20/06/2025
Never Settle: Living With Ataxia on My Own Terms
I was diagnosed with Ataxia in 2017, though the early signs began showing in my mid-40s. Iâm now 54, and the last 8 months have brought a wave of progression thatâs been hard to face. My balance is poor, I walk with a stick or rollator, and my speech is now very slurredâwhich makes talking not only difficult, but exhausting.
When I was first diagnosed, I was told I wouldnât work again and would soon be in a wheelchair. That kind of news can feel like a full stop. But I never saw it that way. I still walk. I still train when I can. I still tryâbecause I donât believe in accepting second best until thereâs truly no more try left in me.
I learned that mindset as a kid racing BMX bikes in Zimbabwe. My hero back then was a fellow rider named Brendon Sterlingâfearless, fast, always pushing harder. Watching him shaped something in me that Iâve never let go of.
Today, I canât ride bikes anymore. But Iâve got a recumbent trike with an electric motor that gives me back a little bit of the freedom and joy I used to feel on two wheels.
What keeps me going? My amazing support network. My fiancĂŠe Anthea, who shows up every day with love and patience. And our lurcher Molly, who reminds me with every tail wag that life is still good, even when itâs hard.
Ataxia is relentless. But so am I.
âWhatever life throws at you, never accept anything until you canât try anymore. If you accept second best in life, youâll always struggle to succeed.â
To anyone living with Ataxiaâor anything that tries to slow you downâkeep moving. Keep trying. We may stumble. We may speak slower. But we are still here. And we are not done.