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That's How She Rolls Living with Charcot Marie Tooth Disease

Follow me on my journey from rolling to running!!!

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Meet Buzz! My new best friend 🐾🦮 Shes a stunning 5 month old Labrador. Buzz has been in my life for a month. So far she...
01/05/2022

Meet Buzz!

My new best friend 🐾

🦮 Shes a stunning 5 month old Labrador.

Buzz has been in my life for a month. So far she’s chewed everything, p**p in every room, and had an allergic reaction after sniffing a nettle bush.

Good jobs she’s cute 🥰☀️

So I did a thing I bought a house! Accessible properties are very hard to find. Over the next 12 months I will be renova...
08/12/2021

So I did a thing I bought a house!

Accessible properties are very hard to find. Over the next 12 months I will be renovating my house to turn it into a home that meets my needs.

I’m very fortunate that I am able to do this however not all disabled people are or have access to appropriate housing that meets their needs.

A report by the equality and human rights commission found that:

🏡 disabled people are too often demoralised and frustrated by the housing system

🏡 there is a significant shortage of accessible homes

🏡 installing home adaptations involves unacceptable bureaucracy and delay

🏡 disabled people are not getting the support that they need to live independently

68% of local Authorities report that developers do not always comply with accessibility requirements, but only 3% have taken action against a developer on accessibly grounds. currently, 1 in 7 disabled people in their own homes live in unsuitable accommodation and 1 in 3 disabled people in privately rented accommodation in unsuitable housing.

The financial, emotional and human costs of inaccessible housing are well documented. They include increased need for social care, increased reliance on carers and family members, accidents (which can be life-changing or fatal), and avoidable hospital admissions and lengthy stays in hospital.
Inaccessible housing is also associated with poor employment outcomes among working- age adults. People with inaccessible homes are four times more likely to be unemployed or not seeking work than those whose needs are met, or who are disabled but do not require accessible housing (Habinteg and Papworth Trust, 2016).
Findings from a survey of disabled people found that around half of respondents whose housing requirements had been met reported feeling safer and more in control. Additionally, roughly a quarter of respondents reported better social contact and improvements in their health and wellbeing (Habinteg and Papworth Trust, 2016).

Increasing the supply of new accessible houses starts with improving the ways in which disabled people’s requirements are built into national policy and law. Building standards vary across Britain, but they all provide the template that developers adhere to when building new homes.

Adapting a typical home costs up to 5 times more then making one adaptable at the design stage.

Today I took part in my Climbing Wall Assistant Qualification, which I passed 🙂 one step closer to becoming an instructo...
31/05/2021

Today I took part in my Climbing Wall Assistant Qualification, which I passed 🙂 one step closer to becoming an instructor 🧗‍♀️

13/05/2021

I am very excited to share with you all a project I have been working on for a while.

I have partnered up with Big Depot Leeds to launch Leeds Paraclimbing Club.

The club is for anyone that has a physical disability, learn disability, Autism, Mental Health condition or anything that may impact your ability to climb and is open to all ages.

We are looking for members to join the Club.

If you or someone you know would like to give climbing ago in a safe supportive environment then get in touch and give the page a follow 🙂

We are hoping to run weekly session on a Friday.

https://www.facebook.com/Leeds-Paraclimbing-Club-106006981669296

Leeds Paraclimbing Club is an inclusive climbing charity based in Leeds, West Yorkshire.

Today is International Wheelchair Day 👩🏼‍🦽Like most disabled people my wheelchair gives me the freedom to be independent...
01/03/2021

Today is International Wheelchair Day 👩🏼‍🦽

Like most disabled people my wheelchair gives me the freedom to be independent, visit some stunning places and play lots of sport.

There are currently around 1.2 million wheelchair user in the UK.
Unfortunately, even though wheelchairs are a basic need for many disabled people a lot a wheelchairs are not available on the NHS due to cost. Being a wheelchair user is expensive and not every disabled person can afford a chair that meets there needs.

Chairs are like shoes... you need a correct fitted chair depending what you are doing and where you are going.

I’m very fortunate that I have access to the right chairs I need to carry out everyday tasks and the hobbies I enjoy 🌻

Today is Rare Disease Day!There are 6000 rare diseases in the world and 300 million people live with rare disease across...
28/02/2021

Today is Rare Disease Day!

There are 6000 rare diseases in the world and 300 million people live with rare disease across the globe including myself.

Just a girl and her Mountain Trike 🥰
07/02/2021

Just a girl and her Mountain Trike 🥰

05/02/2021

Getting my step count in at physio today.

The Lyra is a great bit of kit. It allows me to practice walking with a correct gait/posture in a safe environment.

That's How She Rolls: Research, Activism, and a Near Death Experience is available for listening now!In the episode I si...
04/02/2021

That's How She Rolls: Research, Activism, and a Near Death Experience is available for listening now!

In the episode I sit down with PHD student Christian and learn more about his research.

‎Society & Culture · 2021

That’s How She Rolls The Podcast is now available on Apple Podcast! Episode 1 will be posted very soon...
25/01/2021

That’s How She Rolls The Podcast is now available on Apple Podcast!

Episode 1 will be posted very soon...

‎Society & Culture · 2021

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