21/06/2025
“Crescent Organisation Hosts Moving Webinar to Commemorate World Sickle Cell Day 2025”
On June 19, 2025, the Crescent Organisation hosted a powerful and deeply moving webinar to mark World Sickle Cell Day. A total of about 40 to 50 people joined the online event, bringing together voices from the medical community and real-life warriors to shed light on the impact of Sickle Cell Disease (SCD) and the urgent need for awareness, support, and prevention.
The webinar began with an insightful address from Dr. Nuh Titus, who provided a clear and sobering overview of what Sickle Cell Disease truly is. He explained that SCD is an inherited blood disorder that causes red blood cells to take on a sickle shape, making it harder for them to carry oxygen throughout the body. This leads to chronic pain, frequent infections, and complications that can affect nearly every organ. More than a medical condition, SCD is a lifelong challenge, one that doesn’t just affect the person diagnosed, but touches every member of their family, emotionally, physically, and financially.
But the heart of the webinar belonged to the true stories shared by individuals living with Sickle Cell Disease, stories that left a lasting impact on everyone present.
Ntah Boris shared a powerful and unforgettable story rooted in his journey as both a sickle cell warrior and a writer. Known for his impactful posts on Facebook, where he has amassed a large following, Boris spoke about how writing became his outlet, a way to process pain and inspire others. One of his most memorable experiences was a crisis that struck on a ghost town Monday in Bamenda. With no transportation available, he was forced to trek miles in excruciating pain to reach the hospital. Along the way, he was robbed and left for dead. Yet, against all odds, he made it, arriving at the hospital just in time. His story wasn’t just about survival, but about the unbreakable spirit that drives so many warriors to keep going, no matter how impossible the odds.
Tata Sonita Bonkar, cofounder of Crescent Organisation shared her journey through school and adulthood with SCD, and how the emotional toll is often overlooked. Her story brought to life the hidden burden of living with an invisible illness in a society that doesn’t always understand.
Nchangang Hilary delivered a heartfelt account of the personal battles he’s faced, particularly in his relationship, and the emotional toll of his recent challenges with starting a family. He bravely shared how complications from sickle cell disease have impacted his journey toward fatherhood, highlighting the often-overlooked reproductive struggles that many warriors quietly endure.
Nuibim Lewin, cofounder of Crescent Organisation shared a deeply personal and emotional story about one of the most challenging periods of his life with sickle cell disease. He spoke about enduring his longest and most painful crisis, one that lasted nearly 6 to 7 months, and the severe complications that followed. The crisis left lasting damage to his hips, affecting his ability to walk and carry out everyday activities. It forced him to make the difficult decision to drop out of university, and today, he lives with the reality that a bilateral hip replacement is the only solution to fully regain his mobility. Yet, through it all, Lewin holds on to hope. His journey is one of quiet resilience, not just surviving sickle cell, but transforming his pain into purpose by building platforms like Crescent Organisation, so no warrior has to walk this path alone.
Together, these stories made one thing clear, knowing your genotype is not optional. It’s essential. Because while there’s no universal cure yet, SCD can be prevented. And the first step is awareness.
The webinar wasn’t just informative, it was transformational. Attendees left feeling inspired, emotional, and most importantly, empowered. It was more than a Google meet call, it was a call to action. To get tested. To spread awareness. To show up for the warriors in our communities.
The Crescent Organisation continues to fight for a future free from the pain of sickle cell disease.
Lewin NuiTata Sonita Bonkar Ntah Boris III@nchangang Hilary
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