My Every Breath

11/06/2025

Did you know your lungs carry you through the day with 22,000 breaths?

November is , and if you are a registered organ and tissue donor, one of the organs that you may be able to donate at the end of your life are your life-giving lungs. To breathe freely, easily. What a gift.

People who need lung transplants have failing or diseased lungs that cannot be improved with medication or other medical intervention. You may be able to donate one or both lungs to someone suffering with cystic fibrosis, emphysema, and pulmonary fibrosis. And, ultimately, give them more time living – and breathing. In Canada, 62.5% of patients who received a first lung transplant from a deceased donor survived at least 5 years.

Choose to leave well so others can live well.

https://www.donateyourorgans.ca/

Source: Canadian Institute for Health Information. Annual Statistics on Organ Replacement in Canada: Dialysis, Transplantation and Donation, 2010 to 2019.
Ottawa, ON: CIHI; 2020.

06/11/2025

06/02/2025

CFTR modulator therapies: A breakthrough in treating cystic fibrosis –and why Alyftrek deserves your voice.

Cystic fibrosis has long been viewed as a relentless and life-limiting condition, with treatment historically focused on managing symptoms rather than addressing the underlying cause. But the emergence of CFTR (Cystic Fibrosis Transmembrane Conductance Regulator) modulator therapies has radically changed that narrative, offering new hope to thousands of people living with CF. These revolutionary drugs target the root cause of the disease — mutations in the CFTR gene — and not just the symptoms.

Read More : https://acrobat.adobe.com/id/urn:aaid:sc:AP:0f469bcd-2750-40ae-b6ed-4ae366451c40

03/01/2025

What does it look like to live with a rare disease? In recognition of Rare Disease Day, share a photo of yourself or your loved one with cystic fibrosis in the comments below to share what life looks with a rare disease.