Fibro and Me/cfs Info Carleton

24/02/2026

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BBC Radio 4: Is the tide turning on ME research?

BBC Radio 4 Inside Health have aired a thirty minute program on ME/CFS featuring interviews with researchers including Professor Rosemary Boyton, who is leading the ME Association's Rosetta Stone study, a £1.1 million research study and the largest research project of its kind.

Listen to the broadcast on BBC Radio Sounds: https://meassociation.org.uk/sbmx

23/02/2026

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23/02/2026

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Fibromyalgia doesn’t show up the same way for everyone.
For some it’s pain, for others it’s fatigue, brain fog, or something completely unexpected.

What was your giveaway symptom?
The moment you knew something more was going on?

Let’s share and support each other — your story might help someone who’s still searching for answers 💜

22/02/2026

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ME Research UK-funded researchers past and current will be presenting at March's 'M.E. & Long COVID research' symposium' in Wi******er - Prof Chris Ponting, Dr. Carmen Scheibenbogen and Assistant Professor Rob Wüst. More details - https://tinyurl.com/mrff95w

22/02/2026

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Hospital Care Plan for Severe-Very Severe ME/CFS and long COVID (and associated conditions, e.g.: dysautonomia)

https://anzmes.org.nz/wp-content/uploads/2025/07/Hospital-Care-Plan-for-Severe-Very-Severe-ME_CFS-and-long-COVID-1.pdf

Would be great if hospital staff took these recommendations on board.

Some extracts in the comments.

19/02/2026

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18/02/2026

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18/02/2026

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Managing comorbidities in ME/CFS is useful in reducing overall symptom burden for affected individuals.

But what about vitamin D supplementation?
Vitamin D deficiency is common in general and even more common amongst individuals with ME/CFS it would seem. This is not a surprise as vitamin D is sometimes referred to as the "sunshine vitamin" as it is produced by the body when skin is exposed to direct sunlight outdoors (and individuals with ME/CFS often spend more time indoors than others).

A group of researchers from Japan conducted a randomised controlled trial evaluating the efficacy of vitamin D replacement therapy guidance in 91 participants with ME/CFS following SARS-CoV-2 (COVID-19) infection or vaccination and co-existing vitamin D insufficiency or deficiency. At first glance, the results may be unintentionally interpreted as suggesting Vitamin D supplementation is helpful in ME/CFS. On second glance, the findings (which need to be approached with caution) seem to actually suggest the opposite - Vitamin D supplementation alone does not have much of an effect on ME/CFS symptoms.

Read a breakdown of the study: https://tinyurl.com/2r7jsrbs

Important note:
It is important to consult a healthcare professional to determine whether supplementation is needed and, if so, the appropriate dosage to address any nutrient deficiency, including vitamin D.

Although a study may show minimal or mixed effects of vitamin D supplementation on ME/CFS symptoms, vitamin D remains an essential nutrient involved in key physiological processes such as bone health, immune function, and muscle function. The NHS provides detailed information on Vitamin D on its website. https://tinyurl.com/mwtnpx95

13/02/2026

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Here at FMA UK, we’re NOT jumping on the Galentine’s bandwagon… instead we’re celebrating all the PALS!💜
Those who lift you up, cheer you on, and stick by you through the good times and the bad. Here’s to the friends, colleagues, mentors, and everyone who makes life brighter!
Have you got a PAL who truly gets you and embraces all your Fibro quirks? 💜 Today’s the day to share the love!
Give them a wee shout-out and celebrate those who lift you up. Tag away and we'll share the love.

11/02/2026

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Partners across the Overlapping Illness Alliance (OIA) recently came together in person to reflect on our shared priorities, review recent advocacy activity and agree next steps for our collaborative work. This included discussions on progressing joint commitments, strengthening how we work together, and planning ahead for the year to come.

As always, this work is rooted in listening to the lived experience of people with overlapping and under-recognised conditions, and pushing collectively for meaningful and lasting change. We’ll share more as the work develops, and you can learn more about the OIA here: https://www.overlappingillnessalliance.org.uk

L-R Susan Booth Ehlers-Danlos Support UK Simon Chandlers Forward ME Lesley Kavi POTS UK, Nigel Rothband Long Covid Support, Sammie McFarland Long Covid Kids, Sonya Chowdhury Action for ME, Joy Mason Mast Cell Action

11/02/2026

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" International Day of Women and Girls in Science 2026 is a United Nations‑designated observance celebrated globally to acknowledge the contributions of women and girls in science and to promote gender equality in scientific fields"

🌎International Day of Women and Girls in Science (11 Feb) is all about recognising the contributions and potential of women in STEM (science, technology, engineering and maths) while highlighting the need for gender equality and visibility in these fields.
The day encourages showcasing women’s roles in research and innovation and breaking down barriers that limit their participation.
🚺Women in science make a difference every day. Dr Rosemary Hollick is helping patients navigate the complex journey of fibromyalgia care, ensuring research meets real-world needs.

On , let’s celebrate women scientists and raise awareness for chronic conditions that affect so many.

11/02/2026

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𝗠𝗮𝗸𝗲 𝗬𝗼𝘂𝗿 𝗩𝗼𝗶𝗰𝗲 𝗛𝗲𝗮𝗿𝗱!
Take part in our survey and help advance a diagnostic blood test for ME/CFS

MEAction UK is working with the research team at the University of East Anglia (UEA) Medical School to assist in developing a research application to be submitted to the Medical Research Council (MRC). To help them secure funding we just need approximately five to ten minutes of your time to complete this questionnaire.

To complete the questionnaire and for more information read our news article:
https://meaction.org.uk/news/2026/02/survey-for-new-me-blood-test-launches