Megan's Voice

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Megan's Voice

I set this page up in order to help with fundraising for my daughter Megan 💚 Megan is almost 9 yrs old. She has a very rare genetic disorder - CDKL5.

She has numerous health problems. She has severe epilepsy, scoliosis, hypotonia, visual impairment and is non-verbal. She has been using a device called a Tobii Eye Gaze. She is learning to play games, music and paint pictures - all by moving her eyes. The device tracks her eye movements, when connected to a laptop/tablet. This is something we never thought that Megan would ever achieve. Her visual impairment is so severe that she is registered blind. We do hope that in time Megan might be able to 'talk' to us using this device. If not, we are over the moon that she can do the activities that she is enjoying so much just now. Due to it only being used for leisure purposes our local Speech and Language Therapy department are not willing to offer any help with funding. We have organised a fundraising night on Friday 12 June, in our home town,but we have also been asked by lots of people if we have a justgiving page. We are trying to raise £5000 to purchase this amazing piece of technology. Please donate however much you can and help us help Megan. Thank you so much for reading Megan's story xx

08/03/2025

Wee day out to hydropool 🩱🩷

15/10/2024

Great day on the speedboat🚤 Megan loved it. Not that you can tell from the pics 😍

20/05/2024

Staying at Whiteleys retreat this week and today Megan was able to access the beach❤️👩‍🦽

08/08/2023

Someone got their awards today 🎉🎉🎉

15/07/2023

Not posted in a while. Been a busy time past few months. Megan's now recovering from hip surgery. Her op was 3 weeks ago. She's doing well🦸‍♀️💚💜

03/03/2023

Met Callum Beattie in Asda. She's sound asleep. Oh well maybe next time she'll be awake 😴🎸🎵

17/12/2022

Address

Milngavie Road

Telephone

07914338738

Website

http://www.gofundme.com/us7uv5n

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