TYAC: Teenagers and Young Adults with Cancer

TYAC: Teenagers and Young Adults with Cancer Funding research and providing support for teenagers and young adults with cancer

05/03/2025

We have big news! 📣

We're thrilled to announce Teenagers and Young Adults with Cancer (TYAC) and Children’s Cancer and Leukaemia Group (CCLG) have merged their memberships to form a new professional association.

Introducing CCLG: The Children & Young People’s Cancer Association.

As part of this exciting new chapter, we've launched a new website and brand identity that reflects our commitment to funding and leading pioneering research, providing trusted information and guidance for children and young people with cancer and their families, and bringing together professionals to improve treatment, care, and outcomes.

Stay connected with us for the latest updates and important information. Follow CCLG: The Children & Young People’s Cancer Association to stay informed and join us on our mission to create a brighter future for children and young people with cancer.

To learn more, head to our brand-new website: www.cclg.org.uk

Could you share your story? We're looking for stories from teenagers and young adults aged 13-24 who've been affected by...
28/01/2025

Could you share your story? We're looking for stories from teenagers and young adults aged 13-24 who've been affected by cancer. Your experiences can help raise awareness of cancer and support the work of CCLG.

Many people find that reading about others who have gone through similar experiences is a valuable source of support 💛

If you're interested in sharing your story, please fill out our online form at https://bit.ly/3OiyI7V

Your Voice Matters 📣✨Are you 16+ and were treated for cancer in April, May, or June 2024?Got thoughts on what the NHS is...
18/11/2024

Your Voice Matters 📣✨

Are you 16+ and were treated for cancer in April, May, or June 2024?

Got thoughts on what the NHS is doing right - or what needs to change?

If you've been invited to take part in the Cancer Patient Experience Survey, this is your chance to share your thoughts and make a real difference in improving cancer care for young people like you.

Look out for the survey in the post, and if you're eligible, have your say at www.ncpes.co.uk

Together, we can break down barriers and fight for change for all teenagers and young adults with cancer.

🌟 A huge thank you to our amazing supporter, Dean! 🌟Dean recently completed the Scottish Coast to Coast Cycling Challeng...
24/06/2024

🌟 A huge thank you to our amazing supporter, Dean! 🌟

Dean recently completed the Scottish Coast to Coast Cycling Challenge, pedalling an incredible 125 miles from Annan to Edinburgh in memory of his friend, Demi.

His inspiring journey raised an amazing £900 for Teenagers and Young Adults with Cancer (TYAC) - every penny raised will help support vital research into teenage and young adult cancers.

Well done, Dean! 👏

👏🏼🎉 A heartfelt thank you and congratulations to our incredible TYAC: Teenagers and Young Adults with Cancer supporters,...
15/05/2024

👏🏼🎉 A heartfelt thank you and congratulations to our incredible TYAC: Teenagers and Young Adults with Cancer supporters, Colin and Jack, for their outstanding efforts! Last month, Colin ran the Moray Marathon in an impressive 3 hours 57 minutes, while Jack conquered the West Highland Way, clocking a cumulative 22 hours 45 minutes of cycling.

Your dedication and commitment are truly inspiring. Not only did they achieve remarkable personal achievements, but they also raised over £7000 to support vital research into teenage and young people’s cancers.

Round of applause for their amazing achievements. Well done, Colin and Jack! 💜

Today is World Ovarian Cancer Day! Today, we're raising awareness of the signs and symptoms to ensure early diagnosis. D...
08/05/2024

Today is World Ovarian Cancer Day! Today, we're raising awareness of the signs and symptoms to ensure early diagnosis. Did you know ovarian cancer is one of the most common cancers in young women aged 15-24? 🎗️

There are three types of ovarian cancer: germ cell tumours, epithelial tumours, and stromal cell tumours, with germ cell tumours being the most common in teenagers and young women.

Recognising the signs and symptoms is crucial:

- Pain or swelling in your abdomen
- Feeling of fullness or bloating
- Irregular periods
- Increased need to urinate

If you're experiencing any of these symptoms, don't hesitate to see your GP. They can provide reassurance or arrange further tests if needed.

Early detection saves lives. Help us raise as much awareness as possible and learn more information at: https://bit.ly/41zRXxn

As Teenage and Young Adult Cancer Awareness Month comes to an end, we'd like to thank everyone, from partner charities t...
30/04/2024

As Teenage and Young Adult Cancer Awareness Month comes to an end, we'd like to thank everyone, from partner charities to young people who have helped raise vital awareness of teenage and young adult cancer 👏🏻

may be over, but here at TYAC and Children's Cancer and Leukaemia Group - CCLG, we will continue working hard to make sure we can shape a future where all teens and young adults with cancer survive and live the life they deserve 💛

On Christmas Eve 2021, Cerys was diagnosed with Hodgkin lymphoma aged 17 years old. This Teenage and Young Adult Cancer ...
30/04/2024

On Christmas Eve 2021, Cerys was diagnosed with Hodgkin lymphoma aged 17 years old. This Teenage and Young Adult Cancer Awareness Month, she shares her story to help empower young people around healthcare.

Cerys said: "I spent the Christmas period trying to let the shock settle in. After nearly two years in remission, I am finally at peace with the fact that I had cancer and feel like I can be open about it.

In the lead up to my diagnosis, I was a shell of myself. My hair had started falling out from how unwell I was, and I barely left my room because I was so utterly exhausted. It was after I found a lump on my neck we decided to go to the GP.

Going to the doctor to get my symptoms checked was the best thing I could have done, but I can't lie, I resisted, and it took time and convincing from my friends as they urged me to go, but I didn't think it was anything serious.

Looking back, my health naivety was the main reason for not calling my GP sooner. Now, I get any symptoms or issues checked instantly and this gives me instant peace of mind. There's never any harm in speaking to your GP, it can only do you good.

The fear of a cancer diagnosis that young people in particular have is serious but this should not stop you from speaking up and booking that appointment. The amount of support throughout that you will receive from different organisations after a diagnosis and support from nurses, other patients, friends and family is unlike anything I have ever experienced.

The process is daunting, but even if you don't have cancer after getting checked, your symptoms could be diagnosed as something else and that will help your quality of life. Speak up for yourself and don't ever feel like you don't have a voice!"

Find out more about the signs of symptoms of cancer in teens and young adults at: https://bit.ly/40x2OXO

30/04/2024

In 2022, Chloé was diagnosed with stage 3 germ-cell Ovarian cancer at just 24 years old.

This Teenage and Young Adult Cancer Awareness Month, Chloé sheds light on the importance of seeking medical help for any worries you may have and offers tips on getting the most from your doctor appointments and how to make visiting the doctor stress-free 💛

Signs and symptoms of Ovarian cancer can include:
- pain or swelling in your tummy (abdomen)
- a feeling of fullness or bloating in your tummy
- irregular periods
- needing to urinate more often

Find out more information and support at: https://bit.ly/3v9pB2l

Meet Dr. Morven Brown, a health psychologist and childhood cancer researcher at Newcastle University 🎓 At 23, she was di...
28/04/2024

Meet Dr. Morven Brown, a health psychologist and childhood cancer researcher at Newcastle University 🎓 At 23, she was diagnosed with Hodgkin lymphoma. This Teenage and Young Adult Cancer Awareness Month, she shares how her own experiences have influenced her work and interests. She said:

“I was diagnosed with Hodgkin lymphoma after finding a lump on my neck. I noticed it when I was driving back to Glasgow, where I was in my third year of university studying psychology. I was fortunate in the sense that my diagnosis was quite straightforward, and everything moved quite fast. There were no long waits for tests, and I also hadn’t noticed any other symptoms such as night sweats or weight loss.

As my cancer was caught early – being diagnosed stage 2a - my treatment wasn’t as intense as it could have been if discovered later.

What happens after cancer treatment interests me greatly, and a lot of my research focuses on survivorship and how we can help those who have had cancer as a young person have as fulfilling a life as possible as an adult. It was only through my work in cancer research that I became aware that, as a young cancer survivor, I was at a high risk of heart problems because of the chemotherapy I received.

Children’s Cancer and Leukaemia Group (CCLG) funded one of our projects - BEing Active after ChildhOod caNcer’ (BEACON) - which looked at how we could develop an intervention (a package of activities and strategies) to support and empower survivors to be more physically active which in turn would benefit their health.

I'm extremely proud of what I do, and I feel very privileged that people choose to talk to me about their lives.”

Read Dr. Morven Brown, full story at: https://bit.ly/3JVJm17

Leukaemia is a cancer of the white blood cells. The most common types of leukaemia in teenagers and young adults are acu...
27/04/2024

Leukaemia is a cancer of the white blood cells. The most common types of leukaemia in teenagers and young adults are acute lymphoblastic leukaemia (ALL) and acute myeloid leukaemia (AML). Symptoms can include:

🥱 Looking paler than usual, feeling tired or becoming breathless easily.
😣 Having regular headaches or feeling generally unwell
🩸 Bruising or bleeding more easily, without any obvious cause
😖 Having lots of infections
🦴 Having painful joints and bones
😫 Having swollen glands
😅 Having a fever and sweats

If you think you have any of the symptoms of ALL, you should go to your GP. They will talk to you about your symptoms, examine you and arrange tests or refer you to a specialist. Remember that other things may be causing the symptoms. But it is important to get checked if you are worried.

Find out more at: https://bit.ly/43fAonM

Last week, we caught up with one of TYAC's first funded researchers Dr Nicola Hughes! 🔬We wanted to find out why she sta...
25/04/2024

Last week, we caught up with one of TYAC's first funded researchers Dr Nicola Hughes! 🔬

We wanted to find out why she started researching cancer in young people, and what she loves about her job 💛 Nicola said:

"From the research side, I really enjoy being part of the fantastic research community that surrounds TYA cancer. Everyone has the same aim of improving cancer care and outcomes for our patients. It's really exciting to see new research findings emerge, both from other research groups and from our own findings."

Find out more about Nicola and her research in our blog at: https://bit.ly/49Ry7kO

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