PD Mama

07/11/2025

Motion photo-turned-video - good reminder to take my meds, thanks for the reminder! 💙❣️

26/10/2025

26/10/2025

25/10/2025

Just had a brilliant 2 days at Par Con in Birmingham with Parkinson's UK and the Spotlight YOPD crew of course 🙂 Despite a few random dystonic dysko episodes (where better for it to happen?!) it has been so good to meet old friends and new. Highlights included a live podcast by my funny pals Kuhan and Dave 2 Parkies in a Pod interviewing Neuroheroes, who have helped me immensely over the last year, seeing the first pwp i ever met about a decade on as well as several ppl for first time in person, football chat with Annie and Joe, and Chris - what an amazing human you are 🥰 So much to take in.
I've had Parkinson's for 12 years and this is the first event of this size I've been to - it was overwhelming at times... after 3 brain surgeries last year and limits on what can be done moving forward with my I have struggled to face the fact I'm 41 years old with advanced ... but having been selected for the Parkinson's England walking football team and with the Parky Charter debate now scheduled for 17 November, I'm hoping I'll have a renewed sense of purpose, after a lie in of course 💙💙💙
Please send photos if you were there... I hardly took any!

25/10/2025

Our Patron Andy Hobbs modelling our new flag which he will be taking to all the Sport Parkinson's events next year …Andy is a real advocate for Parkinson’s football, golf and all other activities….he is also very tall, so he was mighty impressed we got him a big flag!

20/10/2025

I got myself a little engraved medical ID bracelet to alert any healthcare professionals - in the event of an emergency - to the electrodes in my head... that I have and
Not sure how useful it will be, in reality, but I feel better knowing I have it and peace of mind is peace of mind is peace of mind...
(At this stage, I can have an MRI but need to manually tell my handheld device to put my system into "MRI mode".) Modern technology 🤯💙

07/10/2025

Was busy admiring David Sangster voiceover on a Parkinson's UK advert when I spotted this at the very end of the advert (from World Parkinson's Day 2024)! I'd had my first surgery 3 months earlier and met Gillian and Gaynor that day, both for the first time. Four strong women 💪- three of us have the other is Caroline Rassell, CEO of Parkinson's UK 💙