Dinkykts EDS Diaries

19/11/2025

🎙️✨ IT’S OFFICIALLY LIVE! ✨🎙️
I can finally share my BBC Radio Cumbria interview with you all!

This has been such a special experience - chatting about living with Ehlers-Danlos Syndrome, the amazing EDS community, and the journey of creating my very first colouring book:
🖤 DinkyKt’s EDS Diaries: Colouring Through Chronic Illness 📚🎨

We also touched on my calendar project, how I manage day to day, and what it means to raise awareness through creativity. It’s emotional, honest, and hopefully uplifting too.

💬 I’d love for you to give it a listen (link below!)
🎵 It even features a beautiful song I chose: “Better Days” by NKOTB - because that’s what we’re all hoping for, right?

📻 LISTEN HERE on BBC SOUNDS:
👉 https://www.bbc.co.uk/sounds/play/m002ly8m fast forward to 1hr 55 point.
Let me know what you think - and if it resonates, please feel free to share.
This is for all of us in the chronic illness community. 🦓💛

18/11/2025

🦓 A Little Life Update 🦓

Hey everyone - I wanted to share a gentle check-in, especially since this space is all about honesty, awareness, and real life with EDS 💛

These past few weeks have been a lot - in the best ways, but also the most exhausting. My Colouring Through Chronic Illness book is now out in the world (still can’t believe it!), I’ve had the most heartwarming feedback, and I recorded a lovely interview with BBC Radio Cumbria - which is now set to air tomorrow (Wednesday) at 7:50am. It’ll also be on BBC Sounds after 10am in case you miss it. It keeps getting pushed back.

In the interview, I talked mostly about living with Ehlers-Danlos Syndrome, the impact it has on daily life, and how creating this book was about giving something back to the amazing EDS community. £1 from every book sale is being donated to EDS Support UK, and I’m currently working on getting the book stocked in physical stores, including Ryman’s!

But I won’t lie - I’m completely wiped out. Even my parents have noticed how tired I am lately. And that’s the thing with EDS - you can have these beautiful, fulfilling moments, but the crash often follows hard.

This photo is from the end of August when I went to Blackpool and was feeling amazing. It’s me and my niece dancing on the famous Blackpool Tower Ballroom dance floor - a moment I’ll cherish forever 💫 Things feel very different right now, but I’m so grateful for memories like that.

So, tonight and tomorrow I’m focusing on rest and gentle things - like picking out photos for the scenery calendar. That’s been surprisingly hard… there are so many stunning submissions to choose from!

If you’ve bought a copy of the book, thank you so much - and if you could leave a review on Amazon, it would truly mean the world to me. Every single share, message, and review helps raise awareness and lift others up too.

Sending love, strength, and better days to all of you.

Katie 🖤🦓

17/11/2025

📻 Radio update!
My BBC Radio Cumbria interview is now due to air tomorrow morning (Tuesday) at around 8:22am — though the time might shift slightly depending on the day’s news.
After that, it’ll be up on BBC Sounds to listen back any time from 10am onwards, and I’ll share the link as soon as I have it!

Thanks so much for your patience and support — I’m so excited to finally hear it back. 🖤🎙️

13/11/2025

13/11/2025

🦓✨ A Little Life Update ✨🦓

What a whirlwind few days it’s been…
From the incredible support and feedback about my colouring book (thank you SO much 🧡), to being reunited with my best friend of 24 years — who stayed over Monday night after 14 years apart — to sitting down for a lovely BBC Radio Cumbria interview, which will hopefully be on air this Monday! 🎙️📻

In the interview, I spoke mostly about EDS (Ehlers-Danlos Syndrome) — the realities of living with it, how I manage day to day, and the amazing EDS community that continues to support and uplift each other. It felt really special to shine a light on something so close to my heart. 🦓💙

I’m also currently working on getting my book stocked in actual stores — including Waterstones, The Works, Heaths, and even Rymans! It’s early days, but fingers crossed! 📚✨

It’s all been amazing… but I’m definitely feeling the exhaustion now. So tonight and tomorrow I’m planning to take it easy, rest my body, and just potter about online. I’ll be picking out photos for the next scenery calendar — which is proving trickier than I thought, because there are just so many stunning ones to choose from! 📸🌅

If you’ve bought a copy of my book, I would be so grateful if you could leave a quick Amazon review. It really helps others discover it and means the world to me 💛

Thank you all for being part of this journey — every message, every share, every little bit of support truly matters 🦓💬

07/11/2025

✨ Dream come true moment! ✨
I’m so excited (and a little emotional) to share that my book, “Colouring Through Chronic Illness”, is officially published and available on Amazon! 💛🦓

This book means the world to me - it’s part of my ongoing mission to raise awareness for Ehlers-Danlos Syndrome and offer something uplifting, mindful, and creative for fellow chronic illness warriors.

Each page is filled with carefully designed illustrations and motivational quotes, created to bring a little light into the darker days.

Sorry for going on about this non-stop, but it’s honestly just so huge to me. 🥺💕
And there’s more to come… I’ve even got a little radio interview lined up with Radio Cumbria soon! 🎙️💬

Thank you to everyone who has supported me so far - I truly couldn’t have done this without you.

📚 Paperback available now for £9.49
🛒 https://amzn.eu/d/eMva6eo

Let me know what you think if you grab a copy - and please consider leaving a review to help others discover it!

06/11/2025

🌿 The 2026 Wildlife Calendar Is Here! 🦢🦓

I’m so proud to share my brand-new 2026 Wildlife Calendar, created in collaboration with some incredible photographers I know and love. Together, we’ve captured a beautiful mix of wildlife - from peaceful lakes and curious lemurs to graceful swans, giraffes, and more -,celebrating nature through every season.

Each month showcases the magic of wildlife, with May dedicated to Ehlers-Danlos Syndrome Awareness Month, raising awareness for a cause close to my heart. 💜

📅 Price: £15 (including UK postage & packaging)
💜 A small percentage of each sale will be donated to Ehlers-Danlos Support UK.

And that’s not all - I’m also creating a second 2026 calendar featuring stunning scenes from our local area, highlighting the natural beauty right on our doorstep.

✨ To pre-order or reserve a copy, message me directly or visit worldofdinky.co.uk for details.

05/11/2025

04/11/2025

✨ Big News Alert… ✨
This has been my dream for so long, and it’s finally happening. 💭💪
The biggest announcement I’ve ever shared is just below - and yes, I’ve cried! 🥹👇

🖤📚 IT’S PUBLISHED! 🖤
I can’t believe I’m finally saying this…
My first ever colouring book is officially published and available on Amazon. 😭🦓

DinkyKt’s EDS Diaries: Colouring Through Chronic Illness is now LIVE - and I’ve just placed my first author copy order! That means the books are now REAL, printed, and on their way to me as I type this.

This book has been such a long time in the making. Every page is filled with hand-drawn artwork, empowering quotes, zebra pride, and moments from my journey through chronic illness. It’s designed not just to be a creative outlet, but a source of comfort, understanding, and hope - especially for those who live with Ehlers-Danlos Syndrome or any invisible illness.

To those who’ve supported me, encouraged me, sent in photos, tested pages, helped with feedback, or just believed in this dream - I can’t thank you enough. 💛

🛍️ You’ll be able to order your own copy very soon.
📦 I’ll be sharing a little unboxing moment once the author copies arrive!
🏬 And next up… I’m working on getting it stocked in actual bookstores - like Waterstones, The Works, and Heaths Bookshop. It’s early days, but fingers crossed!

This is for the whole chronic illness community - because our stories matter. Our bodies aren’t broken. They are maps of everything we’ve survived.

🦓 Plus, £1 from every book sold will be donated to EDS Support UK - helping to support others living with Ehlers-Danlos Syndrome.

Let the colouring (and crying happy tears) begin. 🎨💧

04/11/2025

⏳ 25-MINUTE COUNTDOWN! ⏳

Something very special is about to be announced… and I honestly can’t believe it’s finally happening! 🥹💫

Stay tuned right here. - I’ll be sharing the news in just 25 minutes!! 7pm!! 🖤🦓📣

31/10/2025

30/10/2025

🖤 THROWBACK TREASURE 🖤

My aunties found this little gem in last week’s local paper and shared it with me—turns out nine-year-old me made a surprise reappearance! 😄

📍Barrow Park, 1994 — wrapped up warm and ready for a teddy bear treasure hunt, with my pen in hand and a big smile on my face. The event was called The Teddy Bear’s Picnic, and honestly… it was the big event of the year when you were 9! 🧸✨

It’s strange and kind of emotional seeing this again. That little girl had no idea of the challenges ahead—but also no idea just how strong and determined she would grow up to be. 🦓💪

Even then, I was doing things differently—and I think she’d be pretty proud of how far we’ve come.

📸 If you’re from Barrow and saw this in the paper too, let me know! It means the world to have moments like this rediscovered.