Thalassaemia South Yorkshire

21/11/2025

Thalassaemia South Yorkshire stands proudly with our communities against racism and all forms of hate. Our strength has always come from compassion, diversity, and supporting each others values at the heart of everything we do.

Lets join tomorrow as we stand united for dignity, equality, and a South Yorkshire where every person feels valued and safe😊

20/10/2025

Happy Diwali to everyone celebrating today😊

09/06/2025

Heartbreaking news about the passing of Uriah Rennie. A kind soul who always left you inspired and supported.

Beyond being a respected former FIFA referee and the recently appointed Chancellor of Sheffield Hallam University, Uriah supported our summer camps through Voluntary Action Sheffield and truly cared about helping us engage young people and access support.

We had plans to do more together, but sadly it was not meant to be. He will be so dearly missed. Our deepest condolences to his family and loved ones.❤️

06/06/2025

🌙 Eid Mubarak to Our Thalassaemia Warriors! ❤️❤️

As we celebrate this blessed day, our hearts are with all those affected by Thalassaemia, the brave children, the resilient adults, and the families who stand beside them with unwavering love.

This Eid, let’s honour their strength by spreading awareness, showing compassion, and supporting life-saving efforts like regular blood donation.

✨ To our warriors - your courage inspires us.
✨ To our communities - let’s come together to make a difference.
✨ To everyone reading this - your small act could be someone’s big hope.

May this Eid bring peace, health, and happiness to all.
Eid Mubarak from our hearts to yours. 💖

02/06/2025

🌟 Thank You to Our Foodbank Volunteers 🌟

TSY - Thalassaemia South Yorkshire, sincerely thanks our amazing Nether Edge & Sharrow foodbank volunteers.

Since thus initiative furst started as a result of COVID, your time, care, and dedication have helped support so many. We're truly grateful for all you do. 💚

08/03/2025

Happy International Women’s Day!

Today, we honor the strength and resilience of women affected by Thalassaemia, their families, and the incredible carers who support them. Your courage, love, and perseverance inspire us all.

Thank you to all our volunteers & supporters at the Netheredge and Sharrow Foodbank initiative which many amazing women gave and still continue to give their valuable time and support which has been a lifeline for many.

Wishing you strength, health, and happiness on this special day and always!

02/03/2025

Wishing everyone who is fasting a blessed and peaceful Ramadan. May this holy month bring you joy, reflection, and countless blessings.

Onbehalf of TSY & Nether Edge and Sharrow Foodbank.❤️❤️❤️

P.S 👇
Our TSY- Netheredge & Sharrow Foodbank will still be open and during Ramadan the times for collection are:-
Every Wednesday 4pm- 5pm at Landsdowne Tara, 206 Club Garden Road.

Registration a must before coming to collect by contacting 07988033534 and any referrals from organisations can be emailed to:- Nighatk28@yahoo.com

01/01/2025

20/10/2024

Some useful important updates,

This development opens new treatment avenues for an estimated 460 patients aged 12 and above in Engl

20/10/2024

- Attention Healthcare Professionals!

The Thalassaemia International Federation - TIF is conducting a survey to collect data on the use of (Desferal), an essential drug for managing in with and related blood conditions.

🔍 With reported shortages in the supply of across various countries, insights from physicians treating patients with thalassaemia, sickle cell disease ( ), and are critical to ensure continued access to this important drug. Your participation will help us advocate for the sustained production and availability of Desferal.

🌐 Please take a moment to contribute your thoughts and experiences. Click on the link below to participate:
https://thalassaemia.org.cy/news/surveys/desferioxamine-usage-survey/

🗣️ Patients, please share this survey with your treating physicians to amplify our voice in the community!

Let’s make sure every patient has access to the treatment they need.

27/09/2024

Had the opportunity to visit a Thalassaemia Centre in Palandri while on holiday in Pakistan, where I was invited for a tour round the centre.

I also met the founders of this important centre Imran Shohib, Tanveer Asheaf and Karnal Myshtaq Rasool Chaudry.

We discussed the patient support & training to raise awareness in the local areas and I met two young children and a mother who are affected by Thalassaemia.

My heart melted listening to the support provided in such a small centre and their plans for moving due to the need.

I was asked to join the board of trustees which I couldn't resist after speaking to the staff & meeting affected families.

Thank you to Mr Safeer for connecting me with this centre & for a lovely warm welcome to their centre.

I also did a short video of support for the centre which will be shared on their Al- Aqsa Welfare Trust page.