Behçet's UK

10/11/2025

Don't forget, Behçet’s UK Chair, Tony Thornburn, is hosting a new Men’s Behçet’s Support Group Zoom next week on Tuesday, 18 November 2025, 19:30 – 21:00. This group is for any men affected by Behçet’s living in the UK.

Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Tony will guide the discussion based on your input.

If you are interested in joining the meeting, please email Tony via info@behcetsuk.org

[Image Description: Close-up photo of a man holding a cup of coffee whilst on his laptop. Text says 'Men's Behçet's Support Group Meeting. Tuesday 18 November 2025 7:30pm - 9pm via Zoom'].

10/11/2025

📢 SUPPORT GROUP MEETING THIS EVENING 📢

Don't forget, volunteer Sarah McAllister is hosting an online support group on Zoom this evening, Monday 10 November 2025, from 7.30 pm – 9.00 pm for anyone affected by Behçet’s and living in England.

Meeting topic: Ge***al Ulcers
Like Sarah’s previous group meeting on mouth ulcers, ge***al ulcers are also among the most common symptoms experienced by patients with Behçet’s. Therefore, Sarah thought this would be an ideal topic to focus on at the support group meeting.

Note: We do not offer medical advice – this topic is to signpost you to information available online and discuss what works for others to encourage conversations with your own medical team about symptoms and treatment. Any discussions are anecdotal and must be treated as such.

If you are interested in joining or wish to know more, please get in touch with Sarah via info@behcetsuk.org

[Image Description: Photo shows the arms and hands of a person using the touchpad on a laptop, which is on a table. Text says “England Behçet’s Support Group Meeting. Monday 10 November 2025 at 7.30pm - 9:00pm via Zoom”].

06/11/2025

📢 There's still time to take part in the 2025 Behçet's Quality of Life Survey!

The survey will now close on Thursday 20 November 2025.

Working in association, the Behçet’s Patients Centres and Behçet’s UK launched the 2025 Quality of Life Survey for patients and members diagnosed with Behçet’s. This will be familiar to the longer-term Behçet’s UK members and patients of the Behçet’s Centres of Excellence, as it is very similar to the questionnaire from 2020.

The 2025 Behçet’s Quality of Life Survey is an online survey; not only will that keep costs of producing the survey to a minimum, it will also allow for the results to be analysed and made available much quicker.

To access the survey, please follow the link below.

https://survey.alchemer.eu/s3/90808107/2025-BEH-ET-S-QUALITY-OF-LIFE-SURVEY

Thank you 🙌

[Image Description: Close-up photo of someone holding an iPad. Text says '2025 Behçet's Quality of Life Survey'. The logos for Behçet's Patients Support and Behçet's UK are shown at the bottom alongside the words 'Working in association'].

30/10/2025

Volunteer Sarah McAllister is hosting an online support group on Zoom on Monday 10 November 2025, from 7.30 pm – 9.00 pm for anyone affected by Behçet’s and living in England.

Meeting topic: Ge***al Ulcers
Like Sarah’s previous group meeting on mouth ulcers, ge***al ulcers are also among the most common symptoms experienced by patients with Behçet’s. Therefore, Sarah thought this would be an ideal topic to focus on at the support group meeting.

Note: We do not offer medical advice – this topic is to signpost you to information available online and discuss what works for others to encourage conversations with your own medical team about symptoms and treatment. Any discussions are anecdotal and must be treated as such.

If you are interested in joining or wish to know more, please get in touch with Sarah via info@behcetsuk.org

[Image Description: Photo shows the arms and hands of a person using the touchpad on a laptop, which is on a table. Text says “England Behçet’s Support Group Meeting. Monday 10 November 2025 at 7.30pm - 9:00pm via Zoom”].

30/10/2025

Behçet’s UK Chair, Tony Thornburn, is hosting a new Men’s Behçet’s Support Group Zoom on Tuesday, 18 November 2025, 19:30 – 21:00. This group is for any men affected by Behçet’s living in the UK.

Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Tony will guide the discussion based on your input.

If you are interested in joining the meeting, please email Tony via info@behcetsuk.org

[Image Description: Close-up photo of a man holding a cup of coffee whilst on his laptop. Text says 'Men's Behçet's Support Group Meeting. Tuesday 18 November 2025 7:30pm - 9pm via Zoom'].

29/10/2025

📢 SUPPORT GROUP MEETING THIS SUNDAY 📢

Don't forget, trustee Rachael Humphreys is hosting another Zoom support group meeting for those affected by Behçet’s in Wales this Sunday 2 November 2025 from 10:30am-12:30pm. Please note that this meeting was rescheduled from its original date of the 26 October.

If you’d like to join the meeting, please email Rachael via info@behcetsuk.org by 12pm midday on Friday 31 October.

Read Rachael’s Behçet’s story in the ‘Your Behçet’s Stories’ series at https://behcetsuk.org/your-behcets-stories/rachael/

[Image Description: Photo shows a white teacup and saucer on a table next to a laptop and notepad. On the photo it says “Behçet’s Wales Support Group Meeting. Sunday 2 November 2025 at 10:30am - 12:30pm via Zoom”].

28/10/2025

Thank you so much and well done to Georgina and Donna who did a 10k walk at the weekend in aid of Behçet's UK! ❤

We are so grateful to them for raising awareness of Behçet's, and to everyone who has donated to support them. 🙏

Can you help them reach their £1,000 target?

Donate to their JustGiving page:

Help George Don raise money to support Behcet's UK

23/10/2025

Nominations for the 2026 Members Award are now open! ⭐️

The Behçet’s UK Members Award was created to recognise:
The contribution of individuals who, have been instrumental in supporting, and improving the quality of life, independence, and dignity of anyone in the Behçet’s UK Community.

Find out more and nominate someone on our website: https://behcetsuk.org/buk-members-award/nominate/

[Image Description: A digital illustration of two spotlights shining on to a glass award which is engraved with the Behçet’s UK logo, and the words “Members Award 2026 – Your nominee?” on it. Below the digital image it says “Behçet's UK Members Award 2026”].

22/10/2025

📢 SUPPORT GROUP MEETING AT LUNCHTIME TODAY! 📢

Don't forget, there will be a support group meeting for those affected by Behçet's and living in England at lunchtime today.

In response to feedback that evening support group meetings don’t work for everyone, our volunteer group leader, Sarah, has scheduled the first England Behçet’s Lunchtime Support Group Zoom on Wednesday, 22 October 2025, 12:00 – 13:30.

We hope this time works for many group members and may also allow some who work during the day to join part of the session during their lunch break.

Evening support group Zoom meetings will continue for those who prefer them. The next evening session will be Monday 10 November 2025, 19:30 – 21:00. More details to follow soon.

Meeting topic: General Support
This session will be a general support group meeting, where everyone can chat and ask questions. Sarah will guide the discussion based on your input.

Note: We do not offer medical advice. This meeting is to signpost you to information available online and discuss what works for others to encourage conversations with your own medical team about symptoms and treatment. Any discussions are anecdotal and must be treated as such.

If you are interested in joining or wish to know more, please get in touch with Sarah via info@behcetsuk.org

[Image Description: Photo shows a cup of black coffee next to a laptop on a table. Text says “Behçet’s England Lunchtime Support Group Meeting. Wednesday 22 October 2025 at 12:00pm - 1:30pm via Zoom”].

21/10/2025

Trustee Rachael Humphreys is hosting another Zoom support group meeting for those affected by Behçet’s in Wales on Sunday 2 November 2025 from 10:30am-12:30pm. Please note that this meeting has been rescheduled from its original date of the 26 October.

If you’d like to join the meeting, please email Rachael via info@behcetsuk.org by 12pm midday on Friday 31 October.

Read Rachael’s Behçet’s story in the ‘Your Behçet’s Stories’ series at https://behcetsuk.org/your-behcets-stories/rachael/

[Image Description: Photo shows a white teacup and saucer on a table next to a laptop and notepad. On the photo it says “Behçet’s Wales Support Group Meeting. Sunday 2 November 2025 at 10:30am - 12:30pm via Zoom”].