Caring for all affected by this rare, complex and lifelong condition.
13/02/2026
Thank you so much to Adam Hussain who is challenging himself to run or walk 5K every single day this month and next month, to raise funds and awareness for Behçet's UK! 🤩🙌
Adam says he is undertaking this challenge because his father and sister suffer from Behçet's, and he has seen the impact it has on them and their everyday lives.
Donate to Adam's page:
Help Adam Hussain raise money to support Behcet's UK
11/02/2026
Trustee Rachael Humphreys is hosting another Zoom support group meeting for those affected by Behçet’s in Wales on Saturday 28 February 2026 from 10:00am-12:00pm.
The group is open to anyone aged 18 or over living in Wales who is affected by Behçet’s.
Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Rachael will guide the discussion based on your input.
Important: stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.
If you are interested in joining this meeting, and you're not yet on the mailing list, please visit our Behçet’s Support Group page and complete the online registration form by 11:30am on Friday 27 February 2026. https://behcetsuk.org/support-groups/
[Image Description: Photo shows a white teacup and saucer on a table next to a laptop and notepad. On the photo it says “Behçet’s Wales Support Group Meeting. Saturday 28 February 2026 at 10am - 12pm via Zoom”].
10/02/2026
Don't forget, Behçet’s UK Chair, Tony Thornburn, is hosting a Men’s Behçet’s Support Group meeting via Zoom next week on Tuesday 17 February 2026, 7:30pm - 9:00pm. This group is for any men affected by Behçet’s living in the UK.
Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Tony will guide the discussion based on your input.
Note: We do not offer medical advice. This meeting is to signpost you to information available online and discuss what works for others to encourage conversations with your own medical team about symptoms and treatment. Any discussions are anecdotal and must be treated as such.
If you are interested in joining this meeting, and you're not yet on the mailing list, please visit our Behçet’s Support Group page and complete the online registration form by 11:30am on Tuesday 17 February 2026. https://behcetsuk.org/support-groups/
[Image Description: Close-up photo of a man holding a cup of coffee whilst on his laptop. Text says 'Men's Behçet's Support Group Meeting. Tuesday 17 February 2026 7:30pm - 9:00pm via Zoom. The Behçet's UK logo is displayed in the corner'].
10/02/2026
It's not long until this year's , which will take place on Saturday 28 February 2026. The theme for this year is Equity.
For people with rare diseases, such as Behçet’s, equity means having social opportunities, non-discrimination in education and work, and fair access to health, social care, diagnosis and treatment.
[Image Description: On a green, blue and purple coloured background, the logos of Rare Disease Day, Genetic Alliance UK, and Rare Disease UK are displayed at the top of the image. Text in the centre of the image reads "WE SUPPORT RARE DISEASE DAY". Text at the bottom reads "28 February 2026. geneticalliance.org.uk/rdd26"].
09/02/2026
Volunteer Sarah McAllister is hosting a support group meeting on Tuesday 24 February 2026 from 7:30pm – 9:00pm for anyone aged 18 or over living in England who is affected by Behçet’s.
Meeting topic: General Support
This session will be a general support group meeting, where everyone can chat and ask questions. Sarah will guide the discussion based on your input.
Important: stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.
If you are interested in joining this meeting, and if you're not already on the mailing list, please visit our Behçet’s Support Group page and complete the online registration form by 11:30 am on Tuesday 24 February 2026. https://behcetsuk.org/support-groups/
[Image Description: Photo shows the arms and hands of a person using the touchpad on a laptop, which is on a table. Text reads "Behçet’s England Support Group Meeting. Tuesday 24 February 2026 at 7.30pm - 9:00pm via Zoom”. The Behçet's UK logo is displayed in the corner].
09/02/2026
📢 SUPPORT GROUP MEETING THIS EVENING 📢
Don't forget, trustee Fionnuala Mc Kinley is hosting an online support group meeting for spouses and partners of people living with Behçet’s this evening, Monday 9 February 2026, 7:00pm - 8:30pm.
“When a partner develops a long-term chronic illness like Behçet’s, it affects more than just the person living with the condition. Family, friends, and co-workers may feel the impact, but often the greatest effect is on their spouse or partner.”
Fionnuala McKinley, Behçet’s UK Trustee
This group provides a safe and supportive space for anyone living in the UK whose spouse or partner has Behçet’s to share their thoughts and connect with others in similar situations who understand what they’re going through.
The group is open to people living in the UK (18+) whose spouse or partner has been diagnosed with, or is seeking a diagnosis of, Behçet’s.
Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Fionnuala will guide the discussion based on your input.
If you are interested in joining this meeting, and you're not yet on the mailing list, please visit our Behçet’s Support Group page and complete the online registration form by 11:30am today, Monday 9 February 2026. https://behcetsuk.org/support-groups/
[Image Description: Close-up photo of a cup of coffee next to a laptop. Text reads 'Support Group Meeting for Spouses/Partners of People with Behçet's. Monday 9 February 2026 at 7pm - 8:30pm via Zoom'].
09/02/2026
📢 SUPPORT GROUP MEETING AT LUNCHTIME TODAY 📢
Don't forget, volunteer Sarah McAllister is hosting another online lunchtime support group meeting on Zoom today, Monday 9 February 2026, from 12:00pm (midday) – 1:30pm for anyone aged 18 or over and living in England who is affected by Behçet’s.
Meeting topic: General Support
This session will be a general support group meeting, where everyone can chat and ask questions. Sarah will guide the discussion based on your input.
Note: We do not offer medical advice. This meeting is to signpost you to information available online and discuss what works for others to encourage conversations with your own medical team about symptoms and treatment. Any discussions are anecdotal and must be treated as such.
If you are interested in joining this meeting, and you're not yet on the mailing list, please visit our Behçet’s Support Group page and complete the online registration form by 11:00am today, Monday 9 February 2026. https://behcetsuk.org/support-groups/
[Image Description: Photo shows a cup of black coffee next to a laptop on a table. Text says “Behçet’s England Lunchtime Support Group Meeting. Monday 9 February 2026 at 12:00pm - 1:30pm via Zoom. The Behçet's UK logo is displayed in the corner”].
05/02/2026
Nominations for the 2026 Members Award are now open! ⭐️
The Behçet’s UK Members Award was created to recognise:
The contribution of individuals who, have been instrumental in supporting, and improving the quality of life, independence, and dignity of anyone in the Behçet’s UK Community.
[Image Description: Close-up photo of red stage curtains. The Behçet's UK logo is displayed on top of the photo. Text reads 'Members Award 2026. YOUR nomination is...?”].
02/02/2026
Don't forget, trustee Fionnuala Mc Kinley is hosting an online support group meeting for spouses and partners of people living with Behçet’s next week on Monday 9 February 2026, 7:00pm - 8:30pm.
“When a partner develops a long-term chronic illness like Behçet’s, it affects more than just the person living with the condition. Family, friends, and co-workers may feel the impact, but often the greatest effect is on their spouse or partner.”
Fionnuala McKinley, Behçet’s UK Trustee
This group provides a safe and supportive space for anyone living in the UK whose spouse or partner has Behçet’s to share their thoughts and connect with others in similar situations who understand what they’re going through.
The group is open to people living in the UK (18+) whose spouse or partner has been diagnosed with, or is seeking a diagnosis of, Behçet’s.
Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Fionnuala will guide the discussion based on your input.
If you are interested in joining this meeting, and you're not yet on the mailing list, please visit our Behçet’s Support Group page and complete the online registration form by 11:30am on Monday 9 February 2026. https://behcetsuk.org/support-groups/
[Image Description: Close-up photo of a cup of coffee next to a laptop. Text reads 'Support Group Meeting for Spouses/Partners of People with Behçet's. Monday 9 February 2026 at 7pm - 8:30pm via Zoom'].
02/02/2026
Don't forget, volunteer Sarah McAllister is hosting another online LUNCHTIME support group on Zoom next week on Monday 9 February 2026, from 12:00pm (midday) – 1:30pm for anyone aged 18 or over and living in England who is affected by Behçet’s.
Meeting topic: General Support
This session will be a general support group meeting, where everyone can chat and ask questions. Sarah will guide the discussion based on your input.
Note: We do not offer medical advice. This meeting is to signpost you to information available online and discuss what works for others to encourage conversations with your own medical team about symptoms and treatment. Any discussions are anecdotal and must be treated as such.
If you are interested in joining this meeting, and you're not yet on the mailing list, please visit our Behçet’s Support Group page and complete the online registration form by 11:00am on Monday 9 February 2026. https://behcetsuk.org/support-groups/
[Image Description: Photo shows a cup of black coffee next to a laptop on a table. Text says “Behçet’s England Lunchtime Support Group Meeting. Monday 9 February 2026 at 12:00pm - 1:30pm via Zoom. The Behçet's UK logo is displayed in the corner”].
30/01/2026
📢 SUPPORT GROUP MEETING TOMORROW 📢
Don't forget, trustee Rachael Humphreys is hosting another Zoom support group meeting for those affected by Behçet’s in Wales tomorrow, Saturday 31 January from 10:00am-12:00pm.
The group is open to anyone aged 18 or over living in Wales who is affected by Behçet’s.
Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Rachael will guide the discussion based on your input.
Important: stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.
If you are interested in joining this meeting, please visit our Behçet’s Support Group page and complete the online registration form by 11:30am today, Friday 30 January 2026. https://behcetsuk.org/support-groups/
[Image Description: Photo shows a white teacup and saucer on a table next to a laptop and notepad. On the photo it says “Behçet’s Wales Support Group Meeting. Saturday 31 January 2026 at 10am - 12pm via Zoom”].
29/01/2026
Behçet’s UK Chair, Tony Thornburn, is hosting a Men’s Behçet’s Support Group meeting via Zoom on Tuesday 17 February 2026, 7:30pm - 9:00pm. This group is for any men affected by Behçet’s living in the UK.
Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Tony will guide the discussion based on your input.
Note: We do not offer medical advice. This meeting is to signpost you to information available online and discuss what works for others to encourage conversations with your own medical team about symptoms and treatment. Any discussions are anecdotal and must be treated as such.
If you are interested in joining this meeting, and you're not yet on the mailing list, please visit our Behçet’s Support Group page and complete the online registration form by 11:30am on Tuesday 17 February 2026. https://behcetsuk.org/support-groups/
[Image Description: Close-up photo of a man holding a cup of coffee whilst on his laptop. Text says 'Men's Behçet's Support Group Meeting. Tuesday 17 February 2026 7:30pm - 9:00pm via Zoom. The Behçet's UK logo is displayed in the corner'].
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About Behçet’s UK (formerly Behçet’s Syndrome Society)
Behçet’s UK (formerly Behçet’s Syndrome Society) was formed in 1983 by Judith Buckle (1950-1997).
Behçet’s UK represents all Behçet’s patients in the UK including those yet to be diagnosed. Reducing time to diagnosis is our top priority, reliant upon raising comprehensive awareness of Behçet's amongst all clinicians within NHS primary, secondary and tertiary care.
We strive to secure the best care for all Behçet's patients and assist carers, parents and relatives. We promote research into the cause, effects, treatment and management of this rare, complex and debilitating disease.
Having helped to establish 3 Behçet’s Centres of Excellence in England, we now lobby for proper comprehensive care in Wales, Scotland and Northern Ireland.
The main aims of Behçet’s UK are:
To provide information and support for people with Behçet’s and for those who care for them.
To provide financial aid in hardship caused by Behçet’s.
To foster education, collaboration and networking in the medical and allied professions with an interest in Behçet’s.
To promote and assist with research into Behçet’s.
To promote the formation of patient support groups and awareness of this rare disease amongst the appropriate influential institutions, authorities and decision-making bodies, and to provide them with detailed information about Behçet’s.
