MyMyelitis - MOG Antibody Disease MOGAD

14/11/2025

In this video Scott explains the three main methods used to diagnosed MOG Antibody Disease (MOGAD). Watch the full video in the comments section now.

30/10/2025

In this video Scott explains what the common symptoms of MOGAD are. If you're newly diagnosed with MOGAD then this video is a great place to start learning more about the condition. If you want to watch the full video then you can find it in the comments section below!

23/10/2025

In this video Scott explains what MOG Antibody Disease is, what it does and which parts of the body can be affected by it. Watch the full video on the MyMyelitis YouTube channel now.

25/09/2025

DYK our next Lifting the MOG Fog support group meeting is coming up on Wednesday, October 1 at 4:45 PM EST via Zoom?

This group is open to all adults living with MOGAD and provides a supportive, patient-led space to share experiences, ask questions, and connect with others who truly understand life with this rare disease.

Led by experienced facilitators Kevin Jaffe and Scott Tarpey, the group features:
-Peer support from regular attendees
-Practical advice from lived experience
-Occasional expert guest speakers throughout the year

✅ Already registered? Your unique Zoom link has been sent via email.
📌 Need to register for the 2025 session? Sign up here: bit.ly/LiftingTheMOGFog2025

Important things to know:
-Registration is annual — sign up once per year
-Attend as often or as little as you’d like
-Open to adult MOGAD patients of all backgrounds

Follow MyMyelitis - MOG Antibody Disease MOGAD for educational content from co-leader Scott Tarpey, and stay connected with the MOGAD community!

We look forward to seeing you there!

03/09/2025

3 Mountains, 24 miles, 12 hours!

In July I undertook a challenge fundraiser for The MOG Project for my 5 year anniversary with

The video of the challenge has just been released and you can watch it here - https://linktw.in/jAUCTE

The challenge involved climbing to the top of Yorkshire’s three highest peaks, a 24 mile round trip in under 12 hours.

My aim is to raise $1000 and you can find the donation link here - https://mogproject.org/campaigns/scott-tarpey-yorkshire-three-peaks-challenge/

03/09/2025

Three Mountains and 24 miles in 12 hours!

I recently undertook a challenge fundraiser for for my 5 year anniversary with .

The video about the challenge is out now and you can find the link in my pinned story ‘Videos’!

My aim is to raise $1000 for this fundraiser. The donation link is in my bio and will be open for the rest of the year!

27/07/2025

Yesterday (26/07/25) I completed the Yorkshire Three Peaks Challenge in 11 hours and 20mins! This was easily the biggest physical test so far in my life.

The challenge involves climbing to the top of Yorkshire’s three highest peaks Pen y Ghent (694m), Whernside (736m) & Ingleborough (723m), a 24 mile round trip route in under 12 hours!

I took on this challenge to raise funds for , a nonprofit which does great work for those with MOGAD. They helped me a lot during my recovery and this felt like a great opportunity to give something back!

My aim is to raise $1000 for them by completing this challenge. If you’d like to donate please see the link in my profile bio or find the fundraiser on The MOGAD Projects website!

26/07/2025

For my 5 year anniversary of MOG Antibody diagnosis, I’m doing the Yorkshire Three Peaks Challenge. A grueling 24-mile hike over three of Yorkshire’s highest and most iconic peaks: Pen-y-ghent (694m), Whernside (736m), and Ingleborough (723m). The goal? To complete the full circular route in under 12 hours.

I will be raising money for nonprofit organisation dedicated to improving the lives of people with MOG Antibody Disease.

The MOG Project works globally to:

Raise awareness of this rare neuroimmunological disorder, often misdiagnosed as Multiple Sclerosis.

Educate patients and physicians about early symptoms, proper testing (such as MOG antibody testing), and treatment options.

Fund research into more accurate diagnostics, targeted therapies, and long-term outcomes for those with MOGAD.

Foster community, providing emotional support, live Q&As, patient stories, and global advocacy.

Any donations are greatly appreciated. You can donate via the link in my bio. Photos and videos of the challenge will be available soon

14/07/2025

Hey, it been a while!

This last month marks 5 years since I was diagnosed with MOG Antibody Disease.

I made a video (link in the comments) to share what has happened in the last year including -

My health - Eventful as always! 👨🏻‍⚕️

My work - Moving on up... 👔

A change to my housing situation - The biggest purchase of my life! 🏠

Relationships - Yes, a lot has happened...

Stress Management - was needed 😅!

You can watch the video in my profile highlights!

This is not a “look at me” moment, it’s a “look what is possible” moment.

If you’re newly diagnosed, flaring or just feeling alone in this, I hope it gives you some hope!

Also I’m hoping to be able to return to making content for MyMyelitis really soon!

I have some great things in the works and I’m excited to share them with you!

Watch the video in the comments below!

04/06/2025

SUPPORT GROUP REMINDER: Lifting the MOG Fog: a support group, now for all adults, is tonight!!

The meeting is Wednesday, June 4th, at 4:45 PM EST via Zoom.

If you are already registered, we have sent out your confirmation email with your unique link as a reminder, but if you have not registered, please do so here:
https://bit.ly/LiftingTheMOGFog2025

Don’t miss out on this great exchange with expert guests periodically throughout the year.

This meeting is hosted by our fabulous support group leaders, Kevin Jaffe & Scott Tarpey. Don’t forget to check out Scott’s page MyMyelitis - MOG Antibody Disease MOGAD for some really great educational content on MOGAD!

We hope to see you there!

07/05/2025

May’s meeting is today!

SUPPORT GROUP REMINDER: Lifting the MOG Fog: a support group, now for all adults, is tonight!!

The meeting is Wednesday, May 7th, at 4:45 PM EST via Zoom.

If you are already registered, we have sent out your confirmation email with your unique link as a reminder, but if you have not registered, please do so here:
https://bit.ly/LiftingTheMOGFog2025

Don’t miss out on this great exchange with expert guests periodically throughout the year.

This meeting is hosted by our fabulous support group leaders, Kevin Jaffe & Scott Tarpey. Don’t forget to check out Scott’s page MyMyelitis - MOG Antibody Disease MOGAD for some really great educational content on MOGAD!

We hope to see you there!