Poppy’s Life with RETT Syndrome

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Poppy’s Life with RETT Syndrome Raising awareness and sharing our journey 💜

12/04/2025

To some it will just look like a little girl banging a drum..

To someone who’s life is effected by Rett syndrome it’s much more. Poppy doesn’t have complete use of her hands, she can often struggle to do simple things we all take for granted like using her hands to have a drink or eat, and doesn’t have purposeful hand movements. But wow that banging on the drum is so heartwarming and brings me back to real life, over all the medical needs and horrible things poppy faces daily, she’s still just a 4 year old thriving off of making a racket 🤣

Her big smile just shows how proud she is of herself because unfortunately she is starting to understand that she can’t do a lot of what her peers do and gets so frustrated..

I will always be so proud of my little girl 💜

How amazing, jacks still got a couple days of running left until he’s completed his mammoth challenge and he’s managed t...
26/03/2025

How amazing, jacks still got a couple days of running left until he’s completed his mammoth challenge and he’s managed to raise over £5,000 for Rett UK

We all can’t thank you enough for doing such an amazing thing for an amazing cause! Well done Jack, keep pushing through! 👏

Big shoutout to one of poppy’s dad’s friends for running the length of the UK to raise money for Rett UK in the honour o...
10/03/2025

Big shoutout to one of poppy’s dad’s friends for running the length of the UK to raise money for Rett UK in the honour of our very own Poppy! To follow his journey he’s documenting it on TikTok, give him a follow and show your support!

I’ve attached the link to his go fund me if anyone would like to donate 💜

https://www.justgiving.com/page/jackrettrun?utm_medium=FR&utm_source=CL

Hello everyone, We have been very quiet on here for a few months, we unfortunately lost a big part of our family in Sept...
10/12/2024

Hello everyone,
We have been very quiet on here for a few months, we unfortunately lost a big part of our family in September ‘uncle biz’. He was one of Poppy’s uncles who loved her so dearly, he cherished the ground she walked on and was so proud of her like the rest of her amazing family.

On a lighter note, poppy has been doing absolutely amazing at school, she’s goes to school with a huge smile on her face and comes home absolutely exhausted, but everyone there loves her (we knew this would happen anyway).

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https://www.reverserett.org.uk/

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