Dinkykts EDS Diaries

31/12/2025

💙 A gentle check-in

Christmas and the days after were a mixture of love, laughter, rest… and listening to my body.
Some moments were busy, some were quiet, and some were about simply being present with the people (and pets 🐾) I love.

Living with EDS means learning to pace - especially around big occasions.
Stepping back for a few days doesn’t mean disappearing… it means taking care.

As we head into the New Year, I’m holding onto the small, meaningful moments - and reminding myself (and others) that rest is part of living, not a failure.

If you’ve been quiet too, you’re not alone 🤍
Here’s to gentler days ahead 🦓✨

24/12/2025

🎄 Christmas Eve,🎄

The day is nearly over, and tonight is all about slowing right down.
My body is tired, my joints are loud, and the noise of this season can be a lot - so I’m choosing rest, warmth, and comfort instead.

If your Christmas Eve has been quiet… if you’ve spent it resting, cancelling plans, or doing things differently because of your health - please know you’re not alone, and you’re not doing anything wrong.

Chronic illness doesn’t take holidays, and that’s okay. We adapt, we listen, and we give ourselves grace.

Sending love to anyone ending this Christmas Eve in pain, fatigue, or overwhelm. Be gentle with yourself 🤍
From me (and a very sleepy cat 🐾), wishing you the calmest night.

22/12/2025

🎟️ Little Raffle Incentive 🎟️

A little extra incentive to keep things moving 🤍

When we reach 50 numbers sold, the person who buys the 50th number will receive a small bonus prize as a thank-you - completely separate from the main raffle draw.

✨ Numbers are £1 each
✨ £34 raised so far
✨ 76 numbers still available

Message me if you’d like to grab a number and help us get to that 50th spot 🎟️

Thank you as always for the continued support - it really does mean everything.

🖤🦓👩🏻‍🦽🦓🖤

19/12/2025

I wanted to share this photo because it really stayed with me.

Seeing Colouring Through Chronic Illness open, being used, and existing in someone’s home means more to me than I can put into words.

When I made this book, I didn’t want it to be loud or preachy. I wanted it to feel gentle, relatable, and human - something you could pick up on a hard day or a quiet one.

Some of the feedback I’ve received (shared anonymously) has meant a lot:

✨ “Meaningful even for people with no health problems.”
✨ “Well thought out and full of inspirational messages.”
✨ “Different to run-of-the-mill publications.”

If you’ve bought the book, thank you - truly.
If you haven’t, that’s okay too. I just wanted to share this moment and remind myself why I started.

Link is in the comments if you’d like to take a look. Please share. 🖤

18/12/2025

🎄 A gentle reminder as we head into the Christmas period 🤍

For many people living with EDS, chronic illness or chronic pain, the festive season can be difficult in ways others may not see.
Changes in routine, extra socialising, pressure to push through, noise, travel and expectations can all take a toll - physically, mentally and emotionally.

I wanted to share this because I struggle a lot myself, especially at this time of year. It’s taken me a long time to accept that pacing isn’t giving up - it’s protecting my health.

Please remember how important it is to pace yourself.
That might look like:
• choosing fewer plans
• building rest days in between
• leaving early
• taking breaks
• doing things differently - or not at all

And if you’re ever challenged or made to feel guilty, here are a few things it’s okay to say:

💬 “I have to pace myself so I don’t make myself unwell.”
💬 “I’d love to, but I need to listen to my body.”
💬 “I’m managing a long-term condition — rest is part of that.”
💬 “I can’t do everything, but I’m doing what I can.”
💬 “No is a complete sentence.”

You are not lazy - you are managing a condition.
Your health comes first, always.

However you get through this season is enough 🤍
You’re not alone.

This is just a gentle reminder, not a rule - please do what feels right for you.
If this resonates, feel free to save or share. 🦓🎄🖤

15/12/2025

✨ Monday check-in ✨

I hope everyone had a weekend that was kind to them 🤍

I managed to get out on Saturday night for a meal with two of my closest friends, and it honestly did me the world of good. Those little moments mean so much. Ps they actually had crackers that I could pull all by myself!!

Yesterday (and right up until today) I’ve had a lingering headache. I think it’s been a mixture of things - tiredness, doing a bit more than usual… and possibly a tiny bit of Sauvignon and lemonade 🙈 I hardly ever drink, and when you’re dinky like me, it really doesn’t take much!

My calendars arrived today and they look amazing 😍 I did accidentally order them in a larger size than planned, but they’re still available to order. Just a little heads-up that it may be a tight squeeze to get them before Christmas 🎄

You can also still order my book, which I’m genuinely so proud of 🖤

And finally - there are still plenty of raffle numbers waiting to be picked!

As always, thank you for your continued love and support. Please be gentle with yourselves today 🤍

10/12/2025

10/12/2025

🖤 A Little Update From Me 🖤

This week has been a bit of a tough one. I’ve been resting after having some awful pain with my right hip. Ever since it popped out in January — after the bad knee dislocation and all the spasming — it’s never really settled properly. But Sunday night was something else… I was in tears and couldn’t even move my leg. So I’ve had no choice but to take things really easy these last few days.

The good news is that I can move it much better today and the pain has finally started to simmer down. Small victories. 🖤

Because of all this, I’ll be postponing the EDS Charity Raffle until all the numbers are sold. My aim is still to fill all 100 numbers, and so far I’ve only sold the ones marked on the grid. Thank you so much to everyone who has bought a number already — it means the world, truly.

On a brighter note, I’ve added a couple of photos from my little trip to Lancaster with my sister last weekend. We went to see Wicked (which was amazing!), had dinner at one of my favourite places, and treated ourselves to a bit of shopping afterwards.

And last night… yes, I braved that awful wind at the football! 🥶 It’s always harder to breathe when it’s windy, but I did it.

Thank you all for always supporting me — whether it’s with the raffle, my awareness work, or just reading these updates. It really helps more than you know. 💛🦓

08/12/2025

07/12/2025

If anyone would like to join in, please read the info details… the more numbers are sold the more we can donate to the Ehlers-Danlos Support UK lets round off 2025 with the last fundraiser!! Please share xx

06/12/2025

**📣 DinkyKt’s £1 EDS Charity Raffle! 💙🦓

✨ My LAST fundraiser of 2025! ✨**

Pick any number(s) between 1–100 for just £1 each using the board below!

The winner will receive a DinkyKt Bundle:
📘 Signed Colouring Through Chronic Illness Book
📅 2025 Calendar
🖊️ DinkyKt Pen

💙 All profits donated to Ehlers-Danlos Support UK

🎯 Draw Date: Wednesday 10th December 2025
The winner will be chosen using a random number generator.

📮 Postage is included - at no extra cost for the winner.

Thank you so much for supporting EDS awareness and my fundraising work this year. Let’s end 2025 on a positive note! 💙🦓🎉