15/11/2025
Its so much easier to stay in and hide away, than go out and throw your little one into things. When Autumn was a baby, I found it a little difficult to go out with her, to have people ask me how old she is, milestones would come up in general conversations and I would be told how well their little one is doing. I'd have to go through the whole conversation about Autumn and her diagnosis and journey so far, and honestly, it hurt, and the self blame and guilt would takeover. It took a lot to not cry and get upset- afterall, I am human. But now, sometimes I get sad, I think about what Autumn would be like without her Spina Bifida, but honestly, maybe she wouldn't be as courageous and resilient. The Spina Bifida does not define her, it does not make her, and it certainly doesn't stop her and it doesn't stop us. We go out all the time now. Autumn goes to Toddler Boogie and Bounce, Bubble Church and Baby Ballet. She works so hard at each one of these groups, she has friends and she loves it.
Check out Autumn here in her Baby Ballet class, raising money for Children in Need in her pyjamas.
If you have a little one, and you struggle to go out, wondering about the conversations, some days are easier than others, just remember, Spina Bifida does not define your little one, and there are clubs and groups out there that will help. We are lucky we have found ours and we hope you will too.
