Jessica’s DRPLA Journey

15/04/2026

Western theme story for Jessica 🩷

https://www.change.org/p/support-research-to-cure-drpla?fbclid=IwVERDUARLYxtleHRuA2FlbQIxMABzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEevxIqYOlo3QLIxlYgd7F7huklx-iflNrvGPIDvh-AWGpmJSieUuJO20rI_LM_aem_NzpYWZv1KTZDbZa3lo0Xzg

15/04/2026

Thanks Tim, Maxine, Molly and Lucy for Jessica’s card and present, she loves it. She smiled when she saw the pictures of your dog Pearl 🩷

14/04/2026

14/04/2026

Hydro pool time for Jessica and I’m shocked at how tall she is 🩷

https://www.change.org/p/support-research-to-cure-drpla?fbclid=IwVERDUARKNZRleHRuA2FlbQIxMABzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEeNXkIIHVMu-KXokKSXTZG3A-SaOawK_JOmAWNmPYE2O-NUgBWQxUYqx3vVuw_aem_jQ66jW7qE4KanYISs0DY_w

13/04/2026

Jessica loves this guy. Dave goes to Sence and plays music and he always puts a smile on her face 🩷

https://www.change.org/p/support-research-to-cure-drpla?fbclid=IwVERDUARI3dxleHRuA2FlbQIxMABzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEenMl9oPT0TSNrXLX-9wPWCsq2dp1xqU0dp0uBn0QCT3bC6NXr-nQuvqFDlhY_aem_6uhrxtGvVATyJ5Efh_SDAQ

12/04/2026

Jessica is extremely happy this evening, she’s even laughing. I haven’t seen her so happy in a while. Please keep following and sharing Jessica’s DRPLA Journey and if you can sign and share her petition it would mean the world to us 🩷

https://www.change.org/p/support-research-to-cure-drpla?fbclid=IwVERDUARIv3dleHRuA2FlbQIxMABzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEenD7kkd1fodWP_EGPbiKdubftWDF5Q8_fH6PHyMxAIuoMU1ghKc1fy0ouNSs_aem_v1VntyKI968yBG-V0XMR0A

12/04/2026

So Jessica’s legs shaking is unfortunately getting worse and I can’t even think how it feels. Even though she’s non verbal she doesn’t groan with frustration she just takes on this disease like the warrior she is. Please if you haven’t already done so, can you sign and share her petition. Since starting medical cannabis we feel she could be well enough to travel to the U.S but we need so much more signatures and if people could just share, it could mean she has the chance of going there 🩷

https://www.change.org/p/support-research-to-cure-drpla?fbclid=IwVERDUARHmbZleHRuA2FlbQIxMABzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEe-ETUk4AE1Bat7cHWEPa3u-7mAmXNGdIeVKWwANGb-ZzljPfQfWr_g-cguW8_aem_KE1b1dtJtRh2M6HbmeVw5w

11/04/2026

Jessica went to Cardiff Bay but I don’t think she appreciated having a sailers hat put on lol 🩷⛵️🩷


https://www.change.org/p/support-research-to-cure-drpla?fbclid=IwVERDUARG1-5leHRuA2FlbQIxMABzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEenkeqQ5soCMHaBWCsy4dL0CRW7n9YgvAEH795YCs5EiPmWrJpcfJpvkQkX6w_aem_-kmHEP7bc-TVV5ina-5bYA

11/04/2026

Photos of Jessica before DRPLA symptoms started. The photo of her in the red cardigan is when she was in a Welsh speaking school. It’s hard to believe that she was able to read a welsh book and speak Welsh 🩷

10/04/2026

Watch, follow, and discover more trending content.

10/04/2026

Some more photos of Jessica before DRPLA symptoms started. She’s actually wearing her gymnastics outfit in the one picture 🩷

https://www.change.org/p/support-research-to-cure-drpla?fbclid=IwVERDUARE68lleHRuA2FlbQIxMABzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEel1_66rKe6BWmykIeObxHzjRn2sLSq-wxivL7NiMViekD-bBMt_PuzntI4No_aem_K0pMtEzGmvcjmcy1kS7BIQ

09/04/2026

Support Research to Cure DRPLA