18/09/2024
** EDIT:
We are moving to recruit parents of children with a single gene disease diagnosis, or suspected single gene disease, not trisomys.
Still eligible to participate if child has passed, provided they meet key criteria. **
Recruitment for study open now.
You can find further information and register your interest in participating in the study here: https://forms.office.com/Pages/ResponsePage.aspx?id=6ner6qW040mh6NbdI6Hyhhqqa0NCu5dFv3oEiesDI69UQk1XQlpRR09XMFNFTURKQTRVQkRLTFdYSC4u
