Caprin1 Foundation

Home
United Kingdom
London
Caprin1 Foundation

Supporting families affected by CAPRIN1-related disorders through research, education and community connection.

23/12/2025

As we get closer to the festive season, consider gifting a donation which will give real hope to people with variants.

Your donation powers cutting-edge research, bringing us closer to understanding the gene, improving diagnosis and developing life changing support.

Every gift matters. 🙏 https://caprin1foundation.org/donate/

22/12/2025

🧬 Genetic testing can unlock answers about CAPRIN1 variants

If you or a loved one has a suspected CAPRIN1 variant, please consider genetic testing which will help researchers move closer to real treatments for families worldwide.

Learn more: https://caprin1foundation.org/participate-in-research/

18/12/2025

How does CAPRIN1 affect the brain?

CAPRIN1 helps brain cells communicate and develop. When this gene doesn’t work as expected, it can impact language, learning, movement, behavior, and sensory processing.

The more we understand CAPRIN1, the better we can support those affected.

💙 Learn more or get involved at caprin1foundation.org

16/12/2025

Can you help us raise vital funds for research?

Our research team needs specialty equipment to continue their work to better understand CAPRIN1 variants & possible treatment.

🌟 Every donation counts in the fight for understanding and treatment: https://caprin1foundation.org/donate/

14/12/2025

Possible signs of a CAPRIN1 variant may include:
🗣️ Developmental or speech delays
⚡ Unexplained seizures
🧩 Autism-like traits
🧬 Family history of neurological conditions

These signs can have many causes, but learning about CAPRIN1 can help families find clarity and support.

💙 Learn more at caprin1foundation.org

11/12/2025

Parents. Adults. Caregivers. Clinicians. Researchers.

No matter your connection to , you belong here.
Join the CAPRIN1 Community today: https://caprin1foundation.org/join-our-community/

10/12/2025

Your involvement today fuels tomorrow’s breakthroughs.

We're passionate about building hope for people with variants and we need you to help us further our efforts! Sign up, donate, or participate — together we can create change.

Support us here: https://caprin1foundation.org/donate/

08/12/2025

CAPRIN1 variants are rare — with only 24 reported cases. In order to get vital funding for research we are trying to get as many people possible tested to reflect the true prevalence of CAPRIN1 variants. Each new person identified strengthens the entire global effort.

🌍 Do you have a confirmed CAPRIN1 variant? Get in touch with us: https://caprin1foundation.org/participate-in-research/

05/12/2025

CAPRIN1 plays a key role in brain development. Variants in this gene can impact speech, motor skills, behavior, hearing, and more.

Find out more about CAPRIN1 and variants on our website: https://caprin1foundation.org/

03/12/2025

CAPRIN1 Foundation was founded by parents who wanted answers, support and connection. If you or someone you love is affected by a CAPRIN1 variant, we are here for you!

Join a community built with love, understanding, and purpose: https://caprin1foundation.org/join-our-community/

01/12/2025

Sharing your journey helps researchers understand how CAPRIN1 affects development, communication and everyday life.

💙 Join the research community and sign up to participate in a study today: https://caprin1foundation.org/participate-in-research/

28/11/2025

CAPRIN1 plays a key role in brain development. Variants in this gene can impact speech, motor skills, behavior, hearing, and more.

Find out more about and variants on our website: https://caprin1foundation.org/

Address

London

Website

https://linktr.ee/Caprin1

Alerts

Be the first to know and let us send you an email when Caprin1 Foundation posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Featured

Help Mind Body
Acorn Andrology
Enfield