Bone Cancer Research Trust

Bone Cancer Research Trust The Bone Cancer Research Trust is the leading charity dedicated to fighting primary bone cancer.

Our mission is to save lives and improve outcomes for people affected by primary bone cancer through research, information, awareness and support.

Your voice matters! We're gathering feedback on our annual patient conference, the Bone Cancer Conference, to ensure our...
16/11/2025

Your voice matters!

We're gathering feedback on our annual patient conference, the Bone Cancer Conference, to ensure our support events meet the needs of our community.

Whether you have attended, heard about it but felt it wasn't right for you or have never attended, we are keen to hear your views on what our peer-to-peer support should look like.

If you haven't provided feedback before, please take our short survey and help make our events more accessible, relevant, and supportive for everyone affected by primary bone cancer 🧡

Visit: https://ow.ly/gFub50WR1zU

Survey closes on Sunday 23rd November 2025 at 11:59pm.

This survey also mentions some of our other peer support events, including Get Togethers and Virtual Cuppas ☕

To find out more or come along to one of our in-person or online sessions, click here: https://ow.ly/ngWn50WRVMZ

A HUGE thank you to everyone who danced the night away with us at this year's   💃It was a truly fantastic night with so ...
16/11/2025

A HUGE thank you to everyone who danced the night away with us at this year's 💃

It was a truly fantastic night with so much love and generosity in the room!

With your support we have raised an incredible £100,500 towards our lifesaving work. Thank you! 🧡

Make sure to tag us in your photos from the night!

Thank you to our wonderful sponsors for supporting this event: innovate-pdmf.co.uk, wwsa.co.uk, Stonebridge Homes, Smith Brothers Stores LTD, Steeper Group & Evoke Classics.

Our fundraising total for the night- £100,500 🧡🧡👏Thank you all so much, to everyone that attended, donated and supports ...
16/11/2025

Our fundraising total for the night- £100,500 🧡🧡👏

Thank you all so much, to everyone that attended, donated and supports our vital work!

We couldn’t be more grateful 🧡

15/11/2025

It’s time for the 🧡🍁

A huge welcome to our sponsors: innovate and WWSA to our VIP event!

We are joined by amazing silhouette artist and the mystifying magician, Matt ✨

The   is tomorrow and we are so excited! 🪩Are you joining us? Let us know in the comments 🧡If you're unable to make it, ...
14/11/2025

The is tomorrow and we are so excited! 🪩

Are you joining us? Let us know in the comments 🧡

If you're unable to make it, you can still add to our grand fundraising total by making a donation or bidding on prizes in our silent auction. Just follow this link: thebonecancerball.co.uk

We would like to say a huge thank you to our our sponsors for making this event possible: - innovate-pdmf.co.uk, wwsa.co.uk, Stonebridge Homes, Smith Brothers Stores LTD, Steeper Group & Evoke Classics.

ONLY FIVE PLACES LEFT! Kick off your 2026 running season with a smile in the UK's 'Happiest Half marathon' - Brighton Ha...
14/11/2025

ONLY FIVE PLACES LEFT!

Kick off your 2026 running season with a smile in the UK's 'Happiest Half marathon' - Brighton Half Marathon

This iconic race offers everything you could want from a half marathon: a fast, flat course that’s perfect for chasing a PB, a stunning seaside route with around 95% of the course running alongside the sea, and views of some of Brighton’s best-loved landmarks, including the Brighton Pier, Royal Pavilion, and Hove’s colourful beach huts ☀️

Date: 1st March 2026 📅
Location: Brighton 📍
Distance: 13.1 Miles 🏃

Join our incredible community and help fund vital research today for bone cancer patients! 🧡

https://ow.ly/Ozi350Xr87L

13/11/2025

We’re giving a huge to Merryweathers Estate & Letting Agents for their fantastic Charity Golf Day at Doncaster Town Moor Golf Club! ⛳

The team raised a truly fantastic £2,117 for the Alexander Albiston Tribute Fund! Special thanks to all the amazing sponsors listed below and everybody who took part on the day and donated so generously.

We simply couldn’t continue our life-saving research without the support of wonderful people like you 🧡

Feeling inspired? Visit https://ow.ly/wvI250VxWSx to request your FREE digital fundraising pack!

The Press Box - Sports Bar & Grill - Rotherham, PC KELLY, SQP Live Ltd, Vern Allen Group Limited, Seasons Restaurant, EI Group, Barrel & Bean - Brecks, In the Moment Photography Studio

This week, we're in Florida for the Connective Tissue Oncology Society (CTOS) annual meeting 🌴Over the next three days, ...
12/11/2025

This week, we're in Florida for the Connective Tissue Oncology Society (CTOS) annual meeting 🌴

Over the next three days, world-leading experts in bone cancer and sarcoma will come together to share research, innovation, and hope.

Being here means that the primary bone cancer community has a voice amongst global specialists, ensuring that patients and their loved ones remain at the heart of scientific progress 🔬

We're here to learn, collaborate and advocate - bringing the latest insights to our community 🧡

We look forward to sharing updates and reflections soon!

This week’s   goes to Peter and Harry Franklin for organising the Mothecombe Fun Run and barbecue, and to all the fantas...
10/11/2025

This week’s goes to Peter and Harry Franklin for organising the Mothecombe Fun Run and barbecue, and to all the fantastic runners who took part.

The event was an 8-mile run through the beautiful Flete Estate, with runners starting by crossing the Erme estuary (at low tide, but still with wet feet!) and finishing with a well-deserved barbecue🏃 🍔

Peter was diagnosed with metastatic Ewing sarcoma in 2007 when he was just 23 years old. Following a recurrence shortly after completing his treatment, Peter enrolled in a clinical trial and was one of the few patients to experience a positive response.

Ever since then, Peter, his family, and friends have fundraised for the Bone Cancer Research Trust to help fund research and support those affected by primary bone cancer.

Thank you so much 🧡

Feeling inspired? Head over to our website to request your FREE fundraising pack: https://ow.ly/YYS350XkNZb

We have charity places available for the 2026 Irish Life Dublin Marathon! 🚶The public ballot opens 12 November, with res...
09/11/2025

We have charity places available for the 2026 Irish Life Dublin Marathon! 🚶

The public ballot opens 12 November, with results announced later in the month, but you don’t need to wait to get started!

Why join us?
- Unlimited support from 🧡
- Experience a warm Irish welcome running 26.2 miles through Ireland’s capital 🇮🇪
- Help fund vital research and support for those affected by primary bone cancer

Apply today: https://ow.ly/bRqt50Xouhv

Congratulations to Georgie, who was crowned Good Morning Britain's Young Fundraiser of the Year at The Pride of Britain ...
08/11/2025

Congratulations to Georgie, who was crowned Good Morning Britain's Young Fundraiser of the Year at The Pride of Britain Awards ⭐

After being diagnosed with Ewing sarcoma at 15 years old following intense leg pain, Georgie underwent 54 rounds of treatment which included chemotherapy and radiotherapy.

Determined to make a difference and support people like her, Georgie gave out cards to her fellow patients at the Beaston West of Scotland Cancer centre - affectionately known as ‘pocket hugs.’

She went on to fundraise over £55,000 and even met with Prime Minister Sir Keir Starmer to advocate for bone cancer patients and discuss the Rare Cancers Bill, which the Bone Cancer Research Trust is proudly supporting.

Read more about Georgie’s achievements: https://ow.ly/O2ve50XnC6y

NHS Greater Glasgow and Clyde

Teenage cancer survivor who has raised more than £55,000 for others meets her hero Margot Robbie and gets another big surprise

This week, we were proud to join patients, policymakers and members of the Cancer52 community in Westminster 💼The event ...
07/11/2025

This week, we were proud to join patients, policymakers and members of the Cancer52 community in Westminster 💼

The event provided a valuable opportunity to highlight the work of cancer charities across a range of projects, enabling us to learn from each other and strengthen our collective efforts to improve outcomes for patients.

We were honoured to present on the National Sarcoma Awareness Project and our long-term and late effects project, showcasing the awareness work we're committed to delivering for our community 🧡

Thank you to Kyowa Kirin International for supporting this important event.

Address

Leeds

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+441132585934

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Our Story

In 2004, a group of families who had lost children and young people to primary bone cancer came together. They wanted to tackle head-on the fact that there was virtually no accessible bone cancer information, and practically no funding for research into this disease.

Determined not to accept the status quo, the families pooled funds they had already raised, and together with guidance from Professor Ian Lewis (Consultant Paediatrician and Adolescent Oncologist at St James's University Hospital, Leeds) the Bone Cancer Research Trust was registered in 2006.

The first research grants were awarded in autumn 2006. The charity's original logo was designed to show that two of the most common forms of primary bone cancer - osteosarcoma and Ewing sarcoma - tend to affect children and young people, and tend to start in the long bones of the arms and legs.

Today, the Bone Cancer Research Trust funds pioneering research into all forms of primary bone cancer and ensures that information and support are available for patients of all ages whilst raising national and international awareness of this devastating disease.