ACMCRN

11/22/2025

Spinal cord stimulators are often suggested for chronic pain — but for those living with adhesive arachnoiditis, the picture is far more complicated.

Our latest blog post breaks down the real-world evidence, the differences between paddle and percutaneous leads, the potential risks, and what today’s new technology can (and can’t) offer.

💡 If you’ve ever been told you’re a “candidate” for an SCS — or you’re unsure what questions to ask — this is a must-read.

Happy Holidays, all of us at ACMCRN.org

https://wix.to/Ov9ccNJ

Spinal cord stimulators are often promoted as an option for chronic pain, but their effectiveness in adhesive arachnoiditis is far more complex. This series explores what current evidence really shows, how paddle and percutaneous systems differ, the risks patients should understand, and how new tech...

11/21/2025

✨ New 7-Part Blog Series Begins Today!

We’re excited to share the first post in our new series, Beyond the Diagnosis: Reclaiming Your Well-being with Mind-Body Wisdom.

This opening article explores simple, accessible mind-body tools—breathwork, gentle movement, mindfulness, and Eastern-inspired practices—to help support your well-being with Arachnoiditis right now. Discover more at

Living with Adhesive Arachnoiditis can feel overwhelming. While research continues, healing isn’t only about future treatments—there are practical ways to support your well-being right now. Our new series, Unlocking New Possibilities, explores simple mind-body tools, gentle movement, breathwork,...

10/22/2025

🎥 New on ACMCRN’s YouTube Channel!

We’re proud to launch our growing video series with the release of Hack Your Brain, Hack Your Pain: 5-Minute Grounding for Pain Relief, hosted by Scott Groves and guided by Trauma Coach David McHugh.

In this short, powerful session, David walks viewers through a simple grounding technique to help calm the body, reduce pain, and reset the nervous system — anytime, anywhere.

🧠 Hack Your Brain, Hack Your Pain is part of ACMCRN’s ongoing mind-body learning series, where you’ll discover practical tools for regulating the nervous system, exploring neuroplasticity, and building resilience through community.

💬 Join the conversation, access recordings, and register for upcoming sessions at:
👉 ACMCRN.org/event-list

💡 Or sign up for the Hack Your Brain, Hack Your Pain private group:
👉 ACMCRN.org/groups

🔗 Watch now on YouTube: https://youtu.be/t8nC7gmg0RA

And don’t forget to subscribe to our new channel for more educational sessions, guided exercises, and updates from ACMCRN.

In this special session of Hack Your Brain, Hack Your Pain, host Scott Groves is joined by Trauma Coach David McHugh for a practical, five-minute grounding e...

10/17/2025

Don't miss this incredible opportunity! Tonight, Friday at 7pm EDT !

HACK YOUR BRAIN to Hack your Pain, with special guest,
Dr Collette is a senior clinical psychologist specialising in pain and PTSD syndromes.

Join Scott Groves as he hosts this special meeting!

https://us06web.zoom.us/j/83037941722

07/17/2025

We have had 3 new Recurring Donors sign up!
Thank you!
Now, can we find only 22 more?
Thanks for helping us advance Arachnoiditis care and research!



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07/17/2025

Feeling disconnected?
Join Rida Viljoen—Resilience & Personal Growth Life Coach & Chronic Warrior—for a live peer workshop:
🗓️ July 29 | 🕑 2PM EST
Come as you are.
🔗 https://www.acmcrn.org/event-details/peer-coaching-workshop-with-rida-viljoen

07/11/2025

Be part of history. Help us open the first International Arachnoiditis Patient Registry. If 25 people give $25/month, we can launch it—and get one step closer to real treatment options and a cure. One-time gifts matter too. Will you be one of the 25? Donate at acmcrn.org/donate.

07/11/2025

🌟 July is Arachnoiditis Awareness Month! 🌟

Arachnoiditis is a rare, painful spinal cord disease that’s too often overlooked. This month, we’re shining a light on the challenges we face—and the hope we’re building together.

If you or someone you love lives with Arachnoiditis, you’re not alone. Join us for stories, support, resources, and ways to get involved—because awareness leads to action, and action leads to change.

🔗 Learn more & get involved:
Arachnoiditis Awareness Month Info: acmcrn.org/aa-awareness-month
Awareness Toolkit: acmcrn.org/aa-awareness-toolkit

💜 Follow for:

Real patient stories & faces of Arachnoiditis

Upcoming events & support groups

Educational tools & advocacy resources

Ways you can help advance research and support our community

Let’s break the silence around Arachnoiditis—share this post, tag a friend, and help us spread awareness!

07/03/2025

It's Arachnoiditis Month!

The July Arachnoiditis Awareness Newsletter is here!

This month is packed with important updates:
*Special events with Rida & Edward
*New awareness videos on our YouTube channel
*Faces of Arachnoiditis stories
*Volunteer news & community features
*Plus, a spotlight on our 20 for $25 campaign to support the Patient Registry

Read the latest updates and get involved in Arachnoiditis Awareness Month.

ACMCRN

07/01/2025

Happy Canada Day!
Wishing all of our Canadian family & friends a very Happy Canada Day!;

06/30/2025

Are you seeking a community that understands the challenges of living with ?

We are a collaborative network that shares the opportunities, information and educational materials, created by our own ACMCRN team, as well as materials etc from all those working on our common cause:

You can find our groups and channels at the following:

ACMCRN Public Information Group
ACMCRN private support group (Arachwarriors)
ACMCRN INTERNATIONAL

Discord: https://discord.gg/w38wVyPA

Tik tok:
https://www.tiktok.com/.verton

IG:
Threads:

LinkedIn: https://www.linkedin.com/in/loriverton

Our most comprehensive resources can be found on our website: www.acmcrn.org