olivers journey with bws and cdc

olivers journey with bws and cdc Oliver was born with beckwith weidemann syndrome and cri du chat syndrome

10/11/2025

Oliver loved fireworks at the weekend, laughing away at them all night

10/11/2025

Hes crackers this kid

Our little baby is at zoes baby hospice for 24hours respite and they took him on a little trip out. Miss him like mad wh...
20/10/2025

Our little baby is at zoes baby hospice for 24hours respite and they took him on a little trip out. Miss him like mad when he's not here though 😢

A year this month since chemotherapy stopped and today hes been given the all clear for another 3months 🥳🙌 we can now re...
08/10/2025

A year this month since chemotherapy stopped and today hes been given the all clear for another 3months 🥳🙌 we can now relax again for a little bit

Oliver looking so grown up and gorgeous tonight 🥰
24/09/2025

Oliver looking so grown up and gorgeous tonight 🥰

A few pics of olivers little holiday to centerparcs last week 🥰 also his new stander and boots that have arrived
17/09/2025

A few pics of olivers little holiday to centerparcs last week 🥰 also his new stander and boots that have arrived

Oliver finally got his new stander today 🥰
02/09/2025

Oliver finally got his new stander today 🥰

Olivers had a lovely time this afternoon at zoes place baby hospice summer party 🥳
22/08/2025

Olivers had a lovely time this afternoon at zoes place baby hospice summer party 🥳

Some school holiday fun
19/08/2025

Some school holiday fun

Dietician appointment today went well, first time she has seen Oliver since he was discharged in March and she couldn't ...
19/08/2025

Dietician appointment today went well, first time she has seen Oliver since he was discharged in March and she couldn't believe the difference compared to when he was admitted in January, she was happy with his weight, just waiting on his nutritional bloods coming back and his potassium was abit low, we are going to try again to introduce the next stage milk as olivers never managed to tolerate more than the under 1 baby formula so fingers crossed 🤞

Messy flour play for Oliver today 🥰
29/07/2025

Messy flour play for Oliver today 🥰

12/07/2025

Do any of my medical mum friends have tips regarding oxygen tubing overnight?

This morning i woke up to the oxygen tubing wrapped round olivers neck 3times, I had to undo it from the cylinder to unwrap it as it was so tight and left a red mark. I have it wrapped round the cylinder anyway a few times so he has less tubing to cause any problems but it's still happened.

I am going to be on the phone 1st thing Monday to try get a medical team meeting to try help,but I'm dreading bedtime tonight

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Thirsk
North Yorkshire

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