Jenson & Lettie - Our Spinraza Journey - Always follow your dreams

Jenson & Lettie - Our Spinraza Journey - Always follow your dreams Jenson & Lettie both have SMA (Spinal Muscular Atrophy). Living Life & Following Dreams 💙💗

Happy Halloween 🎃
31/10/2025

Happy Halloween 🎃

05/09/2025
Dose number 21 of muscle juice today!
11/08/2025

Dose number 21 of muscle juice today!

This is a great step forward. https://www.facebook.com/share/p/16E9yMS1uJ/?mibextid=wwXIfr
05/08/2025

This is a great step forward.

https://www.facebook.com/share/p/16E9yMS1uJ/?mibextid=wwXIfr

BIG NEWS for the SMA community! 📣 The new SMA MTA External Assessment Report (EAG) for Spinraza & Evrysdi has been published. We are pleased to see a focus on more patient voices & real-world evidence. Our aim is for full, unrestricted licensing for ALL SMA types and ages. SMA UK will lead the patient group response to NICE. Read more 👉 smauk.org.uk/cnfq

**August SMA Awareness Month** So proud of these two! We are so grateful for the treatment they receive, it will never c...
04/08/2025

**August SMA Awareness Month** So proud of these two! We are so grateful for the treatment they receive, it will never cure but helps their muscles to be stronger. 💙🩷

Address

Bristol

Website

Alerts

Be the first to know and let us send you an email when Jenson & Lettie - Our Spinraza Journey - Always follow your dreams posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Featured

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram