Brandon,s cause

He was soon diagnosed with a extremely rare cancer called a Pheochromocytoma . On the 6th march 2013 brandon went off to school as normal. but around lunch time i received a call from the nurse saying brandon heart was racing and she could not count the beats,the next minute we are in A&E and his heart still racing. We was sat down for all of 5 minutes in the waiting area when brandon got called in. The assessment Nurse asked what was wrong so i explained,she checked his heart and the next thing i knew we were being taken straight through to the children assessments department. Out of no where doctors nurses were all round brandon i got told to stand out of the cubicle while they assess him. Brandon looked at me and was crying which started me off, because we didn't know what was going on, after about 20 mins the doctor came over to me and explained that brandon has a racing heart of 250. i asked the doctor what it should it be and he said 70 around mark. The doctors gave Brandon adenosine, which took his heart rate down to 150. We were then sent up to G4 ward where more doctors looked at him, it was discussed that he may have an enlarged kidney and would need to stay in hospital for the night. The next morning brandon was given blood and urine tests. And on the 8th of march brandon was given ct scan on his chest abdomen and pelvis and later that afternoon we got called in to a room where we got told brandon has a large tumour. me and jay just look at each other and cried. it felt like some one had rip our hearts out.i felt sick. Jay was trying to be strong for me, but he was hurting just as much as me this is our little boy. we didn't want to tell brandon yet. we wanted to wait a few days.but doctors said he needs to be told soon (which was on the monday.) we had to tell our older boys. which jay rung them to let them. later that Jay stayed up with brandon and i came home, And rung my brother to tell him. within an hour of telling him he on his way to me from essex. At this stage the doctors were unsure of what type of cancer he had, so they were going to carry out a biopsy the following Monday. we had to tell brandon he had cancer On the morning of the biopsy day, the surgeon came to see us and told us that they could not carry out the biopsy because his urine sample results have come back, and they suspect that he has a very rare tumour called a Pheochromocytoma. He went on further to say that if they attempted to take a biopsy, he could die. The only course of action would be to remove the whole tumour. For the next 2/3 weeks Brandon had blood test after blood test, scan after scan. We had meetings with the doctors on a daily bases, and was discussed that Brandon would need to have an embolisation, which would reduce the blood flow to the tumour. On the 2nd April 2013 Brandon had his embolisation carried out. After this Brandon spent 3 days in intensive care, so he could be monitored more closely. On the 11th April 2013 Brandon had a 2nd Embolisation carried out to reduce more blood flow to the tumour. Monday the 15th April Brandon was not eating and losing weight rapidly, it was decided that he should have a feeding tube. On thursday the 18th April ( 6 weeks in hospital} we had a meeting with the surgeon and doctor. This was one of the hardest days of our life. They were going to remove the tumour the following week, but his chances of survival were about 25%, and one of us had to sign the consent form. Monday the 22nd April 2013 brandon was taken to theatre to have the tumour removed. 15 hours later the surgeon came to us and told us that he had managed to remove all of the tumour and kidney. The tumour was 18cm x 15cm and weighed 1.45kg. Brandon came out of hospital on the 28th April 2013. We have now discovered that Brandon has many more tumours throughout his body and head, and has started MIGB treatment in UCLH Hospital London. 10th november 2014. brandon goes in for his 6th lot of treatment tomorrow. then doctors are going to look at all his bloods and the scan he will have on friday 14th nov and decide weather to carry on with the treatment or give him a break for 6 months with reguarly check ups. brandon was tested for the SHDB,