Behçet's UK

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Behçet's UK

Caring for all affected by this rare, complex and lifelong condition.

17/12/2025

Struggling to find time to send Christmas cards this year? 🎄 Send e-cards instead and donate the cost of cards and stamps to Behçet's UK!

Start sending e-cards today through DontSendMeACard.com 👉 https://www.dontsendmeacard.com/ecards/charities/behcets-uk/christmas

There are various designs available, including Behçet's UK logo baubles.

Thank you to everyone who already uses Don't Send Me A Card to support Behçet's UK ❤

[Image Description: Illustration shows a happy woman on her laptop with cards and envelopes streaming out of the laptop. There's a Christmas tree, fireplace with stockings and fairy lights in the background. Beneath the illustration are the logos of Behçet's UK and Don't Send Me A Card].

15/12/2025

Don't forget, volunteer Sarah McAllister is hosting another online LUNCHTIME support group on Zoom this Thursday 18 December 2025, from 12.00 pm (midday) – 1.30pm pm for anyone aged 18 or over living in England who is affected by Behçet’s.

Meeting topic: General Support
This session will be a general support group meeting, where everyone can chat and ask questions. Sarah will guide the discussion based on your input.

Note: We do not offer medical advice. This meeting is to signpost you to information available online and discuss what works for others to encourage conversations with your own medical team about symptoms and treatment. Any discussions are anecdotal and must be treated as such.

If you are interested in joining this meeting, please visit our Behçet’s Support Group page and complete the online registration form by 11:00 am on Thursday 18 December 2025. https://behcetsuk.org/support-groups/

[Image Description: Photo shows a cup of black coffee next to a laptop on a table. Text says “Behçet’s England Lunchtime Support Group Meeting. Thursday 18 December 2025 at 12:00pm - 1:30pm via Zoom. The Behçet's UK logo is displayed in the corner”].

15/12/2025

Wishing a Happy Hanukkah to all those who observe it. 🕎

[Image Description: An illustration of a Hanukkah menorah with nine lit candles on a blue background. Text reads 'Happy Hanukkah' and the Behçet's UK logo is displayed in the corner.].

11/12/2025

Volunteer Sarah McAllister is hosting another online LUNCHTIME support group on Zoom next week on Thursday 18 December 2025, from 12.00 pm (midday) – 1.30pm pm for anyone aged 18 or over living in England who is affected by Behçet’s.

Meeting topic: General Support
This session will be a general support group meeting, where everyone can chat and ask questions. Sarah will guide the discussion based on your input.

Note: We do not offer medical advice. This meeting is to signpost you to information available online and discuss what works for others to encourage conversations with your own medical team about symptoms and treatment. Any discussions are anecdotal and must be treated as such.

If you are interested in joining this meeting, please visit our Behçet’s Support Group page and complete the online registration form by 11:00 am on Thursday 18 December 2025. https://behcetsuk.org/support-groups/

[Image Description: Photo shows a cup of black coffee next to a laptop on a table. Text says “Behçet’s England Lunchtime Support Group Meeting. Thursday 18 December 2025 at 12:00pm - 1:30pm via Zoom. The Behçet's UK logo is displayed in the corner”].

09/12/2025

📢 SUPPORT GROUP MEETING THIS EVENING 📢

Don't forget, vice-chair Catherine O'Hara is hosting a support group meeting this evening, Tuesday 9 December 2025 at 7pm - 8:30pm for any adults affected by Behçet's and living in Scotland.

Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Catherine will guide the discussion based on your input.

Note: We do not offer medical advice. This meeting is to signpost you to information available online and discuss what works for others to encourage conversations with your own medical team about symptoms and treatment. Any discussions are anecdotal and must be treated as such.

If you are interested in joining this meeting, please visit our Behçet’s Support Group page and complete the online registration form by 11:30am today, Tuesday 9 December 2025. https://behcetsuk.org/support-groups/

[Image Description: Photo shows a cup of coffee next to a laptop and a notepad and pen on a wooden table. Text says “Behçet’s Scotland Support Group Meeting. Tuesday 9 December 2025 at 7pm - 8:30pm via Zoom”]

04/12/2025

📢 Don't forget, the Wales support group are meeting for a Christmas Brunch on Saturday 13 December 2025 at 11am at Bill's Cardiff Central.

It's free to attend; however, you will need to buy your own food and drinks.

If you would like to attend, please register for the Wales Support Group using our Support Groups form by 12pm (midday) tomorrow, Friday 5 December 2025.

https://behcetsuk.org/support-groups/

[Image description: Close-up photo of a mini stocking on a Christmas tree with the word 'Noel' on it. The tree is has soft fairy lights on it. The text on the image reads "Behçet's Wales Support Group Christmas Brunch. Saturday 13 December 2025 at 11am at Bill's Cardiff Central" and the Behçet's UK logo is displayed in the corner.]

03/12/2025

📢 Unfortunately, due to a combination of ill health and busy schedules among the Northern Ireland support group members, Fionnuala has had to reschedule the pre-Christmas meetup. It will now take place in the New Year.

Save the date of Saturday 24 January 2026 as it will take place then, same time and place. More details to follow in the new year.

[Image description: Close-up photo of a gold bauble on a Christmas tree with soft tree lights. The text on the image reads "Postponed. Behçet's Northern Ireland Support Group Christmas Lunch. Saturday 6 December 2025 12:15pm in Banbridge" and the Behçet's UK logo is displayed in the corner.]

03/12/2025

The Wales support group are meeting for a Christmas Brunch on Saturday 13 December 2025 at 11am at Bill's Cardiff Central.

It's free to attend; however, you will need to buy your own food and drinks.

If you would like to attend, please register for the Wales Support Group using our Support Groups form by 12pm (midday) on Friday 5 December 2025.

https://behcetsuk.org/support-groups/

[Image description: Close-up photo of a mini stocking on a Christmas tree with the word 'Noel' on it. The tree is has soft fairy lights on it. The text on the image reads "Behçet's Wales Support Group Christmas Brunch. Saturday 13 December 2025 at 11am at Bill's Cardiff Central" and the Behçet's UK logo is displayed in the corner.]

02/12/2025

Don't forget, vice-chair Catherine O'Hara is hosting a support group meeting next week on Tuesday 9 December 2025 at 7pm - 8:30pm for any adults affected by Behçet's and living in Scotland.

Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Catherine will guide the discussion based on your input.

Note: We do not offer medical advice. This meeting is to signpost you to information available online and discuss what works for others to encourage conversations with your own medical team about symptoms and treatment. Any discussions are anecdotal and must be treated as such.

If you are interested in joining this meeting, please visit our Behçet’s Support Group page and complete the online registration form by 11:30am on Tuesday 9 December 2025. https://behcetsuk.org/support-groups/

[Image Description: Photo shows a cup of coffee next to a laptop and a notepad and pen on a wooden table. Text says “Behçet’s Scotland Support Group Meeting. Tuesday 9 December 2025 at 7pm - 8:30pm via Zoom”]

02/12/2025

The Northern Ireland Support Group are meeting for a pre-Christmas lunch at 12:15 pm on Saturday 6 December 2025 at The Halfway House in Banbridge.

It's free to attend; however, you will need to buy your own food and drinks.

If you would like to attend, please follow the link below to complete our online form by 12pm (midday) on Friday 5 December 2025.
https://behcetsuk.beaconforms.com/form/2a33cbf8

[Image description: close-up photo of a gold bauble on a Christmas tree with soft tree lights. The text on the image reads "Behçet's Northern Ireland Support Group Christmas Lunch. Saturday 6 December 2025 12:15pm in Banbridge" and the Behçet's UK logo is displayed in the corner.]

02/12/2025

The Northern Ireland Support Group are meeting for a pre-Christmas lunch at 12:15 pm on Saturday 6 December 2025 at The Halfway House in Banbridge.

It's free to attend however you will need to buy your own food and drinks.

If you would like to attend, please follow the link below to complete our online form by 12pm (midday) on Friday 5 December 2025.

https://behcetsuk.beaconforms.com/form/2a33cbf8

[Image description: close-up photo of a gold bauble on a Christmas tree with soft tree lights. The text on the image reads "Behçet's Northern Ireland Support Group Christmas Lunch. Saturday 6 December 2025 12:15pm in Banbridge" and the Behçet's UK logo is displayed in the corner.]

01/12/2025

📢 SUPPORT GROUP MEETING THIS EVENING 📢

Don't forget, Behçet’s UK Trustee Fionnuala McKinley, is hosting the first online support group for spouses and partners of people living with Behçet’s this evening, Monday 1 December 2025, 19:00 – 20:30.

“When a partner develops a long-term chronic illness like Behçet’s, it affects more than just the person living with the condition. Family, friends, and co-workers may feel the impact, but often the greatest effect is on their spouse or partner.”
Fionnuala McKinley, Behçet’s UK Trustee

This group provides a safe and supportive space for anyone living in the UK whose spouse or partner has Behçet’s to share their thoughts and connect with others in similar situations who understand what they’re going through.

The group is open to spouses and partners (18+) of people living in the UK who have been diagnosed with, or are seeking a diagnosis of, Behçet’s.

Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Fionnuala will guide the discussion based on your input.

How to join
If you are interested in joining this meeting, please visit our Behçet’s Support Group page: https://behcetsuk.org/support-groups/ and complete the online registration form by 11:30am today, Monday 1 December 2025.

[Image Description: Close-up photo of a cup of coffee next to a laptop. Text reads 'Behçet's Spouse and Partner Support Group Meeting. Monday 1 December 2025 at 7pm - 8:30pm via Zoom'].

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London

Telephone

+443451307328

Website

https://behcetsuk.org/

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About Behçet’s UK (formerly Behçet’s Syndrome Society)

Behçet’s UK (formerly Behçet’s Syndrome Society) was formed in 1983 by Judith Buckle (1950-1997).

Behçet’s UK represents all Behçet’s patients in the UK including those yet to be diagnosed. Reducing time to diagnosis is our top priority, reliant upon raising comprehensive awareness of Behçet's amongst all clinicians within NHS primary, secondary and tertiary care.

We strive to secure the best care for all Behçet's patients and assist carers, parents and relatives. We promote research into the cause, effects, treatment and management of this rare, complex and debilitating disease.

Having helped to establish 3 Behçet’s Centres of Excellence in England, we now lobby for proper comprehensive care in Wales, Scotland and Northern Ireland.

Behçet's UK

17/12/2025

15/12/2025

15/12/2025

11/12/2025

09/12/2025

04/12/2025

03/12/2025

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02/12/2025

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01/12/2025

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About Behçet’s UK (formerly Behçet’s Syndrome Society)