PD Mama

PD Mama Mum of 2 living with Young Onset Parkinson's Disease from age 29. Deep brain stimulation 2024 age 40.

Merry Christmas you filthy animals 😝
24/12/2025

Merry Christmas you filthy animals 😝

2025 has not been the easiest year. Despite   making things slightly easier overall, I suppose, some things seem so simp...
19/12/2025

2025 has not been the easiest year. Despite making things slightly easier overall, I suppose, some things seem so simple yet so difficult.... daily tasks when you have advanced are just so hard, and looking after the kids, i feel very limited in my capability and it's very frustrating and upsetting... stress makes my body seize up. My mental health is prob at an all time low... BUT I've grown my hair, and my head wounds are close to being healed (should really be by now!) so that's something. Makes me feel slightly better anyway.
One of my highlights this year (and i hope for the year to come) is that I'm really enjoying walking football and can't wait to meet my ladies' team again when we train on 3 Jan πŸ₯°
I have Christmas and a birthday to get through before that, though, so have a great one - I'll be getting through a huge biscuit hamper from my bestie if you need me πŸ˜‡πŸ’™β€οΈ (Ringtons ftw)

And here's the reprise, another year nearly over and a lot to be grateful for xxFupd xx
10/12/2025

And here's the reprise, another year nearly over and a lot to be grateful for xx
Fupd xx

12 years of  Diagnosed in 2013 age 29. I'm 42 this month πŸ₯³Probably missed a bunch of stuff but this is the condensed ver...
10/12/2025

12 years of
Diagnosed in 2013 age 29. I'm 42 this month πŸ₯³
Probably missed a bunch of stuff but this is the condensed version

I'll post the reprise separately πŸ™ƒ

Thank you very much  (and  ) for this pin badge, which had arrived when I got home - I could have done with this today w...
24/11/2025

Thank you very much (and ) for this pin badge, which had arrived when I got home - I could have done with this today when travelling to hospital... Not sure about the design as the back is difficult to remove for Parky fingers and I'm a little worried it might fall off my clothing or bag and get lost, but the idea is good. We'll see if it works / if the greater public are aware of what it means in due course... I'll browse the papers sent too πŸ’™πŸ’™πŸ’™

20/11/2025
18/11/2025

πŸ’«Soph is 9 tomorrowπŸ’«
My daughter at 20 months old... she's an absolute beaut, always making me laugh (posting with her permission) My whirlwind girl πŸ₯°
❀️

Packed room for the  debate on   Was proud to be there and grateful to  for speaking on my behalf and to all the MPs who...
17/11/2025

Packed room for the debate on
Was proud to be there and grateful to for speaking on my behalf and to all the MPs who spoke on behalf of the many thousands of people with Parkinson's in the UK, sadly most had a familiar story to tell of prolonged time to diagnosis, lack of comprehensive care and lack of access to specialist services, to name just a few issues... don't get me started on access to benefits...πŸ™„ deserves more attention and funding, end of βœ‹οΈ
Thanks to Nick for the seat, Gaynor and for the company πŸ’™πŸ’™πŸ’™. Apparently I was staring at a camera I didn't realise was there!

17/11/2025

Watch the debate on Parkinson's live here at 6 pm -

16/11/2025

We want to wish all those attending the petition debate about the in UK parliament tomorrow evening a successful debate

Well done to everyone that has lobbied their MP to attend, hopefully it will be a good attendance

For those not able to attend in person you can watch it on UK Parliament TV or the UK Parliament YouTube channel.

https://whatson.parliament.uk/event/cal53478

https://m.youtube.com/UKParliament

As a reminder you can find out more about the charter at https://www.moversandshakerspodcast.com

Together we are stronger and our voice is amplified

15/11/2025

Early symptoms that (eventually) led to my diagnosis - - I had just had my system reinserted when I filmed this last year hence the bruised face, slightly weird facial expressions and mild (I don't think it had been switched on yet but I am aware these still happen now).

My daughter just gave me this, which she made at school yesterday ❀️😭πŸ₯°"Whenever you shake, you don't shake love off me y...
15/11/2025

My daughter just gave me this, which she made at school yesterday ❀️😭πŸ₯°
"Whenever you shake, you don't shake love off me you shake more on"


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