Fibromyalgia Friends Together

17/04/2026

We have launched a Youtube Channel
And a quick note to tell you about our next in person meeting on Monday..

We are thrilled to announce the launch of the Fibromyalgia Friends Together YouTube channel! 🎉
In our very first video, our Chair, Mark Farmer, provides a comprehensive overview answering the crucial question: What is Fibromyalgia? Whether you are living with the condition, seeking a diagnosis, or supporting a loved one, this video breaks down everything you need to know about this often misunderstood and invisible illness.

Key topics briefly covered in our first video:

How fibromyalgia affects the nervous system and processes pain.
The prevalence of the condition and common misdiagnoses.
A closer look at widespread pain and extreme tiredness.
An insight into understanding 'Fibro Fog' and cognitive difficulties.
Why having an open conversation with your GP is essential.
📺 Watch the full video here: https://www.youtube.com/watch?v=J4_m7LbS0SI

Over the coming months will be adding more content so do not forget to subscribe to our new channel to help support our community! 💜

Our next in person meeting is this coming Monday
The next meeting of Fibromyalgia Friends Together is taking place on Monday 20th April 2026 from 12pm to 3pm.

We will be hearing from our Communications Officer, Nadia, who is going to be undertaking research with Loughborough University around Fibromyalgia. She will be telling us all about the research and how we can get involved.

There will be basic refreshments available for purchase before the meeting starts. Please note - you can access our room, from 12pm until 3pm. We will hold our main meeting at the usual time of 1.15pm.

Here is the venue address:

Bright Hope in North West Leicestershire
Bright Hope House
Talbot Lane
Swannington
Leicestershire
LE67 8QT

Google maps link: https://www.google.com/maps?ll=52.751526,-1.379759&z=14&t=m&hl=en&gl=US&mapclient=embed&cid=11392077805485891156

what3words: ///trying.items.fuses

Please call: 07825 610925 if there are any problems finding us.

Look out for people wearing lanyards - if you need any support joining us for the first time or with anything else on the day they can help!

3 likes, 1 comment. "What is fibromyalgia? Fibromyalgia symptoms explained"

27/03/2026

It’s exhausting explaining your illness.
It’s tiring trying to make others understand what can’t be seen.

You don’t owe everyone your story.
Your experience is valid.

If you’ve ever felt misunderstood, please know that you are not alone. 💜

Leave a 💜 if anyone has ever told you that you "don't look sick." Lets fight the stigma together!

25/03/2026

Living with Fibromyalgia can make sleep unpredictable. Gentle night time routines can help.

Share below helps you wind down 👇🏻

23/03/2026

Chronic illness doesn’t always show on the outside.

Kindness costs nothing. 💜

22/03/2026

What would you tell someone who’s just been diagnosed with Fibromyalgia? Leave some advice, tips and kind words in the comments below 👇

Let people their not alone with this condition and that there is support and understanding out there 🥰

If you’d like to connect with others, get advice, and access support and underfunding, then join our Facebook group today! You can join here: Fibromyalgia Friends Together 💜

Newly diagnosed? Please see our website for support and information here: https://fibro.org.uk/get-help/

20/03/2026

Flare days can feel endless.
The pain feels louder. The fatigue feels deeper.

But this moment will pass.
Be gentle with yourself today, because rest is productive too.

If today is a flare day, we’re sitting with you. 💜

Comment “rest” if that’s your focus today.

18/03/2026

Imagine your energy as a bank account.
Every task is a withdrawal.
Rest is a deposit.

Protect your balance 💜

16/03/2026

What looks like “resting” is often survival.
Pacing isn’t laziness - it’s self-management. 💜

13/03/2026

Cancelling plans can bring guilt.
But protecting your energy is not selfish - it’s necessary.

Listening to your body is an act of courage, not weakness.

If you’ve had to cancel something recently, you’re not alone. We understand here. 💜

Drop a 🌿 if you’re choosing rest this weekend.

11/03/2026

Mornings can be one of the hardest times with fibromyalgia, but a gentle start can reduce stiffness and shock to the system.

Do mornings feel harder for you?

10/03/2026

Feeling alone with fibro? You don’t have to be.

Join our monthly Fibromyalgia Friends Together support group.

The next group is being held on Monday 16th March 12pm - 3pm at Bright Hope House.

You will find: Friendly faces. No pressure. Just understanding. 💜