SMA Europe

SMA Europe is a non-profit umbrella organisation of SMA patient organisations from across Europe.

07/11/2025

Between 27 and 30 October, our SMA Europe Staff Team gathered in Freiburg, Germany for a few days of team-building and reflection.

It was a wonderful opportunity to review our ongoing projects and initiatives, contribute to the planning of 2026, and strengthen our shared vision for the future.

Moments like these remind us that behind every impactful project is a team united by purpose, trust, and a lot of motivation.

All together. One goal. 💫

04/11/2025

Have you explored our Clinical Trials Finder yet?

"With just a few inputs, you can find every clinical trial relevant to you — not only in Europe, but across the world.” Nicole from our Youth Group in South Africa.

🔗 Access the website here: http://bit.ly/4gBNl29
🔗 Q&A subsite: http://bit.ly/46k2PVc

28/10/2025

Let’s make sure everyone in our SMA community knows about the Clinical Trials Finder! 💜

“For us, knowledge really is power. Staying informed about new treatments can make all the difference.” Elise from our Youth Group in The Netherlands.

🔗 Access the website here: http://bit.ly/4gBNl29
🔗 Q&A subsite: http://bit.ly/46k2PVc

22/10/2025

Still haven’t checked our Clinical Trials Finder out? 👀

"It gives me hope. It shows me that science is moving forward and that we have the right to be part of it” Orestis from our Youth Group in Greece.

🔗 Access the website here: http://bit.ly/4gBNl29
🔗 Q&A subsite: http://bit.ly/46k2PVc

16/10/2025

New Publication!

We are excited to share the latest article about our Clinical Trials Finder, written by SMA News Today

The article highlights the importance of this new online tool, designed by SMA Europe to help patients, families, and clinicians easily explore ongoing SMA clinical trials across Europe and worldwide.

It presents the tool as “the go-to global resource” for transparent and accessible information on clinical research — offering a centralised, user-friendly platform where the SMA community can search for trials tailored to individual needs and stay informed with real-time updates.

You can read the full text here: http://bit.ly/4nQf8yT (link also in Bio)

🔗 Explore the tool here: http://bit.ly/4gBNl29 (link also in Bio)

We will continue to empower our community with knowledge and tools that connect science and patients. Together

04/10/2025

Did you know many people with SMA struggle to find clear, up-to-date clinical trial info? Our Clinical Trials Finder solves that — hear from our Patient Advocate & Volunteer, Nadya Karachevtseva.

🔗 Access the website here: http://bit.ly/4gBNl29
🔗 Q&A subsite: http://bit.ly/46k2PVc

03/10/2025

Clinical Trials Finder is now Live! 📣

Discover SMA clinical trials easily — all in one patient-friendly online tool.

Meet Nicole, our Youth Group volunteer from South Africa, and hear why the Clinical Trial Finder matters!
This new interactive website helps people living with SMA, their families, and healthcare professionals easily discover and explore ongoing clinical trials — all in one user-friendly platform.

🔗 Access the website here: http://bit.ly/4gBNl29
🔗 Q&A subsite: http://bit.ly/46k2PVc

Adresse

Im Moos 4
Freiburg Im Breisgau
79112

Webseite

http://sma-europe.eu/

Benachrichtigungen

Lassen Sie sich von uns eine E-Mail senden und seien Sie der erste der Neuigkeiten und Aktionen von SMA Europe erfährt. Ihre E-Mail-Adresse wird nicht für andere Zwecke verwendet und Sie können sich jederzeit abmelden.

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