The Patient Experience

15/09/2023

My name is Isobel Knight and I write on the topics of narrative medicine, EDS, HSD, Hypermobility and more.

About Isobel May 2023 – Isobel is donating 10% for her book sales to the Society for Awareness month https://www.ehlers-danlos.com/sponsored-resources/ Isobel Knight (born 1974)- originally comes from Oxford and is an established international author, having now published five books, ‘...

18/08/2023

I had a very rude doctor emailing. Their tone was patronizing and it made me feel small. That's why I write. To advocate.

10/08/2023

Please find the front cover of 'The Patient Experience due out SOON - please share!

10/06/2023

Questions for Doctors when they come round (inhospital)

10/06/2023

This is a presentation I gave to medical professionals a few years ago 'The Patient Journey'

Isobel Knight, Author & Researcher, shares her personal journey to reaching a diagnosis and management plan for Hypermobility. From initial consultations whe...

03/06/2023

Being the nice and generous person that I am, I thought I would share with you a good portion of Chapter 13, "Crisis, Flare-ups and Management" - but have omitted Management for now as I have already given you a lot of the chapter - 80% - we'll discuss management over the week. This is from Knight (2013) 'Managing Ehlers-Danlos (Type III) Hypermobility Syndrome' - Working with Complex Patients, pp107-112. The last page is the diagram. I hope you can follow it, and it is useful. What do you think? You may share the post, providing that you reference it to me. Isobel Knight

29/05/2023

I have just completed my latest book, 'The Patient Experience' - which will be out later this year. A proud moment.

21/03/2023

A must read book before The Patient Experience

The Body Nobody Believed: a book that chronicles the author's medical experiences and details numerous injuries, and health complications.
A comforting and informational read for everyone, from patients to medical personnel. Grab the book from Amazon.
https://amzn.to/3B95CAC

17/03/2023

You need to read this book first!

A personal account of Isobel Knight and her encounters with multiple health conditions.
A must-read if you have any mild to severe health problems or if you're a medical professional who really cares for their patients.
Get the book from Amazon.
https://amzn.to/3B95CAC

07/03/2023

If a doctor asked you how you felt about tiredness or fatigue, would this type of scale help you to answer?

Tiredness/fatigue Scale

16/02/2023

Folks who have Autism Spectrum Disorder ASD or ADHD - or DCD - are there any special requests you would have as an inpatient for a hospital admission - this to help me for my latest book, 'The Patient Experience' - Anything else that I should be aware of for consultant's appointments? Thank you!

18/01/2023

Have you ever written a care plan, or considered what should be on it? I will be dealing with this in the new book, 'The Patient Experience