Wheely Happy Days

Wheely Happy Days Hiya! I'm Sha, wheeling through life with FND & Fibro, ME/CFS, trying to never let it stop me! Join my journey, gigs, festivals & daily adventures.

Good & bad days. Finding joy on wheels in Lichfield & beyond. Life's better when you're Wheely Happy! โ™ฟ๏ธ๐ŸŽตโœจ I'm Sha Taylor, a 52-year-old wheelchair warrior navigating life's adventures on wheels! Living with FND and Fibro but refusing to let it define my journey. Join me for the ups, downs, and everything in between as I roll through festivals, gigs, and daily shenanigans in Lichfield. Expect honest chats about accessibility, chronic illness hacks, and plenty of laughs along the way. Life might have put me on wheels, but I'm determined to make every day a Wheely Happy one! โœจ๐ŸŽตโ™ฟ๏ธ

12/02/2026
12/02/2026

โฐ Would you believe it's 4:50am. ....guess what that means? I'm wide awake and there's time for a quick impromptu round of the Insomnomniacs Neuro-numerology game (completely made up l btw, just for sh*ts and giggles, because I'm tired and very pi**ed off). ๐Ÿ˜ด

๐Ÿ”ฎ I don't have a crystal ball, (just fu***ng boring insomnia) so here goes ....

๐Ÿ˜‡ Mystic Google. Says....Angel Number 450:

Make Progress a Reality. 450 is a piece of information from the 'spiritual forces' that you have the potential to grow towards achievement. (Ok what's that smell, (don't worry it's not toast). It's bu****it! ๐Ÿ’ฉ

Back to Google: You have to use your mindset to take action. Besides, you must know your tremendous success and think about how you get there. (Sounds far too exhausting) ๐Ÿฅฑ

Perhaps you have to feel that you have the opportunity now to make progress. Equally, you have to use the tools that you have. (Erm nope thanks). All I want is sleep, please may I just have sleep? ( Pants ๐Ÿฉณ Maybe I will ask Alexa next time) ๐Ÿฅฑ

Love Sha ๐Ÿ’œ

Friends you're welcome to the madness of my sleep deprivation brain welcome, and hello ๐Ÿ‘‹๐Ÿ‘‹๐Ÿ‘‹ if you too are wide awake like me at this ungodly hour ๐Ÿ’œ what's your Neuro Neuromerology number predictions?
Forget Mystic Meg, Google is the way forward. (Not)

Grunpykincowbag

Jasper cat is home, he's still unwell and back at the vets on Friday. I just wish he'd meow or purr....he's so quiet
11/02/2026

Jasper cat is home, he's still unwell and back at the vets on Friday. I just wish he'd meow or purr....he's so quiet

Daily journal...that took me months to write! Finding My Tribe: How a Simple Facebook Group Became My Lifeline Or: How I...
11/02/2026

Daily journal...that took me months to write! Finding My Tribe: How a Simple Facebook Group Became My Lifeline Or: How I Accidentally Created Community While My Brain Tried to Explode

โš ๏ธ Fair warning: This is a long entry. A marathon to read, just like it was a marathon to write. You might want to take it a bit at a time. Grab a cuppa โ˜• ๐Ÿต

Or: How I Accidentally Created Community While My Brain Tried to Explodeโ€ฆ

10/02/2026

Don't let anyone tell you you're just lazy. Come wall in my shoes. Feel my pain, my exhaustion, my shakes, my temours and digger my migraines, losing my speech....do you still want to tell me I am lazy

10/02/2026

- Tuesday, 10th February 2025

Morning folks. How are you, lovely peeps? Here's today's reality check: It's not fun.

*Visible score:* 1 (JUST NOPE you need REST)

*Balance: Like a pinball bouncing off the bumpers - made it to the bathroom with my walker but hit a few walls on the way.

*Current location: Bed - and I don't reckon I'll be moving far today, the thought of tackling the stairs....makes shudder.

*Body status: Stiff as a board

*Pain levels: Head to toe, off the scale. I've no words.

*Eyes: That odd throbbing eyeball is back; they feel like they are going to pop with pressure, eyes are swollen and painful. My poor lashes are depleted by yesterday's sobbing.

*Sleep: Slept okay eventually, and deeply, but I've woken feeling like I've been run over by a juggernaut with absolutely no energy left at all in the tank, not even a vapour.

*Mental state: Honestly? Feeling anxious, low, and pretty sorry for myself if I'm honest.

*The kicker: Still wide awake at 6am because my Ellyllons don't care about bad days apparently.

It's going to be a long day. I feel broken, and I need to be good, but I'm here. I'm breathing; sometimes that's enough.

Today's Mantra
"Surviving today is enough. Every breath is a quiet victory."

Today, my Ellyllons have brought me unwanted gifts of pain, tears, anxiety and heaviness. Some days are just like this - and that's okay. Crying doesn't mean giving up. Feeling low doesn't mean failing. It just means today is going to be hard. Take hour be hour. Minute by minute.

Love Sha ๐Ÿ’œ

.

What a fu***ng (sorry for my potty mouth) awful day ๐Ÿ˜ข I was in the red today. Visible score of 2 (so do not pass go, etc...
09/02/2026

What a fu***ng (sorry for my potty mouth) awful day ๐Ÿ˜ข I was in the red today. Visible score of 2 (so do not pass go, etc). So much rest needed, so I didn't make it to the Planning meeting, which is soul-crushingly upsetting.

We had to rush poor Jasper Cat to the emergency vet; he was so listless and unresponsive, I was thinking the worst. I got myself so stressed and upset that I ended up having a dissociative seizure and then blacked out, and I've been so unwell all day.

Jaspervark has a high temperature. He's dehydrated and refusing to eat and drink. After bloods and a scan, most of the real nasties have been ruled out. He's on IV fluids, and if they can't get him to eat tonight, they'll tube feed him. The scan showed a swollen irritation in his tummy, so a night at the vet hospital for me. I'm just hoping he picks up ๐Ÿ™

I feel so crushingly guilty for missing the planning meeting tonight. I am feeling so unwell, guilty anxious and exhausted tonight. I don't think I will stop worrying until he comes home.

You probably think I'm soft, but he's been part of our family for 7 years this week. It was so distressing seeing him in such an active bright cat in that state and in a bad way. bad way.

Get well soon, Jaspervark ๐Ÿ™๐Ÿ™

๐Ÿ™ Hoping things are brighter tomorrow. Time for more sleep.

Photo of Jasper taken last week.

What's it like out there. Let's be kind to each other today and every day           ๐Ÿ’œโค๏ธ
08/02/2026

What's it like out there. Let's be kind to each other today and every day ๐Ÿ’œโค๏ธ

Been out again this morning...Twice in one week! It's a world record for me!My body is absolutely screaming at me now, a...
08/02/2026

Been out again this morning...
Twice in one week! It's a world record for me!

My body is absolutely screaming at me now, and I'm pretty sure I've borrowed spoons from next week at this point. But sometimes you've just got to live just a little bit, haven't you?

We went to Burntwood Winter Markets at Burntwood Memorial Community Association, listening to the tunes from Lichfield Radio with a cuppa with some fellow spoonies who popped by to say hi, and a bacon butty from Harveyโ€™s Kitchen

My fave purchase was this little doll - it's a bit like a voodoo doll but not, it's for 'K**b Heads! For things and people that annoy you. It even came with a box of pins and a prescription. Absolutely love it! ๐Ÿ’• Perfect for when the Ellyllons are being particularly stubborn, or when certain people p**s me off. ๐Ÿ˜‚ Hilarious

Now I'm properly knackered and camped out for the foreseeable future.

Tomorrow's Sha is going to have some WORDS with today's Sha, but that's a problem for the future. ๐Ÿ˜…

Worth every borrowed spoon, though.

Love Sha ๐Ÿ’œ

So very spoonie tired today. I hear my bed calling but I have that awful fibro shoulder, Collar bone and underarm pain w...
07/02/2026

So very spoonie tired today. I hear my bed calling but I have that awful fibro shoulder, Collar bone and underarm pain which is making any position uncomfortable. Any tips?

07/02/2026

First vlog attempt, thank you, Paul Taylor, for your tech wizardry.

07/02/2026

First attempt at vlogging, not clogging (I'd probably die) with deteriorating speech. But at least Paul did his magic, will caption, and you can't see my torches, shakes, or tremor interruption. I'd say that's a

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