Bone Cancer Research Trust

Bone Cancer Research Trust The Bone Cancer Research Trust is the leading charity dedicated to fighting primary bone cancer.

Our mission is to save lives and improve outcomes for people affected by primary bone cancer through research, information, awareness and support.

Some of our amazing London Marathon runners! 🧡
16/04/2026

Some of our amazing London Marathon runners! 🧡

16/04/2026

This week we’re saying a huge to Sophie Hay, who organised Sparkle for Support, an evening of celebration and fundraising in memory of her sister Katy.

It was an incredible night, with lots of Katy and Sophie’s friends and family coming together to mark Katy’s 16th birthday.

With a DJ on hand to make sure everyone had a brilliant time dancing the night away, there was also a raffle to boost donations, and a crisps wall, which was a touching nod to Katy’s love of crisps.

Thanks to the generosity of all the wonderful guests who attended, a phenomenal £3,085 was raised for Katy Cupcakes Crew 🧡🧁

Katy’s family set up Katy Cupcake’s Crew, a Special Fund of the Bone Cancer Research Trust, after sadly losing her to Ewing sarcoma aged just 15.

To read more about Katy’s story, please visit: https://ow.ly/J3UJ50YJW54

We'd love to see you at our next Support Get Together in Glasgow🧡🏴󠁧󠁢󠁳󠁣󠁴󠁿We're hosting a relaxed, family-friendly afterno...
15/04/2026

We'd love to see you at our next Support Get Together in Glasgow🧡🏴󠁧󠁢󠁳󠁣󠁴󠁿

We're hosting a relaxed, family-friendly afternoon of connection and peer support for all those affected by primary bone cancer or tumours.

What to expect:

- A friendly space to meet others who truly understand the ups and downs of this journey
- Time to share experiences, chat, or simply enjoy being around people who get it.
- Lunch and refreshments will also be provided!

Saturday 9th May 📅
1-5 pm
The Pyramid at Anderston, 759 Argyle St, Glasgow, G3 8DS

To learn more and sign up, click the link below: https://ow.ly/8SXQ50YIM0R

“This is a photograph of Anthony when we were in the children's hospital in Brighton. He had been so poorly with the ch...
14/04/2026

“This is a photograph of Anthony when we were in the children's hospital in Brighton. He had been so poorly with the chemotherapy and none of the anti-sickness drugs helped. He had a feeding tube inserted to keep him nourished. When this photograph was taken, he had suddenly fancied a bacon roll, and the nurses went and got one for him. We really felt that this was turning a corner in his treatment, and you can see how he felt about it by the grin on his face.

Anthony was diagnosed with osteosarcoma in his leg on 4th April 2001, aged 14. He was very ill from the chemotherapy and had the tumour removed in June of that year.

In April 2002, we discovered that the cancer had spread to Anthony's lungs, and he started treatment again. On 8th July we were told that the treatment was not working, and that we should stop the drugs.

Anthony died, aged 15. It was 8th October, exactly three months after the doctors had told us that he was terminally ill.

He will always be remembered for his sense of humour, his strength and his courage. Anthony wanted to fundraise to raise money for research, in the hope that he might be able to save other people going through what he was going to have to endure.

After his death, I continued with his fundraising and registered the Anthony Pilcher Bone Cancer Trust, a Special Fund of the Bone Cancer Research Trust. You can read more about Anthony and the fund here: https://ow.ly/yeYG50YIKZZ

Anthony wanted to ensure that at some stage in the future, children and young adults would have earlier diagnosis, better drugs and improved survival rates. I will endeavour to carry out his wishes (and mine as a founder of the charity and an active trustee) to the best possible end.”

Gill, Anthony’s mum 🧡

13/04/2026

A huge well done to our 41 amazing London Landmarks Half Marathon runners! 🏃‍♂️

You have raised a phenomenal £45,997 from all your fundraising efforts - this will go so far in supporting those affected by bone cancer 🧡

Thank you for choosing to be a part of - we are so proud to have each and every one of you!

Great news - you can now register for LLHM 2027: https://ow.ly/evai50YIh6l

We hope to see you there on April 4 ⭐

Thank you to Anthony Pujol for some of these wonderful photos 📸

We're giving a huge to Tommy, our amazing superstar fundraiser who has completed his epic challenge for Team Jesse, ...
11/04/2026

We're giving a huge to Tommy, our amazing superstar fundraiser who has completed his epic challenge for Team Jesse, a Special Fund of the Bone Cancer Research Trust 🤩

Five-year-old Tommy has been walking, running or cycling at least 5 miles a week for three months, and hosted some brilliant bake sales, all in support of his friend, Jesse. Jesse's symptoms began just before his third birthday, shortly after he was sadly diagnosed with Ewing sarcoma in his skull.

He completed his final walk at the end of March with Jesse's family to finish his challenge. We are absolutely blown away - Tommy raised a phenomenal £2,941 for Team Jesse! 🧡 Thank you so much Tommy for your amazing support!

To read more about Team Jesse, visit: https://ow.ly/ItKy50YFK3T

10/04/2026

This week’s is jam-packed with fantastic fundraising efforts 🤗

Our supporters have once again been going above and beyond! 🤩👇

- Big shoutout to Jon at Croft Pet Foods for managing to go a whole day at work without speaking! Jon raised a fantastic amount from his sponsored silence for Freddie’s Future to support his colleague Mike, who is running 3 marathons this year for Freddie🏃

- Superstar Lee Morris completed another treadmill challenge for the Rhodri Jones Memorial Appeal! Huge thanks to Lee for continuing to give up your Saturdays to raise life-changing funds 🏃

- A big thank you to Christopher Lee and Boundary Lakes Golf Club as they celebrated the end of our partnership in support of Ryan Archer, who was diagnosed and treated for Ewing sarcoma. Our Trustee Gill Johnston was delighted to attend and say thanks on behalf of everyone at BCRT 🧡

- Stewart and the brilliant team at Royal London dusted off their skeleton outfits for another hike, this time up Scafell Pike! Massive well done and huge thanks to all the team for your continued support for the Papa Fletch Memorial Fund ⛰️

- Bishop Carpenter School raised an incredible amount at their fabulous day of fundraising for Freddie’s Future! Huge thanks to everyone for taking part in the baking and bunny run to support Tracey’s London Marathon fundraising 🐰

- Shoutout to Clare for her fabulous crocheting! Clare is taking on a crochet challenge this Easter and has been making and selling all kinds of brilliant creations to raise funds for Brandon’s Legacy 🥰

- Steeper Group held a bake sale to mark our 20th anniversary and raised a fantastic amount! A huge thank you to all the talented bakers and everyone that donated🧁

- Thank you to everyone at BBQ on the Green for the incredible donation from their 2025 event to the Liz Clarke-Saul Fund. They recently presented the cheque to Liz’s parents, Lesley and Jeremy, who run the fund alongside Liz’s husband, Jack 🤗

Feeling inspired? Visit https://ow.ly/6jxH50VhaOL to request your FREE digital fundraising toolkit!

We were recently joined by a wonderful community of long term survivors and people in long term remission from primary b...
09/04/2026

We were recently joined by a wonderful community of long term survivors and people in long term remission from primary bone cancer or bone tumours for a special Get Together in Birmingham 🧡

It was lovely to welcome both familiar and new faces at this in person event and to see peer support in action throughout the day. We were delighted to be joined by MOVE Against Cancer Charity, who led a gentle movement session, and by our Director of Research, who shared an update on the Late and Long Term Effects Project, a topic especially relevant for many who are years into remission.

We rounded off the afternoon with cake and reflections to mark the Bone Cancer Research Trust’s 20th anniversary, sharing the memories and milestones that have shaped our community over the years 🧡

We’d love to see you at our next Get Together in Glasgow on May 9th for anyone affected by primary bone cancer or tumours. Find out more at: https://ow.ly/gt2t50YFKEo

For Teenage and Young Adult Cancer Awareness Month, please help raise vital awareness of the symptoms of primary bone ca...
08/04/2026

For Teenage and Young Adult Cancer Awareness Month, please help raise vital awareness of the symptoms of primary bone cancer by liking and sharing our symptoms graphic.

If you are concerned about symptoms, always seek medical advice from your doctor or GP.
For more information, please contact our Support & Information Team:
- 0800 111 4855 (Mon-Fri 9am-5pm) 📞
- support@bcrt.org.uk 📧

“This photo was taken in April 2019, eight months after Ethan was first diagnosed with Ewing sarcoma. He is pictured wit...
02/04/2026

“This photo was taken in April 2019, eight months after Ethan was first diagnosed with Ewing sarcoma. He is pictured with me, Clara, his mum; his dad, Jim; and his sister, Heidi. It was taken just after his dad ran the TCS London Marathon, raising money for the Bone Cancer Research Trust. Together, we managed to raise over £19,400.

Ethan was originally diagnosed with Ewing sarcoma in 2018 aged nine. When this photo was taken, he had already undergone months of chemotherapy, weeks of radiotherapy, and major surgery to remove three ribs, part of his lung, and his diaphragm. He received the all clear in August 2019.

In 2021, the cancer returned. Despite many more rounds of chemotherapy, radiotherapy, and further surgery, Ethan died in March 2025, two weeks before his 16th birthday.

Today would have been Ethan’s 17th birthday, and we are holding on to our precious memories with him. Ethan was such a happy, fun, and intelligent boy who made every moment with family and friends more enjoyable with his endless enthusiasm. He always remained positive and lived life to the fullest.

In Ethan’s memory, and to raise awareness and funds for Ewing sarcoma research, we set up The Ethan King Fund for Ewing Sarcoma Research, a Special Fund of the Bone Cancer Research Trust. You can read more about Ethan and the fund at: https://ow.ly/EOq150YBJkR

Thank you for taking a moment to read about our memories of Ethan and for remembering him with us on his birthday.”

Clara, Jim, Heidi and always Ethan 🧡

“The worst thing in the world happened to me, but I won’t let it win.” – Annabel As part of our 20th Anniversary Memorie...
01/04/2026

“The worst thing in the world happened to me, but I won’t let it win.” – Annabel

As part of our 20th Anniversary Memories Campaign, and in recognition of Teenage and Young Adult Cancer Awareness Month, we are giving young people with bone cancer a voice by sharing their memories.

Annabel was just 13 when she was diagnosed with osteosarcoma after experiencing pain in her knee. In an instant, her childhood shifted into a world filled with 16 rounds of chemotherapy, lung surgeries, amputation, transfusions, and countless scans.

Annabel refused to let bone cancer define her. Since her diagnosis, she has gone on to represent The England Amputee Football Association playing women’s amputee football, sign with Zebedee, perform with Sam Ryder at the Eurovision Song Contest final, and has now started her para swimming journey.

Annabel also now proudly serves as our first-ever Youth Ambassador 🧡

Her commitment to raising awareness and using her voice to support young people facing similar challenges is nothing short of extraordinary.

Read her story today: https://ow.ly/vxyk50YBEwh

Teenage and Young Adult Cancer Awareness Month starts today! 🎗️Teenagers and young adults with cancer have unique needs ...
01/04/2026

Teenage and Young Adult Cancer Awareness Month starts today! 🎗️

Teenagers and young adults with cancer have unique needs and require age-appropriate care - yet they are too often overlooked in healthcare systems designed for children or older adults.

At a time when they should be building independence, forming relationships, continuing their education, and shaping their future, they are instead facing the reality of cancer.

Speaking up for the care they need isn’t always easy - that’s why advocacy matters.

This Teenage and Young Adult Cancer Awareness Month, we’re joining forces as 22 charities with one shared mission: to make sure young people’s voices are heard and that they receive the specialist cancer care they need and deserve.

If you are a teenager or young adult who has been affected by primary bone cancer, we would be honoured to make sure your voice is heard as part of the campaign. Find out more about how you can get involved at: https://ow.ly/xOUb50YB9Ap

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Our Story

In 2004, a group of families who had lost children and young people to primary bone cancer came together. They wanted to tackle head-on the fact that there was virtually no accessible bone cancer information, and practically no funding for research into this disease.

Determined not to accept the status quo, the families pooled funds they had already raised, and together with guidance from Professor Ian Lewis (Consultant Paediatrician and Adolescent Oncologist at St James's University Hospital, Leeds) the Bone Cancer Research Trust was registered in 2006.

The first research grants were awarded in autumn 2006. The charity's original logo was designed to show that two of the most common forms of primary bone cancer - osteosarcoma and Ewing sarcoma - tend to affect children and young people, and tend to start in the long bones of the arms and legs.

Today, the Bone Cancer Research Trust funds pioneering research into all forms of primary bone cancer and ensures that information and support are available for patients of all ages whilst raising national and international awareness of this devastating disease.