nights st bedtime.

“You’re my dream come true too mom!” she says back.

But she has no idea the depth of what I mean.
How blessed I feel to be her mother.
How blessed I feel to have had five years of her, and how seriously I take my roll as being her mama.

I hope five is good to my sweet girl.
I hope its her healthiest year yet❤️

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London, ON

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http://Instagram.com/milanahsjourney

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