Jayden-Sean’s Heart Journey

16/10/2024

My name is Caroline, I have a heart condition called Hypertropic cardiomyopathy (HCM) alongside Danons Disease. Danons Disease is an extremely rare heart condition that has been passed down throughout our family. Nearly all of our family members that were diagnosed have sadly passed away. Due to organ donation myself and Jayden-Sean are the only survivors. I had a heart transplant 12 years ago but unfortunately, I have still passed this on to my two children, Keira 19 and Jayden-Sean 9.

Jayden-Sean was diagnosed with HCM and Danons Disease at birth, at age 6 he had an internal defibrillator implanted in his chest. The doctors felt now was the time he needed to be placed on the transplant list as he was deteriorating quite quickly, he was placed on the transplant list for a new heart in November 2020.
After becoming more physically and emotionally ill, he struggled to keep up with his friends, he became breathless very easily and relied on a wheelchair.
Jayden-Sean has had 3 unsuccessful calls, they finally found his perfect match in December 2023 and he is currently recovering well.

Myself And Jayden-Sean would like to raise awareness for organ donation and raise money for a mechanical heart for children at Great Ormand Street Hospital.

I was wondering if you could help us by donating items/vouchers to be raffled off for this amazing cause at a charity/fundraising event held in Bicester, we are running a charity raffle evening at the nightingale pub in Bicester on the 25th of October.

Jaydens dream was to be able to play football, he asked for us to run a charity football match where adults and children of all abilities can play and be involved and help raise money for such an amazing cause.

Thank you for taking the time to read this and I’m hopeful to hear from you soon.

Kind regards
Caroline

Raffle tickets on sale now!! Please message me
5 pound per strip

07/09/2024

Dog show TOMORROW!! 8th September 2024

Raffle tickets on sale now!
£1 pound each or £4 for a strip
Dog classes £3 a class or £5 for three classes.

Raffle prizes
Hot tub worth £345
Car service worth £120
Photographer x2
Air fryer x2
1 full dog groom
1 wash and dry groom
Fair weather dog training club voucher 1 course

Children’s balance bike-donated to us by close friends

Hair vouchers
Barbers vouchers
Nail vouchers
Beauty voucher
Tattoo voucher

Winevalley voucher- 2 cocktails or a bottle of wine
Prezzo voucher -2 main meals
Copper kitchen- 30 pound voucher
Anica- set meal for 2 people
Costa- drink and a cake
Rustica bistrot- meal and drink for 2 people
Brewers fair- meal for 2 and bottle of wine

Cotswold farm 2 adults 2 children
Cotsworld wildlife park 1 adult 1 child
Fairytale farm-2 adults 2 children
Vue cinema tickets- 4 tickets
Jump tickets x3

World of water vouchers

We also have a tombola
£1 pound a ticket or £4 a strip
Get prizes to be won

All money raised goes to great ormand street hospital

Do you want to join me in making a difference? I'm raising money in aid of Great Ormond Street … keira sofroniou needs your support for Jaydens' Gift for GOSH

04/09/2024

Never did I think time would go this fast, but it’s flying, I can’t believe you’re in Year 5 my boy! Go and smash all your goals 💙

11/08/2024

This is the program for our dog show!
8th September 24
Spider park
Bicester

11/08/2024

My son Jayden under went life saving surgery in December last year he had a heart transplant he was only 8 years old. He is now recovering well. I’m doing a charity dog show to raise money for great ormand street hospital we are trying to help raise enough to help fund a mechanical heart for sick children. The dog show is 8th September I’m asking if you would be so kind to gift us any treats for the dogs as prizes for this amazing cause I’d be ever so grateful. In return I will state where the treats are from and try to help ur business.
I will be holding a raffle so if any company’s would like to donate anything we could use for our raffle I would be extremely grateful.
Many thanks
Caroline

10/08/2024

Today we are raising money for Great Ormond Street Hospital outside big Tesco in Bicester.
Please share and spread awareness for organ donation and if you have any spare change please help us.

17/07/2024

Please take a read and help if any one is able to thank you 💓💙

14/06/2024

Jayden sister is currently having a defibrillator implanted.
Hopefully this will help her for a
Long while, before transplant .

12/06/2024

Yesterday we had a pre assessment check before Jayden 3 rd biopsy,
He wasn’t a happy chappy he’s fed up of hospitals.
He had to have an X-ray because he’s had a cough for a long time. They found he’s got an infection on his lungs. So canceled his biopsy today. (Which Jayden is happy about)
He seems to be doing better than he was, he couldn’t keep anything down cause he was coughing so much.
Tonight jaydens head is hurting him, I think it’s the anti rejection medication. he wanted his mum to go bed with him as he’s not feeling his best. Nothing worse than a banging headache 🤕

06/06/2024

Hello everyone
Can you believe it,next week will be 6 months since jaydens heart transplant.
Time has flown by since coming home from hospital,he’s improving every week. Hes started swimming lessons, football training, he’s now back full time at school. He been getting very tired again recently, no eating much and has a terrible cough which has been ongoing for a long time now. Hes been quite down his mood has changed for the last few months.
Jayden did have a 6 month biopsy book but due to him not feeling his best they have cancelled it for now. We try to make everyday a great day.
We are forever grateful to his donor and her family.

22/04/2024

💙💙

jayden-sean is getting stronger by day.
jayden started playing football for longford park not long before his heart transplant but he struggled immensely just walking around the pitch but he a loves football so always wanted to go and he pushed himself to play.
i’m amazed at the progress jayden has made since having a transplant he is able to run,possibly the whole length of the pitch. he can play for longer periods along with other team members, he joins in and has fun with the others. We are very grateful for this football team its aimed for children with sen needs it’s a fun, relaxed, social atmosphere. jayden loves it.
i’m very proud of you jayden-Sean keep it up.

22/04/2024

jayden-sean is getting stronger by day.
jayden started playing football for longford park not long before his heart transplant but he struggled immensely just walking around the pitch but he a loves football so always wanted to go and he pushed himself to play.
i’m amazed at the progress jayden has made since having a transplant he is able to run,possibly the whole length of the pitch. he can play for longer periods along with other team members, he joins in and has fun with the others. We are very grateful for this football team its aimed for children with sen needs it’s a fun, relaxed, social atmosphere. jayden loves it.
i’m very proud of you jayden-Sean keep it up.