Bone Cancer Research Trust

Bone Cancer Research Trust The Bone Cancer Research Trust is the leading charity dedicated to fighting primary bone cancer.

Our mission is to save lives and improve outcomes for people affected by primary bone cancer through research, information, awareness and support.

We’re incredibly excited to share that we’re going to be on BBC Radio 4! 🧡The Bone Cancer Research Trust has been select...
20/02/2026

We’re incredibly excited to share that we’re going to be on BBC Radio 4! 🧡

The Bone Cancer Research Trust has been selected for a BBC Radio 4 Appeal, broadcasting on Sunday, 15 March.

Our amazing supporter, Ben Phelps, is presenting and sharing the story of his beloved daughter, Beth.

Beth was diagnosed with Ewing sarcoma, a type of primary bone cancer, in December 2020 when she was just 11 years old. Beth endured months of treatment before being declared cancer-free.

Tragically, in June 2022, just two months after having a clear scan, Beth's cancer returned and she took her last peaceful breath in the early hours of Monday 3rd October 2022, 12 days shy of her 13th birthday.

Please support by tuning in and hearing more about Beth’s story, why Ben is supporting our work and how your donation can make a difference for future patients.

The appeal airs on Sunday 15 March at 7:54am and again at 9:25pm.

Please show your support by tuning in and making a donation. Thanks to the generosity of a Trust that supports our work, every donation will be doubled up to a total of £10,000 - meaning your gift will have twice the impact!

Learn more and donate towards the appeal today:https://ow.ly/ArH550YiMO5

Thank you.

Photo credit: Josh Winstanley, Beth’s friend.

Check out what our amazing fundraisers have been up to this 👇1. Annie set up a Bake sale to fundraise for her Prague H...
20/02/2026

Check out what our amazing fundraisers have been up to this 👇

1. Annie set up a Bake sale to fundraise for her Prague Half Marathon 2026 fundraising – the brownies look amazing! Well done Annie!

2. We’re so grateful to Rachel and Ben for hosting a fantastic fundraising night for their TCS London Marathon fundraising, in support of The Ethan King Fund for Ewing Sarcoma Research🧡

3. A huge well done and thank you to Colin Richardson for taking on the RunThrough Goodwood Running half marathon last weekend in support of the Jack Sparrow Fund!🧡

4. A huge shout out to Adam who kicked off his 5-race series by completing the Southport Mad Dog run in support of his wife Catherine! 🏃🧡

5. A huge thank you to Mission Darts, & Mike De Decker and Jim and Clara King for the cheque presentation recently, whereby Mike De Decker presented Jim and Clara with £5,000 for The Ethan King Fund for Ewing Sarcoma Research, raised from the sale of his limited-edition darts 🎯

Feeling inspired? Visit https://ow.ly/6jxH50VhaOL to request your FREE digital fundraising toolkit!

13/02/2026

Libby’s Journey of Life, a special fund of the Bone Cancer Research Trust, has just reached an incredible milestone: £100,000 raised for research into Ewing sarcoma!

Libby was diagnosed with Ewing sarcoma in 2022 when she was just 8 years old. She spent many months in hospital undergoing treatment, and it was during that time she organised a bake sale to raise funds and help make a difference. From that first fundraiser, Libby’s special fund has continued to grow. Her family, friends, and local community have shown incredible commitment to fundraising. From skydives and firewalks to quiz nights, Tesco collections, and many other events. Libby even went on to win Young Fundraiser of the Year at the Chartered Institute of Fundraising National Fundraising Awards!

We want to give a special shoutout to Circet whose ongoing support has been truly outstanding. The team at Circet not only hosted a fabulous Ball in Libby’s honour, they’ve also entered a team in London Marathon for the last couple of years, raising an extraordinary amount towards this total.

Huge thank you to everyone who has fundraised, donated, and supported Libby’s Journey of Life over the years. Every contribution, big or small, has helped support vital research for kinder treatments into Ewing sarcoma. It is only because of you that we can continue to help more children like Libby 🧡

To read more about Libby’s story and support Libby’s Journey of life visit: https://ow.ly/ykEG50YeneT

This week we wanted to say a massive thank you to all the members of the incredible Norwich Harmony, who chose Bone Canc...
12/02/2026

This week we wanted to say a massive thank you to all the members of the incredible Norwich Harmony, who chose Bone Cancer Research Trust as their Charity of the Year partner for 2025 🧡

Through their fundraising efforts over the year including concerts, quizzes and bake sales, they did a fantastic job! At a recent rehearsal, we were absolutely delighted to be presented with an amazing £3,189.74, raised through their hard work and generosity!

Senior Relationship Manager Louise Everett said:
"On behalf of Bone Cancer Research Trust, thank you so much to everyone at Norwich Harmony for your incredible support. The time, energy and creativity you’ve put into fundraising this year has been truly inspiring. Your support will help fund our vital work and makes a real difference to those affected by bone cancer".

If you’re part of a choir and would like to find out more about how you can support us, please get in touch at fundraising@bcrt.org.uk 🎶💛

We’re giving a HUGE to superstar fundraiser Tommy 🌟Five-year-old Tommy has been doing some absolutely incredible fundr...
07/02/2026

We’re giving a HUGE to superstar fundraiser Tommy 🌟

Five-year-old Tommy has been doing some absolutely incredible fundraising in support of his best friend, Jesse. As well as walking, running or cycling 5 miles a week for 3 months, Tommy also held a brilliant bake sale and raised an amazing £662 🍰👏

We are blown away by Tommy’s amazing efforts. Thanks to his determination and big heart, he has raised over £1,500 for Team Jesse so far... with two months still to go! Thank you so much, Tommy🧡

Learn more about the Team Jesse Special Fund: https://ow.ly/xSbf50Y9r9s

New funding has been awarded to Dr Mónica Pascual-García from the University of Barcelona aiming to develop effective tr...
06/02/2026

New funding has been awarded to Dr Mónica Pascual-García from the University of Barcelona aiming to develop effective treatments that help re-educate immune cells to fight osteosarcoma cells and stop them from spreading.

Recent studies show that osteosarcoma cells interact closely with immune cells, especially macrophages - a type of white blood cell that can either attack cancer cells or, sometimes, help them grow.

This project will study how osteosarcoma cells suppress the immune system by influencing macrophages, with the aim of reversing this effect.

Read more: https://ow.ly/667R50XW4mb

06/02/2026

A huge thank you to everyone who took on an Elfie Run for us in 2025/26! We’re incredibly grateful to every runner, fundraiser, supporter, and volunteer who helped make it such a success. Your support is making a truly meaningful difference🎄🏃‍♂️

A special shoutout to Sally's Unstoppable Journey, Brandon's Legacy, Charity Weatherall, and PKF-Francis Clark for your fantastic fundraising!

Your festive miles, generosity, and enthusiasm are helping to fund vital research and provide essential support and information for everyone affected by all types of primary bone cancer 🧡

If you'd like to know more about challenges you can get involved with in 2026, please visit: https://ow.ly/K1Jt50Y9oyf

A huge congratulations to Sue Collard who has been awarded a British Empire Medal (BEM) for outstanding charitable servi...
05/02/2026

A huge congratulations to Sue Collard who has been awarded a British Empire Medal (BEM) for outstanding charitable service.

Sue became a long-term supporter of the Bone Cancer Research Trust after her daughter, Mary, was diagnosed with osteosarcoma in 2011 at just 11 years old and sadly passed away six months later, on New Year’s Day 2012.

Sue and Andy, Mary’s dad alongside their family chose to act, creating The Mary Collard Tribute Fund, a Special Fund of the Bone Cancer Research Trust, so that other families might one day be spared the same heartbreak.

Reflecting on her BEM, Sue shared: “It’s an absolute honour to have been awarded an BEM. Everything Andy and I have achieved through Mary’s Fund has only been made possible because of the incredible support from our community. By always making sure Mary is remembered, which was her wish, we’ve also been able to help other families.”

Over 14 years on, Mary’s Fund has now raised an incredible £864,793. Sue’s BEM recognises not only this remarkable achievement, but also the strength, kindness and hope she continues to share with so many.

Read more: https://ow.ly/ptKM50Y85hq

04/02/2026

This , we are proud to announce our first research funding call for 2026.

This new call will provide funding of up to £650,000 to support an Early Career Fellowship - a clear sign of our commitment to supporting the next generation of researchers dedicated to improving outcomes for primary bone cancer patients.

This will be the second Early Career Fellowship the Bone Cancer Research Trust has committed to, and we are incredibly grateful to everyone who has fundraised and supported us to make this possible. It is thanks to you that talented researchers can pursue vital work that brings hope, improved treatments and ultimately will change the lives of patients and families facing bone cancer.

Here is Dr Lucia Cottone, who was awarded our first-ever Early Research Fellowship, sharing more about the difference this funding has made to her work and why grants like this matter.

For more information, please visit: https://ow.ly/akLc50Y8S21

The Support & Information team were delighted to attend the NWCTYA Conference 2026 (North West Children & TYA Cancer Con...
04/02/2026

The Support & Information team were delighted to attend the NWCTYA Conference 2026 (North West Children & TYA Cancer Conference) yesterday, for the second year in a row – this time exhibiting as well as listening to vital talks and updates. This event brings together healthcare teams, charities and partners focused on improving cancer care across the region, and beyond.

With World Cancer Day today and the National Cancer Plan for England being published today, we heard important previews and insights. The government has announced an annual £10 million fund to help cover travel costs for families of children and young people with cancer, assisting families to receive the specialist care they need.

Expanding genomic testing and personalised treatment is a key priority in discussions around the new National Cancer Plan. We also heard positive on-the-ground updates from speakers on increased sample collection from Teenage and Young Adult cancer patients in the North West. The emerging cancer plan also places a strong focus on research and innovation for rarer cancers and improving children’s access to clinical trials, all vital for those facing a primary bone cancer diagnosis.

It was inspiring to hear about the great work across the NHS and Paediatric Oncology Shared Care Units to provide holistic, age-appropriate care close to home, and to hear from a reflective and insightful panel of young people affected by cancer. We made many connections with cancer healthcare professionals and shared details of our support service wide and far - including our helpline, Financial Assistance Grants, information resources and peer support.

Find out more about our Support and Information Service: https://ow.ly/uYuE50Y8RSh

“We’re pleased to see in the National Cancer Plan for England a specific focus on rare and less common cancers. We under...
04/02/2026

“We’re pleased to see in the National Cancer Plan for England a specific focus on rare and less common cancers. We understand there is still more to be done, and the plans are to be implemented but we have been listened too, and this is a fantastic step forward, one that our community has helped to make happen.” - Will Burchell, Chief Executive

Today on the Department of Health and Social Care - DHSC have published the National Cancer Plan, an encouraging step in the right direction. We will continue working with the bone cancer community, alongside other cancer charities and the government, to drive meaningful change for everyone affected by bone cancer 🧡

Thank you to everyone who helped shape the new plan. We've included some key points in this post and we’ll share further updates soon, including what this means for the bone cancer community.

Today is , a day where we come together to raise awareness worldwide of the impact cancer has. Each year, thousands of ...
04/02/2026

Today is , a day where we come together to raise awareness worldwide of the impact cancer has.

Each year, thousands of people are diagnosed with primary bone cancer around the world, and their voices deserve to be heard 🧡

Please share your story and and connect with others in the comments.

We'd really appreciate you sharing this post to raise more awareness and inspire positive change.

Address

Leeds

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+441132585934

Website

Alerts

Be the first to know and let us send you an email when Bone Cancer Research Trust posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Practice

Send a message to Bone Cancer Research Trust:

Shortcuts

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram

Category

Our Story

In 2004, a group of families who had lost children and young people to primary bone cancer came together. They wanted to tackle head-on the fact that there was virtually no accessible bone cancer information, and practically no funding for research into this disease.

Determined not to accept the status quo, the families pooled funds they had already raised, and together with guidance from Professor Ian Lewis (Consultant Paediatrician and Adolescent Oncologist at St James's University Hospital, Leeds) the Bone Cancer Research Trust was registered in 2006.

The first research grants were awarded in autumn 2006. The charity's original logo was designed to show that two of the most common forms of primary bone cancer - osteosarcoma and Ewing sarcoma - tend to affect children and young people, and tend to start in the long bones of the arms and legs.

Today, the Bone Cancer Research Trust funds pioneering research into all forms of primary bone cancer and ensures that information and support are available for patients of all ages whilst raising national and international awareness of this devastating disease.