Cyst VS Cancer Ellis Journey

10/10/2024

10/10/2024

Last night was a hard night, Ellis steroids was due at half 9 so tried to keep him awake as late as possible, but being over tired and grouchy he fell into the front door, carpet like burn on side of his head and a little cut, he has woke with aome dry blood on nostril where his ng tube comes out, sometimes Ellis falls asleep on his back but always ends up on his front so it'd be Easy to get to his ng tube down his back to give meds so I sent him to bed to rest.. this morning has been super hard, I've had hair pulling, slapping and Ellis really stroppy.. he's also woke with sores on his bum, doesn't look like nappy rash but this could mean lch is present in his skin so going to call his oncologist and ask the question.. other than that he's all good today just very moody and probably really fed up !! Dentist tomorrow with him xx

Ps: how good of a dad is Ellis going to be 😊

09/10/2024

Hi its rachel

I've decided to do this page so those that want to keep upto date with Ellis journey so far this page will allow you to see the updates.. so then I don't have to post via my main Facebook personal account and those that aren't interested don't have to see it.

It's my blog and way of keeping a diary of dates and what's happened so far etc.. my thoughts feelings etc will be posted to help me process this very sad unfortunate diagnosis poor Ellis has recieved, I will be retrieving all previous posts and dating them day 1 day 2 and so on, so you will see on this post old posts reposted but it helps me keep everything and all pictures and info in one place..

Thanks for having the time to join us, keep little Ellis in your prayers if you can and welcome to the page..x