Wound Woman

27/11/2025

Today was a doctor's appointment to discuss upping a medication and get some steriod cream for my vascular eczema/psoriasis on my legs. I was nervous.
The GP was lovely. She agreed a change is needed and understood how much I struggle each day. How hard it must be overall, she asked if there was anything else she could do to help, we chatted about me being off work and how I was doing with that.

I left feeling happy and I'm taking this as a major win. Now I hope the medication change helps me. It's all about trial and error.

24/11/2025

Some years feel unreal — like you blinked and somehow survived a thousand emotions at once. Everything blurred, everything shifted, everything changed you. If you're looking back wondering how you made it through, take it as proof: even your messy seasons can transform you in ways you don’t fully see yet.

16/11/2025

Today is a good day. I think it's because I've been off work and had plenty of time to really rest and sleep!

Henry is super excited the xmas tree is coming out, he loves it just as much as I do. 🎄🎅🎁
I've also hoovered and tidied up. 💪🙌
I'll be sore later but I can stare at the xmas lights and watch I'm a Celebrity with a hot chocolate and feel proud.

11/11/2025

11/11/2025

Be proud 💜

never forget how far you have come…
all the times you pushed on even when you felt you couldn’t…
all the morning you got out of bed no matter how hard it was…
all the times you wanted to give up but you got through another day…
never forget the strength you have learned and developed along the way…
🌼⭐💛

10/11/2025

I don't understand how people in pain can still eat. Any tips?

I'll use the last 24 hour's as an example of my day to day. I don't eat breakfast and haven't for years. I had a sandwich for lunch which was only a light bit of butter and a packet of crisps. Threw that up not long after. Then I had a roast dinner, that came back up. Today again a sandwich, back up and now it's nearly 10pm and I'm having to force myself to drink water but I won't be eating as I'm not hungry.
Because I seem to being sick after everything I eat. Fruit, yoghurts, any food comes back up due to the pain and especially when I'm having a pain panic attack. Frustrating as hell!

It's got so bad I'm now thinking I should probably look into meal replacement shakes, any tips?.
I'll also be getting some vitamins and asking the doctor for some anti sickness meds and advice (yay another medication to add to my long list)

03/11/2025

Sent an email I never expected to send at my age. Asking my boss to look into medically retiring me!

After the shambles of my pain appointment it made me realise even more so that I'm using my very precious energy on a job. It's something I've been thinking about for a while. Not an easy conversation to have but one that I know many disabled people have to go through. It's giving up a bit of my independence. But once I sent that, I felt some peace.
I thought it was me giving up or tapping out. But actually if it makes me feel happy and gives my body the time it needs then it's the right choice. If I can't be medically retired then I'll just hand in my notice. Either way I'm done working, may not be forever but for now I need to focus on myself.

Happy monday 💜

31/10/2025

I stood outside the hospital crying my heart out. Ugly crying too! After dragging myself to an appointment I had no hope of getting help from..

I was informed there is nothing else the NHS can do for me because I've done all that Pain Management have to offer.

IE - Be 39 year's old, living the life of a 90 year old and rot/suffer in bed.
I am exhausted, mentally & physically. I don't know what else I can do to help myself. I don't want to spend my life in bed watching the world go by. It's not what I want for my life. I should be out, enjoying myself, being able to shower or clean without suffering.
I'm not living, I'm suffering, rotting and all because Pain Management think positive thinking is the way to help with pain. No amount of positive thinking helps when I can't even wiggle a toe..
Today is very much a fck off type of day.
🤬😡🖕

31/10/2025

Being handed this leaflet on Chronic Pain... I know what it is.
I'm going to be hissing at people, I can feel it coming 🤣

31/10/2025

Today is the day!!

Off to a new Pain consultant, I'm not optimistic or feeling hopeful. I'm exhausted of bouncing from department to department and never getting anywhere.
I've told my husband if they mention these 3 sentences, I am going feral 😂 (He's glad he isn't coming with me)

1: You are too young - I've had many of these conditions and diseases from 25, some from birth. Age is irrelevant.
2: Your wounds don't look that painful - that was a sentence the last pain consultant said and I wanted to hiss in his face, scratch his eyes out and then peel his skin off and see how much it hurt him (I was hormonal at the time)
3: Have you considered pain group therapy - Ie CBT and whilst probably helpful for some, I've been meditating etc for years!

So yeah, not feeling hopeful.. I'm tired after a really long night. I don't want to talk or be around people. My leg's are in pieces and I just want to cry (hormonal/feeling very menopausal today)

Keep your fingers and toes crossed, send positive vibes and watch out on the news for a crazy lady who was hissing at people 😂🤣

29/10/2025

Not even my trusted medical cannabis is helping today.
Days like today wind me up. I know I shouldn't let it, but it does. I have done everything right, yet my body still does what it wants.
Anyone recommend a show/film or documentary that I can watch.