Mossky's Medical Mayhem

Mossky's Medical Mayhem My life as a genetic chimera with complex conditions*, bad luck and crappy doctors aplenty. Emphasis on the crappy doctors.

Epilepsy/Addison's/EDS/Chiari/CCI+AAI/Gastroparesis/Intestinal Failure/POTS/Dysautonomia/MitralRegurg/Allergies/HashiThy/MedPTSD!

"Other body modification creators" 🤣🤣🤣Not quite how I'd define myself but ok, thanks Facebook?
16/06/2025

"Other body modification creators" 🤣🤣🤣

Not quite how I'd define myself but ok, thanks Facebook?

When you enter hospital for a routine line change, but then leave as a dishevelled patient with teabags for eyes, a diaz...
03/06/2025

When you enter hospital for a routine line change, but then leave as a dishevelled patient with teabags for eyes, a diazepam script, a psych ref for PTSD, and safeguarding plans to prevent a repeat abusive experience, you know some reeeeaaall s**t went down. As I so ineloquently put it... "They broke me."

Please note the word "leave" though.

HOMEBOUND, FOTHERMUCKERS! ✊

Dear most normal people,..NO!This is not for you.This can be a vital medication for people like me, and EVERY. SINGLE. T...
01/06/2025

Dear most normal people,
..NO!

This is not for you.
This can be a vital medication for people like me, and EVERY. SINGLE. TIME you decide your hangover or holiday shopping trip necessitates a "banana bag" of Pabrinex, you're taking it away from someone who actually needs it.

There is a shortage.
There never used to be a shortage until these pop-up clinics dove off the deep end.

PLEASE. You're not gaining anything more than you would from your face hole.

My face hole is decorative.
I would love to use it.

Yours sincerely,
One of many frustrated broken people.

I now have matching cripple ni***es. Two actual nips and two ...scarred hicknips? 🤷‍♀️Whatever the case, I'M SYMMETRICAL...
01/06/2025

I now have matching cripple ni***es. Two actual nips and two ...scarred hicknips? 🤷‍♀️

Whatever the case, I'M SYMMETRICAL!

GUYS GUYS GUYS,My cute *new line* (tail?) wears fishnet stockings! Pain aside, I think she's pretty cute. Shall we call ...
01/06/2025

GUYS GUYS GUYS,
My cute *new line* (tail?) wears fishnet stockings! Pain aside, I think she's pretty cute. Shall we call her Boop? Also, why do I feel the need to name inane things all the time? 😅

I just wanted to update you all so you don't worry about my radio silence. Hopefully this will be the final paragraph of the chapter 'til next time. Because there will be a next time. Ugh.🤦‍♀️

I'm ecstatic that the unimaginable happened and I indeed got my line two days ago, but an Addisonian having a GA amidst overwhelming stress is a mean kettle of piranhas.
Recovery was a rough one, but kudos to the surgical team for their consideration and handling of my weirdness. Shame about all that prior abandonment, really. 😒 Motherf**kers.
Going under was like finding a loophole in that "sleep" thing I've begun to forget exists, but coming around was like chewing a wasp. Funny how the same experience can feel so very different with just one variable. I was out of it again for a good few hours after though, thankfully.
They warned me I'd be in for a difficult immediate recovery because my newer allergies to local anaesthetic restrict how much they can help with this bastard healing process, but damn.
They endeavoured to protect my floppiness (like neck dislocation risks) but some things still suck and my throat feels ruptured; kept me quiet for a while, although when vomiting followed it was problematic enough for them to ignore rules and off-label dose me 'cause I... ripped a stitch ...🙄
I was so out of it, you guys.
So much so I lost neuro control, leading to me peeing the bed and being cleaned up multiple times without even REALISING. Until I found my knickers in a bag, hanging over the bin hours later, that is. (Sexy, aren't I?)

Safe to say I've been... Fragile. My line is sorted at last, but I'm not sure my soul is quite so reparable. I'm having refeeding blood monitoring for the moment while reintroducing TPN, electrolytes, proper steroid dosage and such. Funny how they can do things correctly when an external agency's brought into the picture, isn't it?

Staying in a hospital partially responsible for my Medical PTSD is always less than smooth, so I'm in need of a real sleep to factory reset myself out of delirium.
Of course, there's no story without stupid in this place, and last night a team had to fight to give me a diazepam for distress when (get this) the medical consultant assured me restarting my TPN (IV food) would somehow knock me out for the count just as well as a SEDATIVE. I'm not an idiot. But she just might be.
Having Total Intestinal Failure suggests my gut is kaput, surely? So why did she think it appropriate to insist on re**al insertion for said PTSD patient who has to (TMI warning) manually evacuate herself every few weeks/months? Yeah, that's not a traumatic idea in the slightest. 😒

So uh... I don't entirely believe she sat her own exams. It's ok though, 'cause the mental health guys schooled her instead! 😜

I better be counting sheep tonight or I'll suggest re**al insertion of something for her.

30/05/2025

Got to love how shocked the hospital is that I’ve lost 19lbs in under a week and have low blood sugar. Well duh. You’re starving, torturing and ignoring me.
Doc had the nerve to come make sure I haven’t eaten since yesterday as the surgery might still happen. 😒 Is he for real? Is he literate? Does he know what notes/words are?

Hahahaha this is hysterical.Doc and ultrasound have rolled into my bay 4 times today and it's not even 3pm. 7 times in 2...
29/05/2025

Hahahaha this is hysterical.

Doc and ultrasound have rolled into my bay 4 times today and it's not even 3pm. 7 times in 24hrs 🤦‍♀️

I lost that precious hard-won access and they had to attempt again with ultrasound. They got something in! .. For 5 minutes before it died. But he can't find another one so tough s**t. I have the last displaced one still, and it only works slightly if you pull at a certain angle really hard 😅 - how the f**k are they gonna get a general anaesthetic in me tomorrow with this stupid crazy straw? Who knows! 🤷‍♀️

Update; NOPE. Strike that, make it 5 times today already.
Again, as I wrote that last sentence it completely blew on me, dramatically. Couldn't get much in but what did go in ballooned my arm and shot me through the roof. Bicep/arm pressure and horrendous pain. At least they commended my tolerance during all this kerfuffle, so when I hit the roof they know it = holy s**t!

But he just tried and couldn't succeed so this 5th one will be interesting. I've made a deja vu joke every time he's returned buuuuuut it's just not funny anymore, it's ridiculous. 🙈

OH AND NOW IT FELL OUT AND DIDNT EVEN BLEED!

That update I promised just got a bit awkward to write 😂 After multiple doctors descended upon me to fight for access ye...
28/05/2025

That update I promised just got a bit awkward to write
😂 After multiple doctors descended upon me to fight for access yet again, I'm not allowed to risk bending my arms because of how precarious my tissues and hard-won access sites are (miracle they exist tbh), and how vital it is they remain. They got freaked out by last night's disaster where they couldn't address multiple emergencies quickly enough because they couldn't physically get the necsssaries into me for a ouple of hours of trying. This resulted in my nurse sobbing hysterically because she couldn't help, couldn't stand what I'm enduring or my utter despair at the situation, couldn't get docs to me quick enough, and couldn't understand why this neglect was allowed to occur at all when the solution is so obvious and achievable.
So they finally sprung into doubly-cautious action on this one front. I could submit the photo as an audition tape for that sure deodorant ad where nobody lifted their arms back in the day. 😂

Think it's safe to say the safeguarding team has made stern contact seeing as we're apparently crossing off some continual abuses, but the issue of the elephant in the room still looms. They even swooped in to do bloods which somehow hadn't occurred to them in the 8 days they've been starving me, and subsequently immediately had to interrupt my existing infusion to get some potassium in me FAST. Not that they'd know I even need it if safeguarding hadn't been involved... I should be tallying these counts of neglect!

I'm now told friday at 2 is my next potential theatre slot, not that I nor they themselves believe it. 🙄

Update;
Wow. In truly ironic fashion, while I was typing this up the secondary cannula died a death, so that's the end of that forethought and security!

Never a straight line I'm given to walk, is it?

27/05/2025

I didn't think it could get worse, or more stupid. I was wrong. We're calling a safeguarding meeting for blatant hospital abuse and neglect tomorrow.

Updates to come when I function enough to think again.
You will not believe it... as usual.

😑 Ky Moss & Medically Munch-less!

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