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Improve Preterm, Munich (2026)

11/03/2026

Research is increasingly recognizing what many families already experience: 𝗪𝗵𝗲𝗻 𝗰𝗮𝗿𝗲 𝗶𝘀 𝗳𝗿𝗮𝗴𝗺𝗲𝗻𝘁𝗲𝗱, 𝗶𝗺𝗽𝗼𝗿𝘁𝗮𝗻𝘁 𝗽𝗮𝗿𝘁𝘀 𝗼𝗳 𝗮 𝗰𝗵𝗶𝗹𝗱’𝘀 𝗷𝗼𝘂𝗿𝗻𝗲𝘆 𝗰𝗮𝗻 𝗯𝗲 𝗹𝗼𝘀𝘁 – especially when children move between stages, services, or healthcare providers.

To better understand lifelong health after very preterm birth, healthcare systems need to do more than offer individual appointments. They need to 𝗰𝗮𝗽𝘁𝘂𝗿𝗲 𝘁𝗵𝗲 𝘄𝗵𝗼𝗹𝗲 𝗷𝗼𝘂𝗿𝗻𝗲𝘆 – and support communication across time, disciplines, and settings.

Better follow-up isn’t only about more care. It’s about 𝗰𝗼𝗻𝗻𝗲𝗰𝘁𝗲𝗱 𝗰𝗮𝗿𝗲, where information travels with the child, and professionals can build on what came before.

This is a growing focus in research on lifelong health.

04/03/2026

Many families discover that 𝗳𝗼𝗹𝗹𝗼𝘄-𝘂𝗽 𝗮𝗳𝘁𝗲𝗿 𝘃𝗲𝗿𝘆 𝗽𝗿𝗲𝘁𝗲𝗿𝗺 𝗯𝗶𝗿𝘁𝗵 𝗹𝗼𝗼𝗸𝘀 𝘃𝗲𝗿𝘆 𝗱𝗶𝗳𝗳𝗲𝗿𝗲𝗻𝘁 depending on where they live, who they see, and which systems they move through.

Over time, this can place an 𝘂𝗻𝗳𝗮𝗶𝗿 𝗯𝘂𝗿𝗱𝗲𝗻 𝗼𝗻 𝗳𝗮𝗺𝗶𝗹𝗶𝗲𝘀 – to remember early medical histories, to explain their child’s journey again and again, and sometimes to push for follow-up or support that isn’t automatically offered.

As children grow older, links to very preterm birth are not always recognized. Medical records may not follow the child, and later care may not take early life into account.

These gaps are not caused by families. They reflect 𝘀𝘆𝘀𝘁𝗲𝗺𝘀 𝘁𝗵𝗮𝘁 𝗮𝗿𝗲 𝗼𝗳𝘁𝗲𝗻 𝗻𝗼𝘁 𝗱𝗲𝘀𝗶𝗴𝗻𝗲𝗱 𝘁𝗼 𝗳𝗼𝗹𝗹𝗼𝘄 𝗮 𝗰𝗵𝗶𝗹𝗱’𝘀 𝗷𝗼𝘂𝗿𝗻𝗲𝘆 𝗮𝗰𝗿𝗼𝘀𝘀 𝘁𝗶𝗺𝗲.

25/02/2026

Families bring perspectives that research alone can’t capture. 𝗟𝗶𝘃𝗲𝗱 𝗲𝘅𝗽𝗲𝗿𝗶𝗲𝗻𝗰𝗲 helps highlight questions that matter in everyday life after very preterm birth – not just what is easiest to measure.

That’s why families are involved in IMPROVE PRETERM. Not to share personal stories publicly – but to help research stay grounded in real experiences over time.

This collaboration helps research ask 𝗯𝗲𝘁𝘁𝗲𝗿, 𝗺𝗼𝗿𝗲 𝗺𝗲𝗮𝗻𝗶𝗻𝗴𝗳𝘂𝗹 𝗾𝘂𝗲𝘀𝘁𝗶𝗼𝗻𝘀 about lifelong health.

18/02/2026

After very preterm birth, many 𝗾𝘂𝗲𝘀𝘁𝗶𝗼𝗻𝘀 don’t disappear – they 𝗰𝗵𝗮𝗻𝗴𝗲 𝗼𝘃𝗲𝗿 𝘁𝗶𝗺𝗲.

IMPROVE PRETERM focuses on questions that matter across childhood and beyond, such as:
– 𝗛𝗼𝘄 𝗵𝗲𝗮𝗹𝘁𝗵 𝗱𝗲𝘃𝗲𝗹𝗼𝗽𝘀 𝗼𝘃𝗲𝗿 𝘁𝗶𝗺𝗲, not just in the early years
– 𝗪𝗵𝗮𝘁 𝘀𝘂𝗽𝗽𝗼𝗿𝘁𝘀 𝘄𝗲𝗹𝗹-𝗯𝗲𝗶𝗻𝗴 as children grow
– 𝗪𝗵𝘆 𝗰𝗮𝗿𝗲 𝗮𝗻𝗱 𝗳𝗼𝗹𝗹𝗼𝘄-𝘂𝗽 𝗰𝗮𝗻 𝗹𝗼𝗼𝗸 𝗱𝗶𝗳𝗳𝗲𝗿𝗲𝗻𝘁 from one place to another

Instead of looking at one moment or one outcome, the project brings together researchers, healthcare professionals, and families to better understand 𝗽𝗮𝘁𝘁𝗲𝗿𝗻𝘀 𝗼𝗳 𝗹𝗶𝗳𝗲𝗹𝗼𝗻𝗴 𝗵𝗲𝗮𝗹𝘁𝗵.

This long-term perspective helps research stay connected to real-life experiences after very preterm birth.

You can learn more about the project on our website: https://improve-preterm.eu/

11/02/2026

When we talk about 𝗰𝗵𝗶𝗹𝗱 𝗱𝗲𝘃𝗲𝗹𝗼𝗽𝗺𝗲𝗻𝘁, milestones often get a lot of attention. But for children born very preterm, single milestones don’t always tell the full story.

That’s why 𝗿𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗹𝗼𝗼𝗸𝘀 𝗮𝘁 𝗽𝗮𝘁𝘁𝗲𝗿𝗻𝘀 𝗼𝘃𝗲𝗿 𝘁𝗶𝗺𝗲 – how skills, health, and well-being develop across different stages of childhood. Looking at the 𝗯𝗶𝗴𝗴𝗲𝗿 𝗽𝗶𝗰𝘁𝘂𝗿𝗲 helps researchers understand variation, change, and long-term health more realistically.

This long-term view supports better understanding – even when answers take time.

04/02/2026

After very preterm birth, 𝗽𝗿𝗼𝗴𝗿𝗲𝘀𝘀 𝗱𝗼𝗲𝘀𝗻’𝘁 𝗮𝗹𝘄𝗮𝘆𝘀 𝗺𝗼𝘃𝗲 𝗶𝗻 𝗮 𝘀𝘁𝗿𝗮𝗶𝗴𝗵𝘁 𝗹𝗶𝗻𝗲.

Many families notice periods of growth followed by plateaus – or moments when new challenges seem to appear after things felt more stable. This kind of uneven progress is common.

𝗗𝗲𝘃𝗲𝗹𝗼𝗽𝗺𝗲𝗻𝘁 𝗮𝗳𝘁𝗲𝗿 𝘃𝗲𝗿𝘆 𝗽𝗿𝗲𝘁𝗲𝗿𝗺 𝗯𝗶𝗿𝘁𝗵 𝗼𝗳𝘁𝗲𝗻 𝘂𝗻𝗳𝗼𝗹𝗱𝘀 𝗼𝘃𝗲𝗿 𝘁𝗶𝗺𝗲, shaped by many factors that can change as children grow. Understanding this broader context can help explain why 𝗲𝘅𝗽𝗲𝗿𝗶𝗲𝗻𝗰𝗲𝘀 𝘃𝗮𝗿𝘆 𝘀𝗼 𝗺𝘂𝗰𝗵 𝗳𝗿𝗼𝗺 𝗼𝗻𝗲 𝘀𝘁𝗮𝗴𝗲 𝘁𝗼 𝘁𝗵𝗲 𝗻𝗲𝘅𝘁 – and why questions may come and go.

28/01/2026

Research about very preterm birth doesn’t happen in isolation. 𝗙𝗮𝗺𝗶𝗹𝗶𝗲𝘀 𝗯𝗿𝗶𝗻𝗴 𝗽𝗲𝗿𝘀𝗽𝗲𝗰𝘁𝗶𝘃𝗲𝘀 𝘁𝗵𝗮𝘁 𝗿𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗮𝗹𝗼𝗻𝗲 𝗰𝗮𝗻’𝘁 𝗰𝗮𝗽𝘁𝘂𝗿𝗲 – everyday realities, long-term questions, and insights shaped by lived experience over time.

That’s why IMPROVE PRETERM involves parents and adults born very preterm in shaping research priorities and tools. Not as subjects – but as 𝗽𝗮𝗿𝘁𝗻𝗲𝗿𝘀.

𝗟𝗶𝘀𝘁𝗲𝗻𝗶𝗻𝗴 𝘁𝗼 𝗳𝗮𝗺𝗶𝗹𝗶𝗲𝘀 helps research focus on what truly matters in daily life after very preterm birth, across childhood and beyond. Family perspectives don’t just add context. They help 𝗴𝘂𝗶𝗱𝗲 𝗯𝗲𝘁𝘁𝗲𝗿 𝘂𝗻𝗱𝗲𝗿𝘀𝘁𝗮𝗻𝗱𝗶𝗻𝗴 – 𝗮𝗻𝗱 𝗯𝗲𝘁𝘁𝗲𝗿 𝗰𝗮𝗿𝗲.

© Music: Energetical Escape by ComaStudio

21/01/2026

Many families notice that 𝗾𝘂𝗲𝘀𝘁𝗶𝗼𝗻𝘀 𝗮𝗳𝘁𝗲𝗿 𝘃𝗲𝗿𝘆 𝗽𝗿𝗲𝘁𝗲𝗿𝗺 𝗯𝗶𝗿𝘁𝗵 𝗱𝗼𝗻’𝘁 𝗱𝗶𝘀𝗮𝗽𝗽𝗲𝗮𝗿 𝘄𝗶𝘁𝗵 𝘁𝗶𝗺𝗲 – 𝘁𝗵𝗲𝘆 𝗰𝗵𝗮𝗻𝗴𝗲. IMPROVE PRETERM exists because of this reality.

Across Europe, researchers, healthcare professionals, parents, and adults born very preterm are working together to 𝗯𝗲𝘁𝘁𝗲𝗿 𝘂𝗻𝗱𝗲𝗿𝘀𝘁𝗮𝗻𝗱 𝘄𝗵𝗮𝘁 𝘀𝘂𝗽𝗽𝗼𝗿𝘁𝘀 𝗵𝗲𝗮𝗹𝘁𝗵 𝗼𝘃𝗲𝗿 𝘁𝗵𝗲 𝗹𝗼𝗻𝗴 𝘁𝗲𝗿𝗺 – not just in the first months or years.

The project looks at real-life care, follows children as they grow, and learns from many different family experiences. Not to offer quick answers – but to build better understanding that can support care over time. This is how 𝗿𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝘀𝘁𝗮𝘆𝘀 𝗰𝗼𝗻𝗻𝗲𝗰𝘁𝗲𝗱 𝘁𝗼 𝗲𝘃𝗲𝗿𝘆𝗱𝗮𝘆 𝗹𝗶𝗳𝗲 𝗮𝗳𝘁𝗲𝗿 𝘃𝗲𝗿𝘆 𝗽𝗿𝗲𝘁𝗲𝗿𝗺 𝗯𝗶𝗿𝘁𝗵.

You can learn more about the project on our website: https://improve-preterm.eu/

14/01/2026

After very preterm birth, some health and developmental questions don’t show up right away.

That’s one reason why 𝗿𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗹𝗼𝗼𝗸𝘀 𝗯𝗲𝘆𝗼𝗻𝗱 𝘁𝗵𝗲 𝗲𝗮𝗿𝗹𝘆 𝘆𝗲𝗮𝗿𝘀. Certain patterns – in learning, breathing, or emotional well-being – may only become clearer as children grow.

This doesn’t mean outcomes are fixed or predictable. It means that 𝘂𝗻𝗱𝗲𝗿𝘀𝘁𝗮𝗻𝗱𝗶𝗻𝗴 𝗹𝗶𝗳𝗲𝗹𝗼𝗻𝗴 𝗵𝗲𝗮𝗹𝘁𝗵 𝘁𝗮𝗸𝗲𝘀 𝘁𝗶𝗺𝗲, 𝗰𝗮𝗿𝗲𝗳𝘂𝗹 𝗼𝗯𝘀𝗲𝗿𝘃𝗮𝘁𝗶𝗼𝗻, 𝗮𝗻𝗱 𝗹𝗲𝗮𝗿𝗻𝗶𝗻𝗴 𝗳𝗿𝗼𝗺 𝗺𝗮𝗻𝘆 𝗳𝗮𝗺𝗶𝗹𝗶𝗲𝘀 𝗼𝘃𝗲𝗿 𝗺𝗮𝗻𝘆 𝘆𝗲𝗮𝗿𝘀.

Research can’t remove all uncertainty – but 𝗶𝘁 𝗰𝗮𝗻 𝗵𝗲𝗹𝗽 𝗶𝗺𝗽𝗿𝗼𝘃𝗲 𝗵𝗼𝘄 𝗰𝗮𝗿𝗲 𝘀𝘂𝗽𝗽𝗼𝗿𝘁𝘀 𝗰𝗵𝗶𝗹𝗱𝗿𝗲𝗻 𝗮𝗻𝗱 𝗳𝗮𝗺𝗶𝗹𝗶𝗲𝘀 𝗮𝗰𝗿𝗼𝘀𝘀 𝗱𝗶𝗳𝗳𝗲𝗿𝗲𝗻𝘁 𝘀𝘁𝗮𝗴𝗲𝘀 𝗼𝗳 𝗹𝗶𝗳𝗲. That long view matters. 🧠

07/01/2026

For many families, 𝗹𝗲𝗮𝘃𝗶𝗻𝗴 𝘁𝗵𝗲 𝗡𝗜𝗖𝗨 𝗳𝗲𝗲𝗹𝘀 𝗹𝗶𝗸𝗲 𝗮 𝗺𝗶𝗹𝗲𝘀𝘁𝗼𝗻𝗲 – and it is. But for those whose baby was born very preterm, it’s often 𝗻𝗼𝘁 𝘁𝗵𝗲 𝗲𝗻𝗱 𝗼𝗳 𝗾𝘂𝗲𝘀𝘁𝗶𝗼𝗻𝘀. New ones can come up later – during early childhood, at school age, or even beyond.

This doesn’t mean something is wrong. It reflects how 𝗱𝗲𝘃𝗲𝗹𝗼𝗽𝗺𝗲𝗻𝘁 𝗮𝗳𝘁𝗲𝗿 𝘃𝗲𝗿𝘆 𝗽𝗿𝗲𝘁𝗲𝗿𝗺 𝗯𝗶𝗿𝘁𝗵 𝗼𝗳𝘁𝗲𝗻 𝘂𝗻𝗳𝗼𝗹𝗱𝘀 – 𝗼𝘃𝗲𝗿 𝘁𝗶𝗺𝗲, and in ways that aren’t always predictable.

At IMPROVE PRETERM, we start from this reality. Understanding 𝘁𝗵𝗲 𝗹𝗼𝗻𝗴 𝗷𝗼𝘂𝗿𝗻𝗲𝘆 helps families, researchers, and healthcare providers make sense of 𝘄𝗵𝘆 𝗹𝗶𝗳𝗲𝗹𝗼𝗻𝗴 𝗵𝗲𝗮𝗹𝘁𝗵 𝗺𝗮𝘁𝘁𝗲𝗿𝘀 – and why learning doesn’t stop early on.

You’re not alone in having 𝗾𝘂𝗲𝘀𝘁𝗶𝗼𝗻𝘀 𝘁𝗵𝗮𝘁 𝗲𝘃𝗼𝗹𝘃𝗲 𝗼𝘃𝗲𝗿 𝘁𝗶𝗺𝗲. 🤍

01/01/2026

A new year doesn’t mean a fresh start for everyone – but it can offer 𝘀𝗽𝗮𝗰𝗲 𝘁𝗼 𝗸𝗲𝗲𝗽 𝗺𝗼𝘃𝗶𝗻𝗴 𝗳𝗼𝗿𝘄𝗮𝗿𝗱, 𝗮𝘁 𝘆𝗼𝘂𝗿 𝗼𝘄𝗻 𝗽𝗮𝗰𝗲.

Life after very preterm birth is often shaped by long timelines, evolving questions, and experiences that unfold over years – not months.

In 2026, 𝗜𝗠𝗣𝗥𝗢𝗩𝗘 𝗣𝗥𝗘𝗧𝗘𝗥𝗠 𝗰𝗼𝗻𝘁𝗶𝗻𝘂𝗲𝘀 𝗶𝘁𝘀 𝘄𝗼𝗿𝗸 𝘁𝗼 𝗯𝗲𝘁𝘁𝗲𝗿 𝘂𝗻𝗱𝗲𝗿𝘀𝘁𝗮𝗻𝗱 𝗹𝗶𝗳𝗲𝗹𝗼𝗻𝗴 𝗵𝗲𝗮𝗹𝘁𝗵 – and to make sure families’ realities remain part of that picture.

Thank you for being here.
Wishing you a steady, supported start to the year ahead. ✨

24/12/2025

As the year comes to a close, many families take a moment to pause – even if life after a very preterm birth rarely follows a neat calendar.

For some, this time of year brings quieter routines.
For others, it highlights how much has changed – or how much is still uncertain.

At IMPROVE PRETERM, we want to acknowledge all of that – the long journeys, the open questions, and 𝘁𝗵𝗲 𝘀𝘁𝗲𝗮𝗱𝘆 𝘄𝗼𝗿𝗸 𝗼𝗳 𝗻𝗮𝘃𝗶𝗴𝗮𝘁𝗶𝗻𝗴 𝗹𝗶𝗳𝗲 𝗮𝗳𝘁𝗲𝗿 𝘃𝗲𝗿𝘆 𝗽𝗿𝗲𝘁𝗲𝗿𝗺 𝗯𝗶𝗿𝘁𝗵.

As 2025 ends, 𝘄𝗲’𝗿𝗲 𝗴𝗿𝗮𝘁𝗲𝗳𝘂𝗹 𝘁𝗼 𝘁𝗵𝗲 𝗳𝗮𝗺𝗶𝗹𝗶𝗲𝘀, 𝗽𝗮𝗿𝗲𝗻𝘁𝘀, 𝗮𝗻𝗱 𝗮𝗱𝘂𝗹𝘁𝘀 𝗯𝗼𝗿𝗻 𝘃𝗲𝗿𝘆 𝗽𝗿𝗲𝘁𝗲𝗿𝗺 𝘄𝗵𝗼 𝗵𝗲𝗹𝗽 𝘀𝗵𝗮𝗽𝗲 𝗯𝗲𝘁𝘁𝗲𝗿 𝘂𝗻𝗱𝗲𝗿𝘀𝘁𝗮𝗻𝗱𝗶𝗻𝗴 – 𝗮𝗻𝗱 𝗯𝗲𝘁𝘁𝗲𝗿 𝗿𝗲𝘀𝗲𝗮𝗿𝗰𝗵 – 𝗳𝗼𝗿 𝗹𝗶𝗳𝗲𝗹𝗼𝗻𝗴 𝗵𝗲𝗮𝗹𝘁𝗵.

Wishing you moments of rest, connection, and steadiness in the days ahead. 🤍

Improve Preterm

11/03/2026

04/03/2026

25/02/2026

18/02/2026

11/02/2026

04/02/2026

28/01/2026

21/01/2026

14/01/2026

07/01/2026

01/01/2026

24/12/2025

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