The MS Couch

The MS Couch trying to make sense of it Having or dealing with MS in our lives is a challenge, here we have a safe space to talk about it.

Sleep is a major issue for me in the heat, and actually the day as well so basically the heat all the time!
19/08/2025

Sleep is a major issue for me in the heat, and actually the day as well so basically the heat all the time!

Struggling to get restful sleep with MS? Our latest blog shares five top expert-backed tips to help you wind down, sleep better, and wake up feeling more refreshed.

I am really using AI a lot these days, here's my post with the MS SocietyMS Society UKpeople living with MS multiple scl...
01/04/2025

I am really using AI a lot these days, here's my post with the MS Society

MS Society UKpeople living with MS multiple sclerosisThriving Over Surviving MSMen with MSMultiple Sclerosis Trust

Steve, an MS Society volunteer who’s been living with MS for over 30 years, has been exploring the possibilities of AI. In this blog post, he shares some ways AI has helped him in daily life with MS.

12/07/2024

Don't know about you but sometimes all I see is the negative!
This story, that person's fears, those messages build and can make me feel down

There is science there and this vid is about how we can change our view

04/07/2024

Dealing with Fatigue in life

How the "mico nap" has revolutionized my daily life in living with MS and fatigue, its about self awareness, mindfulness and living a busy life

I'm not a DR and this is my lived experience

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Fatigue is a common symptom and there is no magic fix, it can be so disabling that moving/ working/ living can feel impo...
24/06/2024

Fatigue is a common symptom and there is no magic fix, it can be so disabling that moving/ working/ living can feel impossible.

After not acknowledging/recognising/accepting it was a problem this is how I deal with it - The MicroNap.

Be interested to see how other people deal with it






Steve's everyday method of tackling fatigue for MS

20/12/2023

A letter from my now self to my recently diagnosed self.

https://youtu.be/b5NYm-R7G9w?si=b4X1Dp-VR-wIJU2rDoes anyone else think what you would tell your just-diagnosed self? Wou...
19/12/2023

https://youtu.be/b5NYm-R7G9w?si=b4X1Dp-VR-wIJU2r

Does anyone else think what you would tell your just-diagnosed self? Would you tell them how hard it is? to be strong? would you tell them it is going to be ok?
When I was diagnosed I was scared, I thought the worst but time passes and we move on, we cope, we struggle, we shine.
People do extraordinary things, you do extraordinary things.

Letter to myself

I write these words to you Steve
They are words of hope
Words to lessen the fear
Now your world has collapsed
You've come off the rails
And your dreams have been crushed
And left at the door
And trampled to mush

I speak from the future,
I've lived near 3 decades for sure
I have lived a full life
From whence I was told
So please don't fear your path
Look after yourself and believe you're enough

You will be tested my friend
And you will stumble and fall
But hold these words true
As you walk your cliff road
I will speak to you much
I will tell you enough
But hear me and learn me
As the truth is near
It is loving yourself dear
Accepting the change

It's not hating this illness you bear
That stands so close
It's merging your journeys
Like an unwelcome ghost

So good luck with your story
It's yours to tell
And you will tell it well Steve
I trust that as well
I must go back to the future
I have my own life to lead
But we will meet again whence
'Tis time for us both left to leave

A letter from my now self to my recently diagnosed self.

Hi all, a friend of mine Kate Georgie  is working on a great project looking at mental health support for people with MS...
13/12/2023

Hi all, a friend of mine Kate Georgie is working on a great project looking at mental health support for people with MS. If you haven't already, please would you take a minute of your time and complete the survey?
It will provide valuable information to help offer a solution to MS sufferers struggling with mental health issues
https://forms.gle/khKoo47AjZWb6HJ48

Many thanks

Steve

Men with MS
Thriving Over Surviving MS
Overcoming MS Lifestyle Support
people living with MS multiple sclerosis

A survey to find out how the mental and emotional needs of the MS community can be met

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