My MND journey

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My MND journey Starting a page hoping to give an insight into the trials and tribulations of this horrific disease.

20/03/2024

My Mum’s Celebration of Her Life will be on Thursday 4th April ~ 1.45pm at St Mary’s Church, Mirfield. Please join us afterwards to remember Mum at Dewsbury Golf Club. Please wear a touch of colour. Donations will be made to Kirkwood Hospice 🌻❤️

The most beautiful, loving, positive and caring lady has sadly left us. Fighting to be with all those who loved her unti...
18/03/2024

The most beautiful, loving, positive and caring lady has sadly left us. Fighting to be with all those who loved her until the very end. Michelle went to her heavenly sleep in the early hours of Monday 18th March.
We all know how much she was loved by lots of people. We will update with details as and when we know them. Eric and family 🌻❤️

I’ve been having problems so I’m in Kirkwood Hospice at the moment for symptom management Got here on Friday and this pl...
05/03/2024

I’ve been having problems so I’m in Kirkwood Hospice at the moment for symptom management
Got here on Friday and this place is wonderful and will get me sorted

And at the moment life does feel hard
25/02/2024

And at the moment life does feel hard

Morning xx
22/02/2024

Morning xx

15/02/2024

BILL BRENNANS PROTOCOL
everyone I was diagnosed w/end-stage ALS on 11-2-19, I’ve had 2 EMG’s, I have SOD1, and I’ve had all the symptoms, *except drop-foot, drop-tongue, the claw, and I had atrophy everywhere except the tongue. I’ve reversed most of my symptoms. I lost over 100 lbs, but i have regained functions and i have regained 30 lbs, mostly muscle ( BMI scale shows it )
Idk what my ALSFRS-R score was or is currently. Tish, ( Patricia Tamowski / Co-Founder and President of Healing ALS ) has all those stats, as well as copies of my medical records.
You can also view me on videos on Healing ALS as “ALS Reversal In Progress” I’ve been on there twice and I’ll be on there again once I improve more.
This group is here for the supplement list. You’ll need to join my main group, it has all the info on what my protocol is, how it works etc, you only need to look in the FEATURED section to see proof that my Protocol works, look at the 1-18-24 post, and view the MANY testimonials people have posted, some are major improvements.
You’ll have to be able to show who you are on your Facebook or provide a screenshot of you holding up your drivers license if your Facebook account has been created recently, or if we cannot tell if you are who you say you are, hardly any friends, very few pics, etc, in order to be able to join REVERSING ALS / MND and after you prove your identity, if you plan on doing a one-on-one, you’ll need to contact Healing ALS and ask for help signing up on the Healing ALS Registry, so you’re improvements will be documented.
*ALS is actually just a multi system dysfunction. ✅
It’s a metabolic iceberg as the New Zealand study shows!✅
And it’s reversible, as the 1-18-24 study shows!! ✅
The medical community is, on average, 19 years behind the science, and often, 20-30 years behind the science. ✅
My Protocol is way ahead of them all!!
Again, look in the FEATURED section after you join my main group.
One Bulbar client regained her voice back!!✅
Another had the claw on both hands, now he’s able to straighten one hand and can even pick up coins with his fingers!!✅
Another regained his ability to walk again!!✅
Another wasn’t able to hold his head up on his own, for over a year, his neck was too weak!! He can hold his head up now!! ✅
So…don’t listen to those who are bashing me, calling me a fraud, and calling my Protocol a fraud!! ( they’re getting sued!! 😂) ✅
I have all the proof I need to prove: I’m legit, my Protocol is legit, and those improving are legit!! ✅
Join my main group. Look at the FEATURED section, decide for yourself if you want to do my Protocol. ✅
All my services are free and all the info is free, and it’s also found in the FEATURED section of my main group. ✅
There’s nothing illegal about donations✅
I’m just a Health / Wellness Coach, not a Dr., but I have a business, I have to pay taxes on those Donations, I’m LLC protected✅
There’s nothing illegal about my showing / telling others about how I restored my health / reversed my ALS symptoms ✅
There’s nothing illegal about showing people the foods / drinks I consumed ✅
There’s nothing illegal about showing people the supplements I took ✅
I do not give anyone meal plans, I’m not a licensed registered dietician. ✅
The Medical Mafia can kiss our a****!! ✅

The last few weeks have been difficult.I have deteriorated .I can no longer use the Sara flex so now need to be hoisted ...
12/02/2024

The last few weeks have been difficult.
I have deteriorated .
I can no longer use the Sara flex so now need to be hoisted which isn’t my favourite mode of transport.
I have had horrendous constipation and it was so painful.
I am also peg fed more by pump overnight.
I now have a NIV and a cough assist machine
I also a UTI
I also can’t shout and talk as if I am drunk.
I have been fed up to say the least and trying to think positive but I am so tired and keep asking myself why I have this vile disease

Had lots going on over last few weeks and will update soon
06/02/2024

Had lots going on over last few weeks and will update soon

One year ago today I got my “official “ diagnosis of MND ~ I’m fading slowly but fighting fiercely so fuc@ you MND
02/02/2024

One year ago today I got my “official “ diagnosis of MND ~ I’m fading slowly but fighting fiercely so fuc@ you MND

Sorry for lack of posts. Had a few things worsen this week so need to make some changes.Slept with an overnight breathin...
26/01/2024

Sorry for lack of posts. Had a few things worsen this week so need to make some changes.
Slept with an overnight breathing machine on the night before last and waiting for results.
Also need to change how I transfer as what I use now isn’t safe.
Plus all I seem to do lately is sleep!
Night night God bless xx '

Goodnight all xx
20/01/2024

Goodnight all xx

Goodnight God bless xx
15/01/2024

Goodnight God bless xx

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