Shaken, not Stirred: Living With Parkinson's Disease

Shaken, not Stirred:  Living With Parkinson's Disease Now twelve years in, I live a life with Parkinson's that is more rewarding and meaningful. Looking to share my insights and practice.

It’s been a difficult road, but I have learned to manage the symptoms through diet, exercise and living mindfully.

I have BIG news, and I’m finally able to share it with you! 🎉I am beyond thrilled to announce that I am officially a pub...
02/10/2025

I have BIG news, and I’m finally able to share it with you! 🎉
I am beyond thrilled to announce that I am officially a published author in the internationally bestselling Art of Connection book series! This latest book, 365 Days of Abundance Quotes by Entrepreneurs, Business Owners, and Influencers, is all about embracing success, prosperity, and the power of an abundant mindset—and I am honored to be one of the featured authors. 💖
Every single day of this book is packed with wisdom, motivation, and thought-provoking insights from 365 incredible business owners, leaders, and visionaries who believe in the power of abundance. And yes, one of those voices is MINE! 🙌
This book is so much more than quotes—it’s a guide to shifting your perspective, stepping into abundance, and surrounding yourself with a powerful, heart-centered community of entrepreneurs and dreamers.
🔥 Special launch price: ONLY $1.99! Snag your copy before the price goes up!
📖 Grab it here: https://bit.ly/AOCBook5Abundance
💡 Drop a 💛 in the comments if you believe in abundance!

As the year draws to a close, many of us find ourselves crafting ambitious "to-do" lists filled with lofty resolutions f...
12/25/2024

As the year draws to a close, many of us find ourselves crafting ambitious "to-do" lists filled with lofty resolutions for the next year—like losing 50 pounds or quitting smoking. However, these grand goals often lead to disappointment and guilt when reality sets in and we abandon them within weeks.

This year, I suggest an alternative: a "done list." This approach emphasizes our achievements rather than unmet expectations. It celebrates victories—big or small—and helps lay a foundation for future growth by reflecting on our past successes. By recognizing patterns of achievement, we can set realistic goals that align with our existing habits and strengths.

For instance, this year I am on track to complete 7,000 kilometers on my bike—the most I've ever cycled in one year. If someone had told me at the year's start that I'd achieve this, I wouldn't have believed it; it wasn’t even on my traditional New Year’s resolution list. Yet as months passed, this goal developed organically through my passion for cycling and established routines.

This experience illustrates that growth comes not from setting unrealistic targets but from nurturing what we already love doing. Success doesn’t need to be tied to guilt; instead, it can bring joy and pride while reminding us that we are enough just as we are.

As we welcome the new year ahead, let’s reflect on our "done lists," honoring both big milestones and smaller progressions alike. Let’s build upon what's right rather than fixate solely on what's wrong within ourselves.

My best wishes for 2025!

It's not about the climb. It's about the descent!
10/25/2024

It's not about the climb. It's about the descent!

The true cost of   extends wellbeyond medical expenses. Just read a newreport from  revealing thestaggering financial bu...
10/22/2024

The true cost of extends well
beyond medical expenses. Just read a new
report from revealing the
staggering financial burden on those with
Parkinson’s and their care partners. This
resonates deeply with many of us. Let’s
advocate for change and lower the
. Read the full report:

Parkinson's is COSTING Canadians.Will You Stand for Change? Send a letter to call for government action and read the eye-opening report on Parkinson's economic impact. TAKE ACTION of people with Parkinson's surveyed had to stop working or retire earlier than planned. 〰 〰 〰 〰 Join us in calli...

You would think that completing a 117-mile bike ride from Collingwood to Elora would be more than enough of a challenge ...
10/09/2024

You would think that completing a 117-mile bike ride from Collingwood to Elora would be more than enough of a challenge for one day. Until you realize that riding your bike was the easy part. It's when you get off the bike that things got more challenging. Take, for example, a hot shower.

My first night was spent with some of the team members of the Spinning Wheels Relay To End Parkinson's in an RV at the Elora Gorge Campsite. After finishing the ride and once the RV was hitched up, I was keen to have a shower before dinner. I grabbed my change of clothes, my towel, and my toiletry bag and made my way to the shower stalls. I took my wallet as well. I was sure that I would have to pay. Well, I had to. But only cash was accepted. Even worse, only 25 cent coins were acceptable. I sulked my way back to the RV.

Seeing the despair on my face, two team members were kind enough to drive up to the gate to exchange some notes for quarters. On returning, they gave me a dollar's worth of coins—four quarters—and I started on the road down to the stalls once again.

But then I started to have questions pop into my mind: would four quarters be enough? Would one quarter only dispense cold water? Would I have to exit the stall to insert the second, third, and maybe the fourth quarter to get to the hot water? How long would each quarter last?

Well, I shouldn't have worried. I had a great, hot, long shower. I had rinsed and repeated and got out of the shower and was halfway dressed before the shower stopped. It was one of the nicest showers I have ever had. The best part—it only cost 25 cents!

So, there is still value in a quarter. And, if you are looking for a great, long, hot shower, head for the Elora Gorge campsite. You'll only need a quarter!

Humbled by the following testimonial from a member of my international health care team."Functional medicine is a scienc...
10/07/2024

Humbled by the following testimonial from a member of my international health care team.

"Functional medicine is a science-based approach that takes a systemic view of treating conditions like Parkinson's disease, among many other chronic disorders. Our approach is personalized, involving an in-depth study of each case. Functional Medicine teaches us to identify the root cause of problems, connect the dots, and apply the best treatment, along with necessary diet and
lifestyle changes. However, it's important to acknowledge that I cannot always guarantee a positive and lasting outcome, particularly when it comes to reversing the damage already caused by Parkinson’s or slowing its progression. In my view, this is often less about a lack of therapeutic tools and more about the patient's endurance, determination, and will to fight for the best possible quality of life despite their diagnosis.

Then I met Larry Linton.

Larry defies all conventional medical expectations and prognosis. He is an extraordinary example for all of us, including myself. His positivity, clarity of purpose, values, and brilliant mind are truly admirable.

As a conventional doctor, I find it difficult to explain how Larry has maintained control over his disease, preventing his symptoms from advancing. But as a Functional Medicine practitioner, I understand that Larry has declared war on Parkinson’s.

He has taken charge of his genetics and optimized his lifestyle to the fullest.

There isn't a neurodegenerative patient I encounter in my practice without thinking of Larry as an example to follow. His discipline with exercise, intellectual pursuits, and his work as an exceptional coach reshape his neuroplasticity every day, allowing him to celebrate his victories. Beyond his health achievements, Larry is a lifelong friend and a whirlwind of energy. Whether he's playing the drums, listening to good music, or enjoying a gourmet meal, he lives life with zest.

Don't miss the chance to meet this master of resilience, to learn from his wisdom, and to gain the optimism and clarity that we all so deeply need."

Dr. Irina Matveikova
Madrid, Spain.

Empowering professionals facing a Parkinson's diagnosis with support so they can reimagine their journey. Disclosure, disability, and career guidance.

10/03/2024

The late, great Robin Williams said that riding a bike was the closet thing to flying.

I knew what he meant, but I never felt the same way, particularly when descending. On the hill climbs, I was always strong. But I could never keep up with the other riders on the descent. My bike brakes were always engaged. On a gravel surface, I was even slower, riding at a crawl, fearing a skid and landing in the ditch!

These two fears were firmly in my mind at the start of one ride as part of Spinning Wheels Relay Ride To End Parkinson's. It was an 84 km ride, and the first section consisted of a long stretch of rolling hills. I confronted my fear. For the first couple of descents, I adopted my usual cautious routine—breaks engaged on the way down. Then, I began to apply less pressure on the breaks. With growing confidence, I started free-wheeling down the hills, my hands hovering on the breaks, but no pressure was being applied. I started to understand what Robin Williams meant. It was quite exhilarating to see my speed increase steadily and feel the wind rushing onto my face. I had conquered my fear on the descent!

Then came the gravel.

Another long stretch. I was nervous! I slowed down as usual and soon had a team member close to my rear wheel. I invited her to overtake me, but she didn't. I told her about my fear of riding on gravel. She then offered me the following advice: "Keep to your line. Go fast. Be confident." She overtook me and soon disappeared. I was again alone. I kept repeating the phrase a few times in my head. Then, I started focusing on each sentence and started adopting my ride to each part.

First, I made sure that I kept my front tire straight, no matter what I came upon (of course, keeping my eyes firmly on the surface a few yards ahead of my bike for evasive action, if required). I was soon riding over small rocks, loose stones, and twigs with growing confidence. Then, I increased my speed (again, within reason) and began to realize that with increased speed, the ride became a lot smoother.

Then, I added confidence. I was not going to be fearful. I was not going to worry about falling off my bike. I was in the saddle, in control, and would deal with whatever the gravel road presented in the moment, in real time. Nearing the end of the gravel path, there was a short but fairly steep descent. But on the other side was an equal ascent—on a tarred road.

It was time to test myself. I kept cycling. I was gaining speed on gravel and descending. I knew in the moment that if I applied my breaks, I would skid and spill off my bike. I kept peddling. I was going faster. But the tarred road was getting closer, quickly. It was soon over, and I was back on the road.

I had a broad smile on my face as I joined the rest of the team. We all finished the ride a few kilometres later.

With the dust now settled (literally), I still have that advice circling in my head. I have internalized it now, and I am applying it to my life with Parkinson's, as follows:

Keep to your line: We each experience Parkinson's differently. Some have tremors; others experience more of the invisible symptoms. We don't compete. We keep to our own lines but have the benefit of an expansive and supportive community.

Be fast: Parkinson's disease is the fastest-growing neurodegenerative disease in the world. We need a cure—fast. But until then, exercising for as long as you can and at the highest and fastest intensity as you can sustain is one of the best ways to manage the physical symptoms.

Be confident: Don't let Parkinson's consume you. Don't retreat. We add value. We have a contribution to make. We have Parkinson's, but it doesn't have all of us!

Parkinson's disease is the fastest-growing neurological disease in the world. There is no known cause and no cure. Canad...
09/12/2024

Parkinson's disease is the fastest-growing neurological disease in the world. There is no known cause and no cure. Canada has the highest per capita rate of diagnosis.

This summer, three teams have been cycling over 10,000 km across Canada, visiting all provinces, two territories, and three coasts over the past 60 days.

On Wednesday, September 18, 2024, the three teams are joining together in Collingwood, and I will be riding with the combined team to Elora, then to Waterloo, Guelph, Hamilton, Mississauga, and finally (for me!) to Whitby. That is about 400 km in five days!

The aim of the Spinning Wheels Relay to End Parkinson's is to cycle through local communities and reach those living in isolation, raise awareness, and generate funds to end Parkinson's disease. The relay will end with the team arriving in Ottawa for a celebration on Parliament Hill.

A Go Fund Me Page has been set up to receive donations, with a share of the proceeds being distributed amongst the local Parkinson's charities. Any contribution that you can make to make this momentous task a success would be greatly appreciated.

This summer, three teams of people living with Parkinson’s, will cycle … Spinning Wheels Relay needs your support for Spinning Wheels Relay to End Parkinson's

Join us!
04/14/2024

Join us!

Taking awareness of Parkinson’s into the virtual world too!
04/11/2024

Taking awareness of Parkinson’s into the virtual world too!

12/26/2023

This is usually the time when we reflect on the year that was and start to think about the next. But from the outset, I'd like to thank you all for your support throughout this past year.

All of my personal milestones I credit to each one of you: I turned 60 on October 16, and a day before that, I completed my third half-marathon since my diagnosis ten years ago. Before that, and over the summer, I trained for and successfully completed my second 100-kilometer bike ride, both with Parkinson's.

Based on your strong support and encouragement over the past year, I have made some decisions and will have some exciting news to share in early 2024. The news will be all about you—about you becoming the hero in your life with Parkinson's—a life that has meaning, fulfilment and purpose—a life that has value. I look forward to accompanying you on that journey. Stay tuned!

Happy Holidays, and all the best for 2024!

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Toronto, ON

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